Transforming Patient Experience: Health Web Science Meets Medicine 2.0

McHattie, Lynn-Sayers; Cumming, Grant; French, Tara

doi:10.2196/med20.3128

Cited by 15 publications

(8 citation statements)

References 17 publications

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“…In the future, DHIs may also need to combine the health and social care needs of individuals, as these are often closely intertwined, and some health systems are now moving towards integrating health and social care services [ 80 , 81 ]. Research in this space is exploring personalising technology through co-design and other participatory methods to improve usability as patients and the public are often excluded from this process and their input will be vital if DHIs are to be successful [ 82 , 83 ]. Furthermore, digital health readiness assessments are under development to see if an individual has the capacity for a DHI, what form this should take, and what engagement and enrolment strategies suit them [ 84 ].…”

Section: Discussionmentioning

confidence: 99%

Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies

O’Connor

Hanlon

O’Donnell

et al. 2016

BMC Med Inform Decis Mak

486

465

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BackgroundNumerous types of digital health interventions (DHIs) are available to patients and the public but many factors affect their ability to engage and enrol in them. This systematic review aims to identify and synthesise the qualitative literature on barriers and facilitators to engagement and recruitment to DHIs to inform future implementation efforts.MethodsPubMed, MEDLINE, CINAHL, Embase, Scopus and the ACM Digital Library were searched for English language qualitative studies from 2000 – 2015 that discussed factors affecting engagement and enrolment in a range of DHIs (e.g. ‘telemedicine’, ‘mobile applications’, ‘personal health record’, ‘social networking’). Text mining and additional search strategies were used to identify 1,448 records. Two reviewers independently carried out paper screening, quality assessment, data extraction and analysis. Data was analysed using framework synthesis, informed by Normalization Process Theory, and Burden of Treatment Theory helped conceptualise the interpretation of results.ResultsNineteen publications were included in the review. Four overarching themes that affect patient and public engagement and enrolment in DHIs emerged; 1) personal agency and motivation; 2) personal life and values; 3) the engagement and recruitment approach; and 4) the quality of the DHI. The review also summarises engagement and recruitment strategies used. A preliminary DIgital Health EnGagement MOdel (DIEGO) was developed to highlight the key processes involved. Existing knowledge gaps are identified and a number of recommendations made for future research. Study limitations include English language publications and exclusion of grey literature.ConclusionThis review summarises and highlights the complexity of digital health engagement and recruitment processes and outlines issues that need to be addressed before patients and the public commit to digital health and it can be implemented effectively. More work is needed to create successful engagement strategies and better quality digital solutions that are personalised where possible and to gain clinical accreditation and endorsement when appropriate. More investment is also needed to improve computer literacy and ensure technologies are accessible and affordable for those who wish to sign up to them.Systematic review registrationInternational Prospective Register of Systematic Reviews CRD42015029846Electronic supplementary materialThe online version of this article (doi:10.1186/s12911-016-0359-3) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies

O’Connor

Hanlon

O’Donnell

et al. 2016

BMC Med Inform Decis Mak

486

465

View full text Add to dashboard Cite

show abstract

“…This is true when the digital version is a near copy of the paper-based questionnaire in terms of content and layout. But in an era in which the use of plain language and “inclusive design” or “electronic health for all” [ 45 , 46 ] is being advocated increasingly [ 47 , 48 ], copying the content and layout of the original into the digital version may not be enough.…”

Section: Discussionmentioning

confidence: 99%

Using Plain Language and Adding Communication Technology to an Existing Health-Related Questionnaire to Help Generate Accurate Information: Qualitative Study

