Togetherness, teamwork and challenges: “Reflections on building an inclusive research network”

Abstract

Background: This article presents a case study of the Centre for Disability Studies' Inclusive Research Network. The network is a dynamic group of around fifteen people who have intellectual and other disabilities, support workers and university researchers. Methods: The study was based upon an evaluation of the group's research practice, as demonstrated by their work together over the last 7 years. Network members created focus groups to outline the process of their research. These reflections formed the basis of a presentation video recorded for the 50th anniversary of the International Association for the Scientific Study of Intellectual and Developmental Disabilities conference. The video outlined the groups' understanding of "inclusive research." A transcript of the script was used to analyse and reflect upon the group's processes. Thus, this article outlines inclusive research from the perspective of network members, evaluated against the founding principles of inclusive research presented in Johnson and Walmsley (2003)'s well-known volume. Results:The network member's answers show consistency with these principles developed by Johnson and Walmsley. Themes identified were the need for "teamwork" and "challenges" in following these principles. Conclusion:In defining what inclusive research is and what makes research "inclusive," the answers highlight the relational dynamics between the team members, and need to continually work on "togetherness." The affective connection between researchers | 275 RICHES Et al.

Keep Safe: collaborative practice development and research with people with learning disabilities

“…As with other papers on collaborative/inclusive practice development and research noted in the introduction, and some published since (Durrell, 2016;Riches and O'Brien, 2017;Strnadova and Walmsley, 2017;Frankena et al, 2019), this collaboration led to an engaging, useable intervention and feasibility study*, collaborators grew in confidence and the experience felt worthwhile.…”

A membership categorization analysis of roles, activities and relationships in inclusive research conducted by co‐researchers with intellectual disabilities

“…Similarly, the social activities relating to the colleague role are repeatedly described in the literature. Nind and Vinha (, p. 42) state that “strong collaboration was often depicted in terms of good knowledge of each other, having fun and spending time together, even being friends or a kind of family.” Riches and O'Brien () identified togetherness as an important quality of inclusive research. Relational aspects are seen as one of the most important sides to inclusive research (Tilly & Money, Friends and Making Ends Meet Research Group, ).…”

“…The first generation of inclusive research established its urgency; the second generation now aims to improve and reinforce inclusive approaches (Nind,). Sharing individual contributions is viewed as an important aim of inclusive research (Walmsley, Strnadová, & Johnson, ), and many research papers focus on sharing practicalities of inclusive research in order to support others in conducting inclusive research (Riches & O'Brien, ). Examples include a paper by Tyrer et al () on their collaboration with service users with intellectual disabilities in a diabetes screening study in the UK, a paper by Puyalto, Pallisera, Fullana, and Vila () that explores the experiences of advisors with intellectual disabilities while collaborating in a project on the transition to adulthood and a paper by Beighton et al () studying the perspectives of people with intellectual disabilities and their parents on their involvement in a study on annual health checks.…”

List od dziadka – recepcja przekazu mądrościowego seniorów (wstępna analiza ilościowa)

“…Idea badań włączających polega na stworzeniu możliwości osobom z NI mówienia o swoich problemach własnym głosem (np. Nicolaidis i in., 2015;Riches, O'Brien, 2017). Wymaga ona zaangażowania badaczy w organizację badań z udziałem osób z NI oraz instytucji odpowiedzialnych za sytuację osób niepełnosprawnych i tworzących odpowiednią infrastrukturę dla tych badań (Di Lorito i in., 2018).…”