Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review

Mullard, Jordan Christina Ruth; Kawalek, Jessica; Parkin, Amy; Rayner, Colin R.; Mir, Ghazala; Sivan, Manoj; Greenhalgh, Trisha

doi:10.1016/j.socscimed.2023.115669

Cited by 12 publications

(10 citation statements)

References 113 publications

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“…This method is the major contribution of our work that addresses previously identified concerns with the sustainability of peer-led interventions. We also embrace the notion of balancing biomedical, relational, and socio-political aspects of peer support's impact on health, as described by Mullard et al (9). In particular, our work offers important practical insights for capturing diverse voices that represent subgroups within marginalized communities.…”

Section: Discussionmentioning

confidence: 91%

“…Emerging research involving peer-led support interventions in response to the COVID-19 pandemic has highlighted the importance of recognizing how different definitions of health can have a dramatic influence (9). These include biomedical, relational, and socio-political framings.…”

Section: Brief Overview Of Peer-led Interventions In Healthmentioning

confidence: 99%

“…Biomedical models emphasize disease progression or symptom control, typically outside of social context, which can be a major limitation, as has been highlighted by the experiences of marginalized groups with COVID-19 (10). While relational models recognize social context (11), framing peer interventions solely through a relational lens could fail to appreciate how within-group variation in social norms and a lack of community cohesion could lead to reduced benefit for individuals who might be disempowered relative to the rest of their community (9). Socio-political framings recognize the role that inequalities, disadvantage, and discrimination play in access to services and health outcomes and stress the importance of community-led responses.…”

Section: Brief Overview Of Peer-led Interventions In Healthmentioning

confidence: 99%

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Developing a peer-led intervention to promote COVID-19 testing in low-income housing settings

Plunk,

Hannon,

Carver

et al. 2023

Front. Public Health

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BackgroundThe Housing Collaborative project at Eastern Virginia Medical School has developed a method of adapting public health guidance from public housing communities, which face tremendous health challenges in cardiometabolic health, cancer, and other major health conditions. In this paper, we describe how academic and community partners in the Housing Collaborative came together to do this work with a focus on COVID-19 testing in the context of the emerging pandemic.MethodsThe academic team used virtual community engagement methods to interact with the Housing Collaborative Community Advisory Board (HCCAB) and a separate cohort of research participants (N = 102) recruited into a study of distrust in COVID-19 guidance. We conducted a series of 44 focus group interviews with participants on related topics. Results from these interviews were discussed with the HCCAB. We used the collaborative intervention planning framework to inform adaptation of public health guidance on COVID-19 testing delivered in low-income housing settings by including all relevant perspectives.ResultsParticipants reported several important barriers to COVID-19 testing related to distrust in the tests and those administering them. Distrust in housing authorities and how they might misuse positive test results seemed to further undermine decision making about COVID-19 testing. Pain associated with testing was also a concern. To address these concerns, a peer-led testing intervention was proposed by the Housing Collaborative. A second round of focus group interviews was then conducted, in which participants reported their approval of the proposed intervention.ConclusionAlthough the COVID-19 pandemic was not our initial focus, we were able to identify a number of barriers to COVID-19 testing in low-income housing settings that can be addressed with adapted public health guidance. We struck a balance between community input and scientific rigor and obtained high quality, honest feedback to inform evidence-based recommendations to guide decisions about health.

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Section: Discussionmentioning

confidence: 91%

Section: Brief Overview Of Peer-led Interventions In Healthmentioning

confidence: 99%

Section: Brief Overview Of Peer-led Interventions In Healthmentioning

confidence: 99%

See 1 more Smart Citation

Developing a peer-led intervention to promote COVID-19 testing in low-income housing settings

Plunk,

Hannon,

Carver

et al. 2023

Front. Public Health

View full text Add to dashboard Cite

show abstract

“…These estimates may not accurately reflect the full impact of long covid on work status. In particular, people from marginalised communities are more likely to develop long covid and are less likely to be able to access health services 1314…”

Section: How Big Is the Problem For Patients Returning To Work?mentioning

confidence: 99%

Work and vocational rehabilitation for people living with long covid

O’Connor,

Parkin,

Mir

et al. 2024

BMJ

Self Cite

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“… 6 Importantly, the recognition and understanding of Long COVID have been enhanced by the crucial role played by people with the condition themselves, including through supportive peer-to-peer interactions, where valuable networks of shared experiences and coping strategies have been exchanged. 7 However, as symptoms often present heterogeneously, diagnosis and treatment are challenging. 1 4 8 …”

Section: Introductionmentioning

confidence: 99%

What is current care for people with Long COVID in England? A qualitative interview study

Sunkersing,

Ramasawmy,

Alwan

et al. 2024

BMJ Open

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ObjectiveTo investigate current care for people with Long COVID in England.DesignIn-depth, semistructured interviews with people living with Long COVID and Long COVID healthcare professionals; data analysed using thematic analysis.SettingNational Health Service England post-COVID-19 services in six clinics from November 2022 to July 2023.Participants15 healthcare professionals and 21 people living with Long COVID currently attending or discharged (18 female; 3 male).ResultsHealth professionals and people with lived experience highlighted the multifaceted nature of Long COVID, including its varied symptoms, its impact on people’s lives and the complexity involved in managing this condition. These impacts encompass physical, social, mental and environmental dimensions. People with Long COVID reported barriers in accessing primary care, as well as negative general practitioner consultations where they felt unheard or invalidated, though some positive interactions were also noted. Peer support or support systems proved highly valuable and beneficial for individuals, aiding their recovery and well-being. Post-COVID-19 services were viewed as spaces where overlooked voices found validation, offering more than medical expertise. Despite initial challenges, healthcare providers’ increasing expertise in diagnosing and treating Long COVID has helped refine care approaches for this condition.ConclusionLong COVID care in England is not uniform across all locations. Effective communication, specialised expertise and comprehensive support systems are crucial. A patient-centred approach considering the unique complexities of Long COVID, including physical, mental health, social and environmental aspects is needed. Sustained access to post-COVID-19 services is imperative, with success dependent on offering continuous rehabilitation beyond rapid recovery, acknowledging the condition’s enduring impacts and complexities.

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Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review

Cited by 12 publications

References 113 publications

Developing a peer-led intervention to promote COVID-19 testing in low-income housing settings

Developing a peer-led intervention to promote COVID-19 testing in low-income housing settings

Work and vocational rehabilitation for people living with long covid

What is current care for people with Long COVID in England? A qualitative interview study

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