Towards Responsible Data Practices in Digital Health: A case study of an open source community's journey

Dunbar, Elizabeth L; Olsen, Helen Elizabeth; Salomon, Erika; Bhatt, Shreya; Mutuku, Regina; Wasunna, Beatrice; Edwards, Jackie; Kolko, Beth; Holeman, Isaac

doi:10.1145/3411763.3443438

Cited by 5 publications

(3 citation statements)

References 17 publications

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“…Egypt, influenced by the global GDPR framework, is witnessing growing adoption of GDPR standards by entities operating within its borders, especially multinational corporations. However, domestic entities face a more complex compliance landscape due to the lack of a fully aligned national data privacy framework Dunbar et al, 2021). Additionally, the influence of the European Union's GDPR is evident, with multinational corporations operating in Africa often aligning their data privacy practices with GDPR standards, setting a benchmark for local entities (Dunbar et al, 2021;.…”

Section: Compliance Levels Among Entities Concerning Data Privacy Law...mentioning

confidence: 99%

“…However, domestic entities face a more complex compliance landscape due to the lack of a fully aligned national data privacy framework Dunbar et al, 2021). Additionally, the influence of the European Union's GDPR is evident, with multinational corporations operating in Africa often aligning their data privacy practices with GDPR standards, setting a benchmark for local entities (Dunbar et al, 2021;. To raise compliance levels consistently, however, cooperation between governmental agencies, regulatory authorities, and the commercial sector is necessary .…”

Section: Compliance Levels Among Entities Concerning Data Privacy Law...mentioning

confidence: 99%

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Africa's Data Privacy Puzzle: Data Privacy Laws and Compliance in Selected African Countries

Kaddu,

Ssekitto

2024

udslj

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This study sought to give a thorough analysis of data privacy legislation, compliance rates, enforcement strategies, and related issues in seventeen (17) African countries that were chosen for the study. The study's objectives were to assess the state of data privacy laws in selected African countries, analyse levels of compliance among entities operating within these countries, assess the effectiveness of enforcement mechanisms, and identify and analyse the common challenges African countries face in complying with and enforcing data privacy laws. Researchers conducted a systematic review of 48 data privacy publications to gain a deep understanding of the complex data privacy landscape. This involved rigorous criteria for inclusion/exclusion, comprehensive search strategies, quality assessment, and data extraction/synthesis. While 15 African countries have implemented comprehensive data privacy legislation, two (Ethiopia and Burundi) rely on general regulations. The analysis found that regulatory bodies significantly enhance compliance, and highlighted recurring challenges such as insufficient public awareness, resource limitations, and complex governance structures. The research underscores the crucial role of dedicated legislation, public education, empowered regulatory authorities, and regional collaboration in guaranteeing data privacy rights in the digital age across Africa.

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Section: Compliance Levels Among Entities Concerning Data Privacy Law...mentioning

confidence: 99%

Section: Compliance Levels Among Entities Concerning Data Privacy Law...mentioning

confidence: 99%

Africa's Data Privacy Puzzle: Data Privacy Laws and Compliance in Selected African Countries

Kaddu,

Ssekitto

2024

udslj

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“…Si bien existe normativa, reglamentos, leyes para protección de datos personales, un aspecto clave es el actuar ético de controladores, manejadores, custodios de datos e investigadores. La investigación y los enfoques de estructuras tecnológicas deben estar centradas en el ser humano, particularmente en comunidades con niveles más bajos de alfabetización de datos, alfabetización digital o alfabetización en general (Dunbar et al, 2021). Solo así, se puede minimizar los riesgos en la vulneración de los derechos de la persona.…”

Section: Conclusionesunclassified

Retos y oportunidades en la accesibilidad de datos

Calva

2022

Interfases

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En el área de la salud donde existe una gran variedad y cantidad de información sensible y valiosa no es explotada en su totalidad en beneficio de las personas debido a la falta de acceso a los datos. Hay varios factores que influyen en la accesibilidad de los datos a nivel de organizaciones privadas o públicas, para determinar estos factores se utilizó una revisión bibliográfica, de los 300 artículos consultados, 23 se incluyeron en esta revisión. Entre los factores resultantes que influyen en la accesibilidad de la información se destacaron: gobiernos abiertos, sistemas de información de salud, leyes de protección de datos personales, ética en el uso de la información médica y lagos de datos. Facilitar la accesibilidad a los datos de salud derivaría en una mejora de servicios y planes de tratamientos, ahorro de los estados en recursos económicos, además impulsa la educación y la investigación.

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