Trajectories of health-related quality of life among family caregivers of individuals with dementia: A home-based caregiver-training program matters

Kuo, Li Min; Huang, Huei‐Ling; Liang, Jersey; Kwok, Yam Ting; Hsu, Wen‐Chuin; Liu, Chin Yi; Shyu, Yea‐Ing Lotus

doi:10.1016/j.gerinurse.2016.08.017

Cited by 15 publications

(16 citation statements)

References 31 publications

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Section: Discussionsupporting

confidence: 82%

“…Our findings confirm earlier work showing that the receipt of training is associated with caregiver mental health, although previous studies have been mostly focused on caring for dementia patients and those with neurocognitive disorders. [23][24][25] Studies specifically exploring medical/nursing skills training for cancer caregivers and the effect on subsequent burden are lacking, however. A meta-analysis 3 and a more recent systematic review 26 indicate that skills training interventions are less prevalent than psycho-educational interventions, and skill interventions are focused mostly on coping and problem-solving skills.…”

Section: Discussionmentioning

confidence: 99%

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The role of medical/nursing skills training in caregiver confidence and burden: A CanCORS study

Mollica

Litzelman

Rowland

et al. 2017

Cancer

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Background Informal cancer caregivers provide essential support to cancer patients, including performing direct medical/nursing tasks, assistance with activities of daily living, and offering social support. We examined associations between receipt of medical/nursing skills training with caregiver burden, and the mediation of caregiving confidence on this relationship in a sample of caregivers of lung and colorectal cancer patients. Methods Caregivers identified by cancer patients in the Cancer Care Outcomes Research and Surveillance (CanCORS) Consortium completed a questionnaire assessing care provided, type of medical/nursing skills training received, burden (measured by the short-form Zarit Burden Interview), and confidence caring for the patient’s physical needs. Regression models adjusting for sociodemographic, caregiver, and care recipient characteristics assessed the relationship between training received and burden, and mediation analysis assessed the role of confidence in this relationship. Results 641 caregivers performed some type of medical/nursing task, with 59% (n=377) reporting that they did not receive training for all care provided. Caregivers reported moderate levels of burden (mean summary score = 32.07, SD = 12.66, possible range 14–70), and lack of receipt of training was associated with greater levels of burden (b = 2.60; SE 0.98; p-=0.01). Confidence partially mediated the relationship between training and burden (Sobel’s t =1.90; p= 0.03). Conclusions As the number of cancer patients and caregivers increase, understanding how best to reduce caregiver burden is necessary. Skills training is a potential area for interventions, but research on how best to provide training for caregivers (i.e., content, mode of delivery, timing) is needed.

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Section: Discussionsupporting

confidence: 82%

Section: Discussionmentioning

confidence: 99%

The role of medical/nursing skills training in caregiver confidence and burden: A CanCORS study

Mollica

Litzelman

Rowland

et al. 2017

Cancer

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“…Kuo, Huang, Liang, Kwok, Hsu, Liu, et al. () identified two quality of life trajectories in a group of caregivers going through an in‐home caregiver training program: a well‐functioning group and a poor‐functioning group. An individualized, home‐based caregiver‐training program enhanced family caregivers’ odds of being in a well‐functioning trajectory, especially in mental health‐related outcomes ( B = 1.27, OR = 3.55, CI = 1.39, 9.08, p < 0.01).…”

Section: Resultsmentioning

confidence: 99%

Dementia caregiver interventions in Chinese people: A systematic review

Petrovsky

Wang

et al. 2018

Journal of Advanced Nursing

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Aims:The aim of this systematic review was to examine the characteristics and the efficacy of dementia caregiving interventions among the Chinese population.Background: In recent years, an increasing number of dementia caregiving interventions have been developed for Chinese older adults living in Asia that aim to reduce caregivers' burden, depression and distress, and enhance quality of life. Little is known, however, on the nature and the efficacy of these interventions.Design: Systematic review with narrative summary. Data sources:We searched four databases for studies published in English between 1 January 1994-30 December 2017. Nineteen studies reported in 23 articles were included in the final analysis. Review methods:We used a set of criteria from the Cochrane Collaboration tool to assess for the risk of bias across studies. Results:We found that interventions varied in length, frequency, approach, and content, making comparisons across studies challenging. Caregivers' burden, depression, and distress were improved among most included studies. All studies that examined quality of life of caregivers (N = 6) showed improvement. Most of the interventions showed beneficial effects on care recipients' behavioural symptoms, agitation, and depression; cognitive function, however, failed to improve. Conclusion:Although the review found mixed results on intervention outcomes, the majority of interventions showed a potential to improve the health and wellbeing of dementia caregivers and care recipients. This review provides suggestions for future dementia caregiving research in the Chinese population, such as inclusion of relevant theoretical frameworks and more rigorous research designs.

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“… 58 This study evaluated the same intervention in the same sample as Study 20a. Results showed improved physical-and mental-related quality of life over time in intervention group, as compared to the control group.…”

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confidence: 99%

An international systematic review of dementia caregiving interventions for Chinese families

Saw

2020

Int J Geriat Psychiatry

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Older Asians and Chinese are among the least studied populations in the dementia caregiving literature. This review seeks to critically synthesize the literature on intervention characteristics, components and tailoring strategies for dementia family caregivers in Chinese communities globally. Methods: Five electronic databases (PsychINFO, PubMed, CINAHL, ScienceDirect and Google Scholar) were searched for articles published between 1980 and July 2018. The protocol of this review was registered with PROSPERO (CRD42019132800). Results: Twenty-nine unique interventions across 39 papers met inclusion criteria. Results from descriptive and thematic syntheses revealed that most interventions were psychoeducational, CBT-based, multicomponent, structured, and less than a year in duration. Disease education, management of behavioral and psychological symptoms of dementia, stress coping techniques, and referral to community resources were frequently included in interventions. Community-, culture-and language-focused strategies were used to tailor interventions. The most common tailoring strategies were: (a) using community networks and media for outreach and recruitment; (b) making translations and language adaptations to the intervention materials; and (c) focusing on trust and therapeutic alliance. Most interventions produced desired outcomes, particularly reducing caregiver burden and increasing self-efficacy. Conclusions: To our knowledge, this is the first review to date that systematically synthesized the characteristics and tailoring of dementia caregiving interventions for Chinese families globally. Current findings suggest that most interventions are effective, although many only superficially address Chinese culture. Future research should incorporate Chinese values and cross-cultural challenges into caregiving interventions for deep-level adaptations that could potentially be more effective to engage and support Chinese caregivers.

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Trajectories of health-related quality of life among family caregivers of individuals with dementia: A home-based caregiver-training program matters

Cited by 15 publications

References 31 publications

The role of medical/nursing skills training in caregiver confidence and burden: A CanCORS study

The role of medical/nursing skills training in caregiver confidence and burden: A CanCORS study

Dementia caregiver interventions in Chinese people: A systematic review

An international systematic review of dementia caregiving interventions for Chinese families

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