‘They say every child matters, but they don't’: an investigation into parental and carer perceptions of access to leisure facilities and respite care for children and young people with Autistic Spectrum Disorder (ASD) or Attention Deficit, Hyperactivity Disorder (ADHD)

Thompson, David W.; Emira, Mahmoud

doi:10.1080/09687599.2011.529667

Cited by 38 publications

(32 citation statements)

References 19 publications

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“…Parents reported that members of their church did not understand autism and sometimes did not support their children in attending church (Howel and Pierson 2010). Results of a qualitative study revealed that vulnerability and exposure to bullying were barriers for children with ASD to access organized leisure activities (Thompson and Emira 2011). The same study also found that staff awareness and understanding had a significant impact on parents' and caregivers' experiences of access to leisure.…”

Section: Determinants Of Participation In Out-of-school Activitiessupporting

confidence: 54%

“…Lack of support was cited as a barrier for participation in some studies. Parents did not have time; they did not let children go outdoors (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011;Howel and Pierson 2010) or engage in activities without their supervision (Thompson and Emira 2011). The lack of a peer partner for leisure pursuits was found to limit participation in physical activities (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011).…”

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

“…The lack of a peer partner for leisure pursuits was found to limit participation in physical activities (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011). Parents reported the lack of empathy and understanding from staff and service providers as a barrier to accessing leisure facilities (Thompson and Emira 2011).…”

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

“…Some schools provided after-school physical activities that promoted the participation of children with ASD in these activities (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011). Limited services including availability of accessible transportation services (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011), lack of community programs (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011), and access to information (Thompson and Emira 2011) were perceived as barriers to the participation of children and youth with ASD. Parents reported that mainstream settings didn't provide them with enough information about local availability of leisure facilities (Thompson and Emira 2011).…”

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

“…Limited services including availability of accessible transportation services (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011), lack of community programs (Obrusnikova and Miccinello 2012;Obrusnikova and Cavalier 2011), and access to information (Thompson and Emira 2011) were perceived as barriers to the participation of children and youth with ASD. Parents reported that mainstream settings didn't provide them with enough information about local availability of leisure facilities (Thompson and Emira 2011). A qualitative study found that staff training needs to be improved to familiarize them with children's and families' needs (Thompson and Emira 2011).…”

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

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Participation of Children and Youth with Autism Spectrum Disorder: A Scoping Review

Askari

Anaby

Bergthorson

et al. 2014

Rev J Autism Dev Disord

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Introduction Participation in leisure activities is beneficial for children's health and development, including those living with Autism Spectrum Disorder (ASD). Available syntheses of knowledge about participation have focused primarily on children with physical disabilities; however, little attention is directed to children with ASD. The purpose of this study was therefore to synthesize research evidence regarding the patterns and determinants of leisure participation in this population. Methods A scoping review of peer-reviewed studies published between 2000 and 2013 was performed. Two reviewers independently selected studies based on a systematic procedure. Inclusion criteria for studies were participants with ASD, aged 5-17 years, and description of participation in leisure activities outside of school. Data were organized and synthesized based on domains of the International Classification of Functioning, Disability and Health (ICF): Body Functions, Activity Limitations, and Environmental factors. Results Sixteen articles (out of 920) met the inclusion criteria and majority of those were descriptive in nature (69 %), whereas information about the factors that affect participation was reported in only 31 %. Overall, children with ASD participate in fewer leisure activities, mostly in the home setting, either with adults or on their own. Factors identified as associated with participation involved family support and social attitudes (environmental factors), sensitivity and behavioral challenges (body functions), and communication and interpersonal relationships problems (activity limitations). Discussion Knowledge derived from this review provides preliminary understanding of and justifies greater attention towards the concept of participation in this population. Further research directions are suggested to address the identified gaps in the literature.

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Section: Determinants Of Participation In Out-of-school Activitiessupporting

confidence: 54%

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

Section: Determinants Of Participation In Out-of-school Activitiesmentioning

confidence: 99%

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Participation of Children and Youth with Autism Spectrum Disorder: A Scoping Review

Askari

Anaby

Bergthorson

et al. 2014

Rev J Autism Dev Disord

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A comparison of intervention for problematic speech using reinforcement with and without preferred topics

Stocco

Saavedra

Fakharzadeh

et al. 2020

J of App Behav Analysis

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Previous research has shown that responding to the appropriate and problematic speech of individuals diagnosed with developmental disabilities with interested and uninterested listener responses, respectively, can promote more appropriate conversational engagement. However, Fisher et al. (2013) also responded to appropriate speech with access to preferred conversational topics. This study examined the influence of listener interest on the problematic speech of 8 participants and tested the additive effects of (Study 1) and participant preference for (Study 2) delivering preferred topics as reinforcement for appropriate speech. Interventions were equally effective with or without arranging access to preferred topics, but a majority of participants demonstrated a preference for intervention with contingent access to preferred topics. Caregivers and speech‐language pathologists rated the intervention procedures as acceptable and changes in participants' speech satisfactory.

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Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders

Harper¹,

Dyches

Harper

et al. 2013

J Autism Dev Disord

155

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Parents of children with autism spectrum disorders (ASD) are at risk for having higher stress and lower marital quality than other parents. Survey data regarding respite care, marital quality, and daily hassles and uplifts were obtained from 101 mother-father dyads who were together raising at least one child with ASD (total # of children = 118). Number of hours of respite care was positively related to improved marital quality for both husbands and wives, such that a 1-h increase in weekly respite care was associated with a one-half standard deviation increase in marital quality. This relationship was significantly mediated by perceived daily stresses and uplifts in both husbands and wives. More respite care was associated with increased uplifts and reduced stress; increased uplifts were associated with improved marital quality; and more stress was associated with reduced marital quality. The number of children in the family was associated with greater stress, and reduced relational quality and daily uplifts. Results suggest policymakers and practitioners should develop supports for providing respite for families raising children with ASD.

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‘They say every child matters, but they don't’: an investigation into parental and carer perceptions of access to leisure facilities and respite care for children and young people with Autistic Spectrum Disorder (ASD) or Attention Deficit, Hyperactivity Disorder (ADHD)

Cited by 38 publications

References 19 publications

Participation of Children and Youth with Autism Spectrum Disorder: A Scoping Review

Participation of Children and Youth with Autism Spectrum Disorder: A Scoping Review

A comparison of intervention for problematic speech using reinforcement with and without preferred topics

Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders

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