Toward a better understanding: An exploration of provider perceptions in pediatric hematopoietic stem cell transplant adherence

Abstract

Pediatric HSCT patients endure complicated treatment regimens, lifestyle modifications, and a lifetime of long‐term follow‐up. Treatment adherence in this population is understudied and prevalence unknown. Providers (physicians and advanced practice nurses) in this study completed an online‐structured questionnaire about definition, assessment, and perceived rates of adherence. Researchers' extracted 187 statements from participants' responses. The majority (n = 12, 71%) of providers reported adherence as a primary concern in outpatient HSCT. The major concern for providers was the potential of non‐adherence to negatively affect outcomes. Providers also shared clinical examples of non‐adherence. This study contributes to a better understanding of providers' perceptions of adherence within pediatric HSCT. Additional research is needed to describe, define, and improve adherence in pediatric HSCT to ultimately improve outcomes and quality of life for this vulnerable population.