Time and Biography in Diabetic Experience

Maines, David R.

doi:10.17161/str.1808.4934

Cited by 5 publications

(7 citation statements)

References 3 publications

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“…Detailed and systematic knowledge about the experience of disabilitywhat it is like to be disabled-is central to a deeper understanding of disability in social life (Herzlich, 1973). Research has only begun to accumulate that examines these experiences of people with multiple sclerosis (Davis, 1973;Stewart & Sullivan, 1982), rheumatoid arthritis (Locker, 1984), cystic fibrosis (Waddell, 1982), diabetes (Benoliel, 1975;Maines, 1983Maines, , 1984, heart disease (Cowie, 1976;Speedling, 1982), cancer (Bluebond-Langner, 1978;Comaroff & Maguire, 1981;Gyllenskold, 1982), of people who are deaf (Groce, 1984;Higgins, 1979), and of those with epilepsy and diverse other physical conditions (Fisher & Galler, 1986;Fitzpatrick, Hinton, Newmar, Scambler, & Thompson, 1984;Locker, 1981;Shearer, 1981;Thomas, 1982;Zola, 1982). Most of what professionals know about living with disability is a product of research done from perspectives outside this experience-research by able-bodied experts who often give priority to their scientific theories and research techniques rather than to the words and perceptions of the people they study.…”

Section: The Experience Of Disabilitymentioning

confidence: 99%

“…As a current public service announcement reminds us, "Epilepsy-It's not what you think." People with epilepsy have much experience with these stigmatizing definitions (Dell, 1986;Ryan, Kempner, & Emlen, 1980;, 1983West, 1979bWest, , 1986; but see Caveness & Gallup, 1980). I believe there are subtleties of this experience that affect the selves of those involved but that are missed by the concept of stigma.…”

Section: Disability Stigma and Moral Experiencementioning

confidence: 99%

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Disability as Moral Experience: Epilepsy and Self in Routine Relationships

Schneidre

1988

Journal of Social Issues

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This paper draws on depth interview data from an availability sample of 80 people with epilepsy to examine the moral experience of disability (cf. E. Goffman, 1959, “The Moral Career of the Mental Patient,” Psychiatry, 22, 123–135). This concept directs attention to how those who live in the social world of epilepsy, and of disability more generally, define themselves and others in both positive and negative ways. Most discussions of the moral aspects of disability turn on the concept of stigma, and epilepsy certainly is a prime area for such study. This paper, however, focuses on the consequences of disability for the distribution of work and responsibility in routine, everyday relationships and how, in turn, this affects the way people see, think about, and feel about themselves. Particular attention is given to family, parental, and employment relationships. The paper raises the question, If disability is a social construction and has such costs, how can we best construct it for all concerned?

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Section: The Experience Of Disabilitymentioning

confidence: 99%

Section: Disability Stigma and Moral Experiencementioning

confidence: 99%

Disability as Moral Experience: Epilepsy and Self in Routine Relationships

Schneidre

1988

Journal of Social Issues

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“…tines, and relationships (Corbin and Strauss 1987;Charmaz 1991;Maines 1983), and salvage or rebuild valued lives and selves (Bury 1991;Charmaz 1983aCharmaz , 1987Charmaz , 1995Lefton 1984;Sandstrom, 1990). In exploring these themes, interactionists have insightfully elaborated on the various forms of identity and biography "work" that chronically ill people engage in (Bury 1982;Corbin and Strauss 1987;Conrad 1987;Charmaz 1991), the cultural narratives and rhetorics they draw upon in reshaping their lives (Frank 1993;Williams 1984), and the gender-related identity dilemmas they encounter (Charmaz 1994).…”

mentioning

confidence: 99%

Redefining Sex and Intimacy: The Sexual Self‐Images, Outlooks, and Relationships of Gay Men Living with HIV/AIDS

Sandstrom

1996

Symbolic Interaction

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This paper examines how gay men living with HIV disease come to terms with the profound sexual implications of their illness. Based on interviews with 25 gay men diagnosed with HIVIAIDS, this paper highlights (a) the disruptions that these men experience in their sexual feelings and selfimages as a result of their illness; (b) the challenges they encounter in negotiating and sustaining sexual relationships; (c) the declines they experience in their sexual attractiveness, desire, and capacities as their illness advances; and (d) the changed meanings they give to sex and self as they come to terms with the erotic implications of their illness and try to preserve valued, intimate identities. In focusing on these themes, this paper offers an "insider's view" into key dimensions of the moral experience of gay men with HIVIAIDS. It also illustrates how the moral experience of these men shifts over the course of their illness, especially in response to the changes and challenges that arise in their intimate relationships and subcultural networks.On a broader, analytic level, this paper addresses a research question that has been neglected in previous studies of the experience of illness-that is, how does serious illness affect the sexuality of diagnosed individuals, particularly their construction of sexual and intimate identities? Through examining this question, this paper contributes to and extends the growing interactionist literature on the consequences of illness for self.Since the early 1980s, interactionist researchers have focused increased attention on the lived experience of illness. In turn, they have developed illuminating analyses of how chronic illness affects the selves and biographies of diagnosed individuals. They have, for instance, revealed how chronically ill people experience and counteract stigma (Schneider

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“…Yet diabetes might also be regarded as an exemplary disorder of time in a rather different sense. Whether approached on a physiological or a socio-psychological register, its identity is manifestly to a large extent constituted by overlapping temporalities (Maines, 1983). Organically, for instance, T2D intrinsically involves the reiterative operation of various bodily timetables: repeated cycles of digestion, metabolism, transportation, conversion and excretion.…”

Section: Sweeter Times: Screening and Diabetesmentioning

confidence: 99%

A confusion of tenses: Health screening and time

Stronge

2012

Health (London)

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The article seeks to contribute to a re-evaluation of the role played by the contemporary health screen by exploring its relation to tense and time. Mobilizing data around operational aspects of screening for type 2 diabetes (T2D) alongside more general historical and conceptual perspectives, it challenges implicit assumptions that the screen represents either a momentary 'cut' in a longer process or a singular event with its own durational integrity. In contrast, the article argues, two distinct kinds of temporally related processes merge within any given screening episode. On one hand a rich heterogeneity of durations - physiological, technical, social, experiential - is involved. Yet this multiplicity is afforded unity and coherence insofar as the screen becomes a 'thick' site of intersection or fusion between the three major tenses. Drawing on aspects of the thought of Bergson and Deleuze as well as Mol's notion of 'ontological politics', the article reconceptualizes the screen as a 'leaky receptacle' for temporal complexity and teases out pragmatic implications of such a re-envisioning.

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Time and Biography in Diabetic Experience

Cited by 5 publications

References 3 publications

Disability as Moral Experience: Epilepsy and Self in Routine Relationships

Disability as Moral Experience: Epilepsy and Self in Routine Relationships

Redefining Sex and Intimacy: The Sexual Self‐Images, Outlooks, and Relationships of Gay Men Living with HIV/AIDS

A confusion of tenses: Health screening and time

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