To know or not to know – parents’ attitudes to and preferences for prenatal diagnosis

Ekelin, Maria; Persson, Linda; Välimäki, Adina; Svalenius, Elizabeth Crang

doi:10.1080/02646838.2016.1200019

Cited by 2 publications

(7 citation statements)

References 24 publications

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“…Information about the provision and nature of the ultrasound assessment appeared to also be mediated through community members in some cases, rather than healthcare professionals [ 29 , 64 , 65 ]. This extended to support after the scan which was often provided by friends and family [ 66 – 68 ].…”

Section: Resultsmentioning

confidence: 99%

“…Finding out the fetal sex was important for respondents in a range of contexts, in terms of imaging their future baby, and practical planning [ 28 , 45 , 48 , 68 – 70 ]. However, in some circumstances, this knowledge had negative consequences [ 30 , 71 ].…”

Section: Resultsmentioning

confidence: 99%

“…For many women and healthcare professionals, the power of the ultrasound image was significant [ 32 , 32 , 43 , 50 , 54 , 66 , 73 , 75 – 77 ]. Some women appeared to lack trust that they were pregnant until they were able to visualise the image of their baby [ 21 , 25 , 44 , 52 , 68 , 72 , 78 ]. The capacity for visualisation was particularly valued by fathers and other parents [ 21 , 28 , 61 , 78 ].…”

Section: Resultsmentioning

confidence: 99%

“…For some, it represented an opportunity to construct their child’s future personality and characteristics [ 32 , 21 , 73 , 79 ]. However, this sense of connection also complicated decisions around termination of pregnancy [ 18 , 30 , 34 , 68 ].…”

Section: Resultsmentioning

confidence: 99%

“…The scan appointment was a source of great excitement, joy and relief for many couples, providing a chance to bond with their baby, whilst also instilling a sense of responsibility, particularly amongst fathers and other co-parents [ 19 , 21 , 32 , 41 , 45 , 68 , 77 , 83 ]. For some, it also offered the potential for choice and the opportunity to plan when complications were detected [ 22 , 68 , 84 , 85 ]. However, for many, the identification of abnormalities was completely unexpected [ 17 , 18 , 20 , 24 , 65 , 69 , 73 , 80 , 86 – 88 ].…”

Section: Resultsmentioning

confidence: 99%

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First and second trimester ultrasound in pregnancy: A systematic review and metasynthesis of the views and experiences of pregnant women, partners, and health workers

et al. 2021

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Background The World Health Organization (WHO) recommends one ultrasound scan before 24 weeks gestation as part of routine antenatal care (WHO 2016). We explored influences on provision and uptake through views and experiences of pregnant women, partners, and health workers. Methods We undertook a systematic review (PROSPERO CRD42021230926). We derived summaries of findings and overarching themes using metasynthesis methods. We searched MEDLINE, CINAHL, PsycINFO, SocIndex, LILACS, and AIM (Nov 25th 2020) for qualitative studies reporting views and experiences of routine ultrasound provision to 24 weeks gestation, with no language or date restriction. After quality assessment, data were logged and analysed in Excel. We assessed confidence in the findings using Grade-CERQual. Findings From 7076 hits, we included 80 papers (1994–2020, 23 countries, 16 LICs/MICs, over 1500 participants). We identified 17 review findings, (moderate or high confidence: 14/17), and four themes: sociocultural influences and expectations; the power of visual technology; joy and devastation: consequences of ultrasound findings; the significance of relationship in the ultrasound encounter. Providing or receiving ultrasound was positive for most, reportedly increasing parental-fetal engagement. However, abnormal findings were often shocking. Some reported changing future reproductive decisions after equivocal results, even when the eventual diagnosis was positive. Attitudes and behaviours of sonographers influenced service user experience. Ultrasound providers expressed concern about making mistakes, recognising their need for education, training, and adequate time with women. Ultrasound sex determination influenced female feticide in some contexts, in others, termination was not socially acceptable. Overuse was noted to reduce clinical antenatal skills as well as the use and uptake of other forms of antenatal care. These factors influenced utility and equity of ultrasound in some settings. Conclusion Though antenatal ultrasound was largely seen as positive, long-term adverse psychological and reproductive consequences were reported for some. Gender inequity may be reinforced by female feticide following ultrasound in some contexts. Provider attitudes and behaviours, time to engage fully with service users, social norms, access to follow up, and the potential for overuse all need to be considered.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

First and second trimester ultrasound in pregnancy: A systematic review and metasynthesis of the views and experiences of pregnant women, partners, and health workers

et al. 2021

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Parents’ Psychological Adaptation after Receiving a Fetal Diagnosis: A Systematic Review

Gaspar¹

2022

GSJP

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A fetal diagnosis places an unexpected psychological burden on parents and triggers a complex pregnancy experience. Parents who choose to continue the pregnancy have unique perspectives as they prepare for birth. It is crucial to understand these families’ experiences to inform their care and support. This qualitative systematic review explored the psychological adjustment of parents who continued gestation after they received a fetal diagnosis. A systematic database search was conducted with subsequent thematic analysis of fourteen included studies. Parents experienced intense initial emotional reactions to the diagnosis including shock and grief, followed by a complex processing period influenced by personal and social factors. The findings demonstrate a need for improved multidisciplinary parental support for families who receive a fetal diagnosis and add rationale for the addition of psychological services to the care teams of prospective parents. Keywords: prenatal, fetal diagnosis, pregnancy, parents, emotions, process

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To know or not to know – parents’ attitudes to and preferences for prenatal diagnosis

Cited by 2 publications

References 24 publications

First and second trimester ultrasound in pregnancy: A systematic review and metasynthesis of the views and experiences of pregnant women, partners, and health workers

First and second trimester ultrasound in pregnancy: A systematic review and metasynthesis of the views and experiences of pregnant women, partners, and health workers

Parents’ Psychological Adaptation after Receiving a Fetal Diagnosis: A Systematic Review

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