Towards personalized assessment of fatigue perpetuating factors in patients with chronic fatigue syndrome using ecological momentary assessment: A pilot study

Worm-Smeitink, Margreet; Monden, Rei; Groen, Robin N.; Gils, Anne van; Bekhuis, Ella; Rosmalen, Judith; Knoop, Hans

doi:10.1016/j.jpsychores.2020.110296

Cited by 9 publications

(4 citation statements)

References 34 publications

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“…Such findings of quantitative and qualitative differences strengthen the call for individualized treatment (personalized medicine) focusing on individual-specific weaknesses and strengths, in order to decouple detrimental connections and enforce good ones. This case is built for instance by Worm-Smeitink et al [12], who point out that treatment manuals are often based on results of group-level analyses and therefore ignore possible individual variation in perpetuating factors and their associations with symptoms. Identifying person-specific perpetuating components would allow for more patient-tailored treatment.…”

Section: Heterogeneity In Within-person Processesmentioning

confidence: 99%

Putting the spotlight on individual-specific psychosomatic processes: An introduction to the special issue on intensive longitudinal research methods in psychosomatic research

Rosmalen

Ceulemans

2021

Journal of Psychosomatic Research

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Section: Heterogeneity In Within-person Processesmentioning

confidence: 99%

Putting the spotlight on individual-specific psychosomatic processes: An introduction to the special issue on intensive longitudinal research methods in psychosomatic research

Rosmalen

Ceulemans

2021

Journal of Psychosomatic Research

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“…6) The assessment of fatigue may be subject to recall bias and does not capture diurnal variation of fatigue. Future studies may want to use methods, such as ecological momentary assessment to overcome this limitation [ 39–41 ]. 7) Although validated questionnaires (such as the Chalder fatigue index) to assess mental (and physical) fatigue are available [ 42 ], self-constructed questions were used to quantify mental fatigue in this study, as was done before in patients with long-COVID [ 20 ].…”

Section: Discussionmentioning

confidence: 99%

Physical and mental fatigue in people with non-communicable chronic diseases

et al. 2022

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Background Fatigue is frequently reported in people with a non-communicable chronic disease. More insight in the nature of this symptom may enhance targeted treatment of fatigue. In this study, we aimed to gain more insight in the prevalence of different types of fatigue and in current prescribed treatment strategies to reduce fatigue in non-communicable chronic diseases. Methods People with non-communicable chronic diseases were contacted via public, non-profit, disease-specific health funds and patient associations and invited to complete a web-based survey. The survey included a general question about the experience (“Do you now or have you ever had complaints of fatigue?”) and nature of fatigue (physically/mentally/combination), the Checklist Individual Strength-subscale subjective fatigue (CIS-Fatigue; 8–56 points), self-constructed questions for the distinction between physical and mental fatigue (both 3–21 points) and questions on prescribed treatments for fatigue. Results In total, 4199 participants (77% females) completed the online survey. 3945 participants (94.0%) reported experiencing fatigue, of which 64.4% reported a combination of both physical and mental fatigue. Median CIS-Fatigue score was 41 (32–48) points, with 68% of the participants reporting severe fatigue (≥36 points). Median scores for physical and mental fatigue were 15 (11–18) and 12 (8–16) points, respectively. In 55% of the participants, fatigue was only occasionally or never discussed with the healthcare professional, and only 23% of the participants were prescribed a treatment for fatigue. Participants often reported no effect or even an increase in fatigue after treatment. Conclusions Findings indicate that both physical and mental fatigue are often experienced simultaneously in people with non-communicable chronic diseases, but can also occur separately. Fatigue is often only occasionally or never discussed, let alone treated, highlighting the need to raise awareness among healthcare professionals. Future studies are needed to gain more insight in underlying factors of fatigue in non-communicable chronic diseases, its impact on daily life and development and evaluation of targeted treatment strategies. Key messages: Both physical and mental fatigue are frequently present in people with non-communicable chronic diseases. Fatigue is often only occasionally or never discussed during consultation with the physician, highlighting the need to raise awareness among healthcare professionals for adequate screening and evaluating of fatigue in people with non-communicable chronic diseases. Only less than a quarter of the people with non-communicable chronic diseases who reported to experience fatigue were prescribed a treatment for fatigue, which was often experienced as ineffective.

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“…Additionally, a categorical variable (affect category) was made to indicate whether participants were predominantly positive (positive affect >4), predominantly negative (negative affect >4) or neither predominantly positive nor negative ('neutral'). All items were based on previously validated questionnaires or ESM studies [27][28][29][30][31][32][33][34].…”

Section: Procedures and Measurementsmentioning

confidence: 99%

Affect and post-COVID-19 symptoms in daily life: An exploratory experience sampling study

Schaap,

Wensink,

Doggen

et al. 2023

Preprint

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Insight into the daily life experiences of patients with post-COVID-19 syndrome is lacking. The current study explored temporal fluctuations of and associations between positive and negative affect and symptoms throughout the day in previously hospitalised post-COVID-19 patients using an experience sampling methodology. Ten participants (age: median = 60, interquartile range = 9 years; 50% women ; 80% ≥1 comorbidity; 8–12 months since hospital discharge) filled out brief online questionnaires, six times a day for 14 consecutive days. Positive and negative affect, and self-reported symptoms (physical and mental fatigue, cognitive functioning, dyspnoea, and pain) were assessed in real-time. Primarily, graphs were analysed to assess the individual longitudinal courses of and (concurrent and time-lagged) associations between affect and symptoms. Secondly, correlations or multilevel linear regression models were used to support these interpretations. Visual assessment showed limited temporal fluctuation in affect and symptoms. All symptoms appeared to associate positively with each other (correlations between .26 and .85). Positive affect was associated with lower symptoms severity (β’s between -.28 and -.67), and negative affect with higher symptoms severity (β’s between .24 and .66). Time-lagged analyses showed that – adjusted for residual symptom severity of prior measurements – both types of affect predicted symptom severity two hours later (β’s between -.09 and -.31 for positive affect; between .09 and .28 for negative affect). These findings suggest that positive and negative affect may play important roles in post-COVID-19 symptom experience and temporal fluctuation.

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Towards personalized assessment of fatigue perpetuating factors in patients with chronic fatigue syndrome using ecological momentary assessment: A pilot study

Cited by 9 publications

References 34 publications

Putting the spotlight on individual-specific psychosomatic processes: An introduction to the special issue on intensive longitudinal research methods in psychosomatic research

Putting the spotlight on individual-specific psychosomatic processes: An introduction to the special issue on intensive longitudinal research methods in psychosomatic research

Physical and mental fatigue in people with non-communicable chronic diseases

Affect and post-COVID-19 symptoms in daily life: An exploratory experience sampling study

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