Time perception and illness acceptance among remitting-relapsing multiple sclerosis patients under treatment

Król, Joanna; Szczęśniak, Małgorzata; Koziarska, Dorota; Rzepa, Teresa

doi:10.12740/pp/38740

Cited by 12 publications

(13 citation statements)

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“…Our own studies have shown that the mean score for the whole group of MS patients was 24.83, which coincides with the results obtained by Pejas-Grzybek et al [30]. In Król et al study [31], it appears that acceptance of disease in MS patients has a strong positive relationship with subjective physical efficiency assessment and moderate positive association with subjective mental efficiency assessment, that found confirmation in the results of own study, where the acceptance of the disease positively correlated with the quality of life in the somatic and mental domains. Evaluation of disease acceptance among MS patients should be an integral part of the therapeutic process, because the patient's reconciliation with the disease allows to reduce the negative feelings [17,18] and fear [32], as well as more effective control of the course of the disease [12] and thus improve the quality of life [11,[13][14][15].…”

Section: Discussionsupporting

confidence: 90%

The Impact of Ilness Acceptance on Quality of Life of Patients with Multiple Sclerosis — Preliminary Study

Rosińczuk

Rychła

Bronowicka³

et al. 2017

PNIN

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Introduction. Multiple Sclerosis (MS) is a disease that often changes the life of a patient and his or her immediate family. The lack of aetiology, young age and the inability to control the dynamics of disease development and the lack of complete cure are factors impeding the acceptance of the disease. Aim. Evaluation of the effect of disease acceptance on quality of life (QOL) of MS patients. Material and Methods. The study was conducted among 128 people (93 women and 35 men) with MS using a shortened quality of life questionnaire of The World Health Organization (WHOQOL-BREF), as well as the Acceptance of Illness Scale (AIS) and the Author's Own Survey (AOS). The research project was approved by the Bioethics Committee of Wrocław Medical University (no. KB-444/2016). The research material was subjected to statistical analysis using the Statistica program version 13.1. Results. Analysis of the research material revealed that only one in three respondents was satisfied or very satisfied with their health condition, the lowest respondents rated the quality of their lives in the somatic domain, every fourth respondent does not accept his or her own disease, the higher the level of disease acceptance, the higher the score obtained in the WHOQOL-BREF questionnaire. Conclusions. The level of disease acceptance significantly affects QOL patients with MS. (JNNN 2017;6(4):157-162) Key Words: multiple sclerosis, acceptance of illness, quality of life, nursing care Streszczenie Wstęp. Stwardnienie rozsiane (MS, Multiple Sclerosis) to choroba, która często powoduje zmianę dotychczasowego życia pacjenta i osób z jego najbliższego otoczenia. Brak etiologii, młody wiek zachorowania a także niemożność kontroli nad dynamika rozwoju choroby i brak możliwości całkowitego wyleczenia to czynniki utrudniające akceptację choroby. Cel. Ocena wpływu akceptacji choroby na jakość życia pacjentów (QOL, Quality of Life) chorych na MS. Materiał i metody. Badanie przeprowadzono wśród 128 osób (93 kobiety oraz 35 mężczyzn) chorujących na MS wykorzystując skrócony kwestionariusz jakości życia Światowej Organizacji Zdrowia (WHOQOL-BREF, World Health Organisation Quality of Life Scale Brief Version) służący do QOL, a także skalę akceptacji choroby (AIS, Acceptance of Illness Scale) oraz kwestionariusz własnego autorstwa (AOS, Author's Own Survey). Na przeprowadzenie badań uzyskano zgodę Komisji Bioetycznej przy Uniwersytecie Medycznym we Wrocławiu (nr KB-444/2016). Materiał badawczy poddano analizie statystycznej przy użyciu programu Statistica 13.1. Wyniki. Analiza materiału badawczego wykazała, iż: tylko co trzeci ankietowany była zadowolony lub bardzo zadowolony ze stanu swojego zdrowia, najniżej respondenci ocenili jakość swojego życia w domenie somatycznej, co czwarty ankietowany nie akceptuje własnej choroby, im wyższy poziom akceptacji choroby tym wyższy wynik uzyskany w kwestionariuszu WHOQOL-BREF. Wnioski. Poziom akceptacji choroby istotnie wpływa na QOL chorych na MS. (PNN 2017;6(4):157-162) Słowa kluczowe: stwardnienie rozsiane, akcep...

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Section: Discussionsupporting

confidence: 90%

The Impact of Ilness Acceptance on Quality of Life of Patients with Multiple Sclerosis — Preliminary Study

Rosińczuk

Rychła

Bronowicka³

et al. 2017

PNIN

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“…Therefore we find this result rather surprising. Also disease duration, which in the study of patients with COPD (Jankowska-Polańska et al, 2016b), hypertension (Baczewska et al, 2015) and multiple sclerosis (Król, Szcześniak, Koziarska, & Rzepa, 2015) was a significant predictor of illness acceptance (shorter time since the diagnosis correlated with better acceptance), here turned out to be insignificant. Demographic variables (age, place of residence, education, income, having children) were also insignificant.…”

Section: Discussionmentioning

confidence: 76%

Predictors of illness acceptance in women with endometriosis

Andysz¹,

Merecz-Kot²

2020

Health Psychology Report

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The study aimed to identify significant predictors of illness acceptance in women with endometriosis. As potential predictive factors, variables related to the disease (pain frequency, co-morbid infertility, diagnostic delay, years of living with the diagnosis), demographic variables (age, place of residence, education, income, the fact of having children) and psychological variables (pain coping strategies) were taken into account. participants and procedure The study participants-247 women with endometriosiswere recruited in Poland in medical facilities from 6 large voivodship cities and through a patients' association. The participants filled in the following questionnaires: the Acceptance of Illness Scale (AIS), Endometriosis Health Profile-30 (EHP-30), and the Coping Strategies Questionnaire (CSQ). The data were analysed with the method of stepwise hierarchical regression. results The final significant model explained 24% of the variance of the AIS score. The model consisted of the following variables: pain frequency, reinterpreting pain sensations, pain catastrophizing and praying/hoping. Only two variables were significant predictors in this model: pain frequency and pain catastrophizing. Years with diagnosis, age, diagnostic delay, place of residence, education, income, and the fact of having children were not significant. conclusions The interventions addressed to patients should support their acceptance of chronic pain and help them to develop adaptive pain coping strategies. Due to the co-morbidity of endometriosis-related pain and depression the inclusion of antidepressant pharmacotherapy and psychotherapy based on cognitive techniques is recommended.

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“…In a study involving 54 patients with RRMS, Król et al show that focusing on a positive future, rather than dwelling on negative past events, can enable disease acceptance and conclude that psychological support may benefit PwMS in the early stages of disease progression. 28…”

Section: Emotional Responses and Attitudes To Ms Disease Progressionmentioning

confidence: 99%

Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives

Celius¹,

Thompson²,

Pontaga³

et al. 2021

PPA

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Time perception and illness acceptance among remitting-relapsing multiple sclerosis patients under treatment

Cited by 12 publications

References 0 publications

The Impact of Ilness Acceptance on Quality of Life of Patients with Multiple Sclerosis — Preliminary Study

The Impact of Ilness Acceptance on Quality of Life of Patients with Multiple Sclerosis — Preliminary Study

Predictors of illness acceptance in women with endometriosis

Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives

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