To assess the quality of life in patients with chronic rheumatic heart disease

Sheikh, Sabreena; Ansari, Anwar Hussain; Mudigubba, Manoj Kumar; Dahiya, Saurabh

doi:10.5958/0974-360x.2020.00671.x

Cited by 2 publications

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“…The patients included in this study expressed emotional challenges. These findings are supported by another recent study by Sheikh et al (2019) , stating that most patients with CRHD suffer from moderate levels of anxiety and depression, which are associated with physical pain, social functioning, and general health. In comparison to the general population, patients with CHD showed a higher prevalence of depression, anxiety, and posttraumatic stress disorder, which lead to a greater risk for cardiovascular morbidity and mortality.…”

Section: Discussionsupporting

confidence: 77%

Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia

et al. 2021

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ObjectivesThis study aimed to describe the experiences and challenges faced by adolescents with moderate and severe congenital heart defects (CHD) or Chronic Rheumatic Heart Disease (CRHD) and to determine their needs in order to develop an Adolescent Transition Psychoeducational Program.MethodsThe study involved seven adolescents with moderate to severe CHD/CRHD, six parents, and four health care providers in Institute Jantung Negara (National Heart Institute). Participants were invited for a semi-structured interview. Qualitative data were analyzed through the Atlas.ti 7 program using triangulation methods.Results/conclusionsWe identified five themes concerning the experience and challenges of adolescents relating to: (1) emotional/psychological issues; (2) the progress of the illness; (3) relationship issues; (4) future preparation; and, (5) school and community. These themes were identified together with eleven subcategories. The staff expressed support for the development of the Adolescent Transition Psychoeducational Program and adolescents with CHD/CRHD and their parents were willing to participate in the program if their schedule allowed. Their suggestions to improve the program were classified into six categories, with two main themes, (1) the self-management of illness in life and the future; and, (2) social support. In conclusion, the findings from the situation analysis act as a basis for a conceptual framework that will contribute to the development of an Adolescent Transition Psychoeducational Program that aims to empower adolescents with CHD/CRHD, enabling them to manage challenges during the transition phase between childhood and adulthood.

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Section: Discussionsupporting

confidence: 77%

Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia

et al. 2021

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Caregivers’ Quality of Life: Comparative Analysis of Psychiatric ward and General Caregivers Quality of Life

Venkateswaramurthy¹,

VT²,

Sudha³

et al. 2022

RJPT

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Mental illness affects at least one in four people, either directly or indirectly. Caregivers play a significant role in fulfilling the vital physical needs and psychological wellbeing of mentally ill patients. Caregiving for mentally ill persons causes a burden to the caregivers. This burden reflects in the physical and mental health of the caregiver. This study was designed to explore the Quality of Life (QOL) of caregivers of mentally ill inpatients. In this descriptive, comparative cross-sectional study, the quality of life of caregivers of the psychiatric ward and general wards was studied by inpatients settings using the World Health Organization Quality of Life-BREF (WHOQOL-BREF) Scale. Caregivers of mentally ill patients have lower QOL levels, and it was observed that the WHOQOL-BREF score of the general ward was significantly higher than that of the psychiatric ward caregivers in all domains. This study would help manage, intervene, and identify the physical and mental health caregivers.

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To assess the quality of life in patients with chronic rheumatic heart disease

Cited by 2 publications

References 0 publications

Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia

Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia

Caregivers’ Quality of Life: Comparative Analysis of Psychiatric ward and General Caregivers Quality of Life

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