Tradução e adaptação cultural do Peds QL TM ESRD para a língua portuguesa

Abstract

ResumoObjetivo: Traduzir e adaptar a versão 3.0 do questionário Peds QL TM -End Stage Renal Disease para a língua portuguesa. Metodologia: A metodologia adotada foi proposta pelo idealizador do questionário original e é composta por 4 fases: tradução da versão original, retradução para o idioma inglês, aplicação em grupos de pacientes e prova de leitura e finalização, sendo que, as traduções e a revisão foram realizadas por profissionais especialistas nas línguas portuguesa e inglesa. Os questionários são compostos pelas versões de relato da criança e do adolescente e relato dos pais, e divididos em faixas etárias de 2 a 4 anos (apenas relato dos pais), 5 a 7 anos, 8 a 12 anos e 13 a 18 anos. Ao todo, foram realizadas 35 entrevistas, sendo 15 de crianças e adolescentes e 20 dos responsáveis. Conclusões: O processo de tradução e adaptação cultural, que consistiu na equivalência semântica (equivalência entre as palavras), equivalência idiomática (expressões equivalentes não encontradas ou itens que precisavam ser substituídos) e equivalência experimental (palavras e situações adequadas ao contexto cultural brasileiro), resultaram em uma versão de fácil compreensão e administração. Palavras-chave: Qualidade de Vida. Questionários. Criança. Insuficiência Renal. AbstRActObjective: To translate into and adapt to Brazilian Portuguese the Peds QL TM -End Stage Renal Disease version 3.0 questionnaire. Method: The methodology proposed by the creator of the original questionnaire was adopted. It consisted of 4 phases: translation from English into Brazilian Portuguese, back-translation into English, application to a population sample and proof-reading and completion. The translations and review were made by professional experts in Portuguese and English. The questionnaires were composed of versions for children and adolescents` reports and parents` reports, and were divided according to age ranges: 2-4 years (parents` report only), 5-7 years, 8-12 years and 13-18 years. 35 interviews were conducted with 15 children and adolescents and 20 carergivers. Conclusions: The process of translation and cultural adaptation, which consisted of semantic equivalence (equivalence between words), idiomatic equivalence (no equivalent expressions found or items that needed to be replaced) and experimental equivalence (words and situations appropriate to the Brazilian cultural context), resulted in a version that was understandable and easy to apply.

Children and adolescents on hemodialysis: attributes associated with quality of life

“…Chronic Renal Failure (CRF), as a chronic condition, can affect children and adolescents, with repercussion in many aspects of life, including family routine and social conviviality modifications when facing specific diet needs, commitment with the dialysis treatment, realization of invasive procedures, constant use of specific drugs and needed hospitalization due to frequent clinic alterations (4) . These factors, within others, lead children and adolescents to present emotional, physical and social alterations, influencing their HRQL.…”

“…The HRQL in children with CRF is rarely measured and, when it happens, most studies have assessed HRQL of adolescents with instruments specific for adults with CRF or, generic instruments (4) . Thus, it is important to conduct this study as a step for the construction of an instrument directed to the infant-juvenile clientele.…”

Quality Of Life Of Children With Chronic Kidney Disease

“…Studied aspects include general fatigue, perception on the disease, problems in the treatment, interaction with family and friends, worries, perception on physical appearance, and communication [11].…”

Crianças com doenças renais: associação entre diagnósticos de enfermagem e seus componentes

“…(1) If not identified and treated early, they can lead to severe complications due to recurrent clinical changes, requiring dietary changes, dialysis therapy, invasive procedures, constant use of medications, frequent hospitalizations, and separation from family life. (2,3) In spite of this, the care of children with kidney diseases requires professionals with skills and competences in the identification of the priority needs for the planning of care, optimizing of behaviors, and attainment of goals that promote the reestablishment of health, decreasing patient encounters with the health service, and promoting their quality of life. (4) Nursing care for children with kidney diseases can be based on the nursing process (NP) and on the use of standardized languages, as a way to meet the real needs of this clientele.…”

“…The NP include the nursing diagnosis stage, which constitutes an important focus of professional practice, as potential risks will be identified through its use, and nursing care will be adjusted. (3,4) The identification of nursing diagnoses involves clinical reasoning about the individual's health status, the use of data obtained by the interview and physical examination. A careful analysis of the client's health situation supports the identification of the patient needs which require specific interventions.…”