Three year experience of a national interdisciplinary initiative to improve outcomes for children with hypothalamic pituitary axis tumours (HPATs) using multi-site videoconferencing for decision making on Behalf of the UK HPAT Interest Group

Morillon, Paul; Perelberg, Daniel; Losa, Laura; Ederies, Ash; Aquilina, Kristan; Dorward, Neil; Michalski, A; Hargrave, Darren; Chang, Yen-Ching; Bozorgi, Niloofar; James, Samantha; Korbontis, Marta; Drake, William; Akker, Scott; Mallucci, Connor; Pizer, Barry; Blair, Jo; Kamaly, Ian; Clayton, Peter; Spoudeas, Helen

doi:10.1530/endoabs.36.p78

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Patient Cohorts and Time Periods1

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2017

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“…Six independent audits that reviewed data from 1973 to 2011 were undertaken at three tertiary centres in the UK to evaluate the management of children with craniopharyngioma (16). Since 2010, the three centres Royal Manchester Children's Hospital (RMCH), Great Ormond Street Children's Hospital (GOSH) and Alder Hey Children's Hospital (AHCH) have participated in a national hypothalamic-pituitary axis tumour (HPAT) multiprofessional discussion forum to share decision making and improve care (17). Meta-data from these six audits were obtained and retrospectively analysed (Table 1).…”

Section: Patient Cohorts and Time Periodsmentioning

confidence: 99%