Welbie¹,

Wittink²,

Westerman³

et al. 2018

J Med Internet Res

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BackgroundLow-educated patients are disadvantaged in using questionnaires within the health care setting because most health-related questionnaires do not take the educational background of patients into account. The Dutch Talking Touch Screen Questionnaire (DTTSQ) was developed in an attempt to meet the needs of low-educated patients by using plain language and adding communication technology to an existing paper-based questionnaire. For physical therapists to use the DTTSQ as part of their intake procedure, it needs to generate accurate information from all of their patients, independent of educational level.ObjectiveThe aim of this study was to get a first impression of the information that is generated by the DTTSQ. To achieve this goal, response processes of physical therapy patients with diverse levels of education were analyzed.MethodsThe qualitative Three-Step Test-Interview method was used to collect observational data on actual response behavior of 24 physical therapy patients with diverse levels of education. The interviews included both think-aloud and retrospective probing techniques.ResultsOf the 24 respondents, 20 encountered one or more problems during their response process. The use of plain language and information and communication technology (ICT) appeared to have a positive effect on the comprehensibility of the DTTSQ. However, it also had some negative effects on the interpretation, retrieval, judgment, and response selection within the response processes of the participants in this study. No educational group in this research population stood out from the rest in the kind or number of problems that arose. All respondents recognized themselves in the outcomes of the questionnaire.ConclusionsThe use of plain language and ICT within the DTTSQ had both positive and negative effects on the response processes of its target population. The results of this study emphasize the importance of earlier recommendations to accompany any adaption of any questionnaire to a new mode of delivery by demonstrating the difference and equivalence between the two different modes and to scientifically evaluate the applicability of the newly developed mode of the questionnaire in its intended setting. This is especially important in a digital era in which the use of plain language within health care is increasingly being advocated.

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“…Cocreation is a process to plan and define public services specifically aimed at reducing the mismatch between beneficiary needs and provided services. Its application in health services and prevention has been recommended [ 17 , 18 ], in particular when IT tools are proposed [ 19 - 22 ]. There are published case studies on the development of apps and other eHealth tools [ 19 , 23 - 30 ].…”

Section: Introductionmentioning

confidence: 99%

Describing the Process and Tools Adopted to Cocreate a Smartphone App for Obesity Prevention in Childhood: Mixed Method Study

Rossi

Ferrari

Amarri

et al. 2020

JMIR Mhealth Uhealth

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Background Childhood obesity prevention is a public health priority in industrialized countries. The Reggio Emilia Local Health Authority has implemented a program involving primary and secondary prevention as well as the care of obese children. There are many health-promoting mobile apps, but few are targeted to children and very few are sponsored by public health agencies. Objective The goal of the research was to describe the process and tools adopted to cocreate a mobile app sponsored by the Reggio Emilia Local Health Authority to be installed in parents’ phones aimed at promoting child health and preventing obesity. Methods After stakeholder mapping, a consulting committee including relevant actors, stakeholders, and users was formed. Key persons for childhood obesity prevention were interviewed, focus groups with parents and pediatricians were conducted, and community reporting storytelling was collected. The results of these activities were presented to the consulting committee in order to define the functionalities and contents of the mobile app. Results Three key trends emerged from community reporting: being active, playing, and being outdoors; time for oneself, family, and friends; and the pressures of life and work and not having time to be active and socialize. In focus groups, interviews, and labs, mothers showed a positive attitude toward using an app to manage their children's weight, while pediatricians expressed concerns that the app could increase their workload. When these findings were explored by the consulting committee, four key themes were extracted: strong relationships with peers, family members, and the community; access to safe outdoor spaces; children’s need for age-appropriate independence; and professional support should be nonjudgmental and stigma-free. It should be a dialogue that promotes family autonomy. The app functions related to these needs include the following: (1) newsletter with anticipatory guidance, recipes, and vaccination and well-child visit reminders; (2) regional map indicating where physical activity can be done; (3) information on how to manage emergencies (eg, falls, burns, fever); (4) module for reinforcing the counseling intervention conducted by pediatricians for overweight children; and (5) a function to build a balanced daily diet. Conclusions The pilot study we conducted showed that cocreation in health promotion is feasible, with the consulting committee being the key co-governance and cocreation tool. The involvement of stakeholders in this committee made it possible to expand the number of persons and institutions actively contributing to the project.

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Transforming Patient Experience: Health Web Science Meets Medicine 2.0

Cited by 15 publications

References 17 publications

Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies

Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies

Using Plain Language and Adding Communication Technology to an Existing Health-Related Questionnaire to Help Generate Accurate Information: Qualitative Study

Describing the Process and Tools Adopted to Cocreate a Smartphone App for Obesity Prevention in Childhood: Mixed Method Study

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