Toward a Strengths-Based Cognitive Profile of Children with Fetal Alcohol Spectrum Disorders: Implications for Intervention

Kully-Martens, Katrina; McNeil, Allison; Pei, Jacqueline; Rasmussen, Carmen

doi:10.1007/s40474-022-00245-5

Cited by 4 publications

(5 citation statements)

References 64 publications

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“…The review of the literature identified sixteen peer reviewed journal articles (ten Australian articles [ 20 , 22 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 ], and seven international articles [ 9 , 15 , 21 , 41 , 48 , 49 , 50 ]), one Australian perspectives commentary [ 51 ] and four PhD theses (three Australian theses [ 5 , 7 , 8 ] and one international thesis [ 52 ]) relating to FASD and Indigenous peoples. No published or grey literature was found that focused on addressing FASD in the Torres Strait Islander population.…”

Section: Resultsmentioning

confidence: 99%

“…Knowing the legacies of colonisation in the Australian context was also found to highlight the critical importance of applying strengths-based approaches as a healing-informed practice [ 5 , 7 , 15 , 21 , 41 , 50 ]. When yarning with Indigenous (Aboriginal and Māori) knowledge holders and non-Aboriginal allies in the FASD space, the legacies of colonisation were an implied and shared understanding.…”

Section: Resultsmentioning

confidence: 99%

“…In order to reframe personal and collective narratives, the Aboriginal knowledge holders emphasised the importance of focusing on holistic Aboriginal wellbeing as a way of addressing internalised colonisation and strengthening Aboriginal sovereignty and cultivating hope , with the ultimate goal of inviting healing to each “being” [ 7 , 15 , 20 , 21 , 42 , 45 , 47 ].…”

Section: Resultsmentioning

confidence: 99%

“…Among Indigenous peoples globally, strengths-based approaches that centre on meeting cultural needs, which are intrinsically healing-informed, have been found to decrease stigma, strengthen relationships, enhance cultural identity and connection, promote hope, measure cognitive abilities more accurately, lessen stress and feelings of hopelessness and support healthier coping for families [ 5 , 13 , 15 , 20 , 21 ]. Despite this, there remains a lack of strengths-based research and approaches to FASD, which has been found to perpetuate stigma, exacerbate mistrust of the healthcare system [ 4 ] and significantly undermine Aboriginal peoples’ access to health services [ 3 , 7 , 15 , 22 ]…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Development of an Australian FASD Indigenous Framework: Aboriginal Healing-Informed and Strengths-Based Ways of Knowing, Being and Doing

Hewlett

Hayes

Williams

et al. 2023

IJERPH

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Aboriginal culture intuitively embodies and interconnects the threads of life that are known to be intrinsic to human wellbeing: connection. Therefore, Aboriginal wisdom and practices are inherently strengths-based and healing-informed. Underpinned by an Indigenist research methodology, this article presents findings from a collaboration of Aboriginal and non-Aboriginal peoples to develop an Australian Fetal Alcohol Spectrum Disorder (FASD) Indigenous Framework during 2021 to 2023. The FASD Indigenous Framework unfolds the changes that non-Aboriginal clinicians and Aboriginal peoples each need to make in their respective ways of knowing, being and doing in order to facilitate access to healing-informed, strengths-based and culturally responsive FASD knowledge, assessment, diagnosis and support services among Aboriginal peoples. Drawing on the Aboriginal practices of yarning and Dadirri, written and oral knowledges were gathered. These knowledges were mapped against Aboriginal cultural responsiveness and wellbeing frameworks and collaboratively and iteratively reflected upon throughout. This article brings together Aboriginal wisdom (strengths-based, healing-informed approaches grounded in holistic and integrated support) and Western wisdom (biomedicine and therapeutic models) in relation to FASD. From a place of still awareness (Dadirri), both forms of wisdom were drawn upon to create Australia’s first FASD Indigenous Framework, a new practice in the assessment and diagnosis of FASD, which offers immense benefit to equity, justice, support and healing for Aboriginal families with a lived experience of FASD.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Development of an Australian FASD Indigenous Framework: Aboriginal Healing-Informed and Strengths-Based Ways of Knowing, Being and Doing

Hewlett

Hayes

Williams

et al. 2023

IJERPH

View full text Add to dashboard Cite

show abstract

“…Caregivers reported that their children and youth with FASD engaged in daily or almost daily “suicide talk.” Given the reported cognitive challenges associated with FASD ( 53 , 54 ), it is possible that some children and youth with FASD may not fully appreciate or comprehend the meaning of their statements about wanting to die or not wanting to be alive. Furthermore, some children or youth with FASD may lack the skills to cope with distressing emotions or adverse events, resulting in volatility, impulsivity, or reactivity to “in the moment” situations, which may lead them to engage in “suicide talk” to express their desire to escape these hard emotions.…”

Section: Discussionmentioning

confidence: 99%

Caregivers' experiences and perceptions of suicidality among their children and youth with fetal alcohol spectrum disorder

et al. 2022

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Individuals with Fetal Alcohol Spectrum Disorder (FASD) experience a range of biopsychosocial vulnerabilities that can increase the possibility of adverse life outcomes, including a heightened risk of suicidality. In this study, we explored the lived experiences of caregivers of children and youth with FASD and suicidality, including their perceptions of their child and youth's suicidal experiences. Between March and June 2021, six comprehensive, semi-structured interviews were conducted with five caregivers of children and youth with FASD (Mage = 14.5 years, range 11–22) who were currently experiencing suicidality or had a history of suicidality. Data were analyzed using interpretative phenomenological analysis and then developed into a composite vignette informed and organized by the social-ecological suicide prevention model (SESPM). The composite vignette revealed the narratives of families living with and caring for children and youth with FASD who experience suicidality in relation to the complex and intersectional individual, relational, community, and societal level contextual and protective factors. Findings from this study highlight the critical need for comprehensive FASD-informed suicide prevention and intervention approaches to promote the mental health and wellbeing of children and youth with FASD and their caregivers.

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Ethical and Social Issues in FASD

Tortorelli

Badry

Choate

et al. 2023

Fetal Alcohol Spectrum Disorders

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Toward a Strengths-Based Cognitive Profile of Children with Fetal Alcohol Spectrum Disorders: Implications for Intervention

Cited by 4 publications

References 64 publications

Development of an Australian FASD Indigenous Framework: Aboriginal Healing-Informed and Strengths-Based Ways of Knowing, Being and Doing

Development of an Australian FASD Indigenous Framework: Aboriginal Healing-Informed and Strengths-Based Ways of Knowing, Being and Doing

Caregivers' experiences and perceptions of suicidality among their children and youth with fetal alcohol spectrum disorder

Ethical and Social Issues in FASD

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