Towards a reconceptualization of hope for patients with a diagnosis of cancer

Yates, Patsy

doi:10.1046/j.1365-2648.1993.18050701.x

Cited by 54 publications

(32 citation statements)

References 19 publications

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“…Studies confirm that persons with a cancer diagnosis, thought to be in a hopeless situation, often have a positive and hopeful vision of the future [47]. The PAD patients include people with a congenital chronic disease for which there is no curative treatment.…”

Section: Discussionmentioning

confidence: 99%

Coping, quality of life, and hope in adults with primary antibody deficiencies

Sigstad

Stray-Pedersen

Frøland

2005

Health Qual Life Outcomes

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BackgroundLiving with a chronic disease, such as primary antibody deficiency, will often have consequences for quality of life. Previous quality-of-life studies in primary antibody deficiency patients have been limited to different treatment methods. We wanted to study how adults with primary antibody deficiencies manage their conditions and to identify factors that are conducive to coping, good quality of life and hope.MethodsQuestionnaires were sent to all patients ≥20 years of age with primary antibody deficiencies who were served by Rikshospitalet University Hospital. The questionnaires consisted of several standardized scales: Ferrans and Powers Quality of Life Index (QLI), Short Form-36 (SF-36), Jalowiec Coping Scale (JCS), Nowotny Hope Scale (NHS), and one scale we devised with questions about resources and pressures in the past. Of a total of 91, 55 patients (aged 23–76 years) answered the questionnaires. The questionnaire study were supplemented with selected interviews of ten extreme cases, five with low and five with high quality of life scores.ResultsAmong the 55 patients, low quality of life scores were related to unemployment, infections in more than four organs, more than two additional diseases, or more than two specific occurrences of stress in the last 2–3 months. Persons with selective IgA deficiency had significantly higher QLI scores than those with other antibody deficiencies. An optimistic coping style was most frequent used, and hope values were moderately high. Based on the interviews, the patients could be divided into three groups: 1) low QLI scores, low hope values, and reduced coping, 2) low QLI scores, moderate hope values, and good coping, and 3) high QLI scores, moderate to strong hope values, and good coping. Coping was related to the patients' sense of closeness and competence.ConclusionLow quality of life scores in adults with primary antibody deficiencies were linked to unemployment and disease-related strains. Closeness and competence were preconditions for coping, quality of life and hope. The results are valuable in planning care for this patient group.

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Section: Discussionmentioning

confidence: 99%

Coping, quality of life, and hope in adults with primary antibody deficiencies

Sigstad

Stray-Pedersen

Frøland

2005

Health Qual Life Outcomes

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“…Los factores que pueden influenciar la satisfacción son la discusión, proveer responsividad a las emociones del paciente e involucrar al mismo en la toma de decisiones. -Mantener el optimismo del paciente: promover el optimismo del paciente 35,40 , el cual puede ser un poderoso predictor de adaptación y recuperación 41 aunque debe ser balanceado con honestidad y realismo 39,40 . -Minimizar el discomfort del profesional de la salud: el objetivo final del profesional de la salud debe ser minimizar su propio discomfort con la tarea, el cual puede resultar en miedo a la reacción al paciente, a sus propias emociones, a su falta de competencia o miedo a ser cul-pado 42 .…”

Section: Habilidades Comunicacionalesunclassified

Entrega de malas noticias en la práctica clínica

Herrera

Ríos²,

Manríquez³

et al. 2014

Rev. méd. Chile

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“…This is not a patient-centered approach because, as the physician continues to recommend treatments, there is the reassurance that medical science always has something to offer and the physician is never helpless in the ongoing battle against disease. In this way, physicians routinely support patients' false hopes with vague, euphemistic diagnoses and prognoses, and at times, overt lies (Yates, 1993), sometimes with the family colluding. The ensuing dance among the health care team members and the family about what can and can not be said to the patient, is fraught with anger, misunderstanding, and frustration.…”

Section: The Role Of Hopementioning

confidence: 99%