Towards a dignity manifesto of design - for people living with dementia

Fleming, Richard; Zeisel, John; Bennett, Kirsty; Golembiewski, Jan A.; Swaffer, Kate; Henderson, Lynda

doi:10.1080/00038628.2022.2136347

Cited by 22 publications

(39 citation statements)

References 3 publications

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“…This work emphasised the importance of considering human rights, participatory approaches and considering cultural contexts in environmental design. It demonstrates that design for dementia is 30 years behind design for physical disability (Fleming et al, 2020). It is essential to understand that the physical environment cannot be considered in isolation from the social environment; hence, it is important to understand how communities relate to both dementia and people living with dementia.…”

Section: Environmental Designmentioning

confidence: 99%

Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities

Ong¹,

Frost²,

Kuliga

et al. 2023

Brain Impairment

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The environment, and assistive technologies as part of this, can play an important role in supporting the participation and wellbeing of people living with dementia. If not considered, environments can be overwhelming and disempowering. Disability approaches including environmental considerations and assistive technology were often not offered routinely with people living with dementia. Concerned by this, dementia advocates aimed to create change in this area. The Environmental Design-Special Interest Group (ED-SiG) of Dementia Alliance International was developed as an international consumer-driven community of practice bringing together people with different relevant expertise including living experience (people living with dementia, care partners), architecture and design, occupational therapy, rehabilitation and care provision. This practice opinion piece provides an overview of dementia, the need for collaborative practices within practice with people living with dementia, and the considerations of assistive technology, environmental design and the global context. The reflection provides insights into this international community of practice, with personal reflections of members with living experience of dementia, and benefits and opportunities in considering environmental design and assistive technology from the perspectives of members. This work demonstrates and advocates collaborations that centre the perspectives and expertise of people living with dementia.

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Section: Environmental Designmentioning

confidence: 99%

Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities

Ong¹,

Frost²,

Kuliga

et al. 2023

Brain Impairment

View full text Add to dashboard Cite

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“…The economic impact is attributed to social care costs (care professionals, in community and in residential home settings), health costs, and informal family care costs. 2 In 2013, Alzheimer's Disease International (ADI) encouraged governments around the world to develop and implement National Plans for Dementia (PND) as they are the only powerful tools to improve dementia care and support. 3 In October 2014 the Italian Dementia National Plan was approved, listing among its major objectives the development of a national dementia information system with the aim of evaluating the impact of the disease, so to organize resources and services according to the different local needs.…”

Section: Introductionmentioning

confidence: 99%

Identification of dementia and MCI cases in health information systems: An Italian validation study

Bacigalupo

Lombardo

Bargagli³

et al. 2022

A&D Transl Res & Clin Interv

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Introduction The identification of dementia cases through routinely collected health data represents an easily accessible and inexpensive method to estimate the prevalence of dementia. In Italy, a project aimed at the validation of an algorithm was conducted. Methods The project included cases (patients with dementia or mild cognitive impairment [MCI]) recruited in centers for cognitive disorders and dementias and controls recruited in outpatient units of geriatrics and neurology. The algorithm based on pharmaceutical prescriptions, hospital discharge records, residential long‐term care records, and information on exemption from health‐care co‐payment, was applied to the validation population. Results The main analysis was conducted on 1110 cases and 1114 controls. The sensitivity, specificity, and positive and negative predictive values in discerning cases of dementia were 74.5%, 96.0%, 94.9%, and 79.1%, respectively, whereas in detecting cases of MCI these values were 29.7%, 97.5%, 92.2%, and 58.1%, respectively. The variables associated with misclassification of cases were also identified. Discussion This study provided a validated algorithm, based on administrative data, which can be used to identify cases with dementia and, with lower sensitivity, also early onset dementia but not cases with MCI.

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“…Even though these kinds of initiatives have been normally focused on social and community aspects, in 2020 Alzheimer’s Disease International published the ‘World Alzheimer Report. Design, dignity, dementia: dementia-related design and the built environment’ [ 7 ], where the second volume included the analysis of 85 architectural projects and inspiring study cases at the international level that were selected from an international survey and a self-reported questionnaire. From this list, best-practices offer a variety of projects including elderly day care centers ( n = 21, 25%), care homes ( n = 58, 68%), public equipment ( n = 5, 0.06%), and hospitals ( n = 1, 0.01%); whereas almost a third of there ( n = 25, 29%) are European cases.…”

Section: Introductionmentioning

confidence: 99%

Best Practices from Eight European Dementia-Friendly Study Cases of Innovation

Menéndez

García²

2022

IJERPH

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The concept of dementia-friendly cities and communities has achieved great dissemination in the international context since 2016. Although it is usually related with community networks and services, evidence and guidelines show the close relationship between the built environment design, health promotion, and the preservation of relationships with the local surroundings. Recent publications emphasize best practices in urban areas and care management. However, this is a very complex reality in each country depending on the sociosanitary services, the demographic, and geographic structure and many other different aspects including cultural ones. Moreover, design should also consider not only basic aspects such as habitability or universal accessibility, but also heritage, identity, and the feeling of normalized living. Knowledge about international experiences and innovative approaches is, as yet, an object of study as demographic ageing is still challenging all the welfare systems, especially in Europe. This study presents eight descriptive study cases in three different European countries—the United Kingdom, Belgium, and The Netherlands—to analyze the relationship between dementia-friendly initiatives and their intersection with design, urban planning and the provision of care. The results can provide strategic lines for development and innovation towards dementia-friendly societies and cities achieving SDG numbers 3 and 11 simultaneously.

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Towards a dignity manifesto of design - for people living with dementia

Cited by 22 publications

References 3 publications

Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities

Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities

Identification of dementia and MCI cases in health information systems: An Italian validation study

Best Practices from Eight European Dementia-Friendly Study Cases of Innovation

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