“They (ARVs) are my life, without them I’m nothing”—experiences of patients attending a HIV/AIDS clinic in Johannesburg, South Africa

Gilbert, Leah; Walker, Liz

doi:10.1016/j.healthplace.2009.06.006

Cited by 45 publications

(36 citation statements)

References 32 publications

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“…Our study participants had considered discontinuing treatment but did not feel it was a viable solution due to the potential adverse effects on their own health and their children's well-being. As noted by Gilbert and Walker (2009), children were a strong factor motivating ART adherence.…”

Section: Discussionmentioning

confidence: 97%

The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa

Woolgar

Mayers

2014

Journal of the Association of Nurses in AIDS Care

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For persons living with HIV (PLWH) in limited socioeconomic circumstances in South Africa, social grants for disability have contributed significantly to alleviate poverty, yet there is a risk that recipients may lose these grants once they are clinically stable on antiretroviral therapy (ART). Our qualitative research explored perceptions and experiences of PLWH on ART concerning the social grant for disability and its contribution to health. Three focus groups were conducted with 15 purposively selected participants who attended a primary care clinic in the Western Cape. A thematic data analysis approach revealed two themes: (a) disability grants as a means of survival and (b) disability grants and ART adherence. The disability grant was considered an essential source of income and, for some, the sole means of survival. Participants valued their health more than the income, however, and, despite the risk of losing the grant, remained adherent to ART.

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Section: Discussionmentioning

confidence: 97%

The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa

Woolgar

Mayers

2014

Journal of the Association of Nurses in AIDS Care

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“…They also did so when they were sicker, as evidenced by lower CD4 counts at baseline, compared to the workplace participants. Their experience of being ill or seeing someone die from HIV may have motivated them to test for HIV, 14 while feeling physically better on treatment may have reaffirmed their beliefs in the benefits of ART. Participants also reported having had positive experiences of care in the public-sector clinic.…”

Section: Discussionmentioning

confidence: 99%

“…This was consistent with similar studies conducted in urban settings in South Africa reporting attrition largely due to factors outside participants' control. 14,15 The workplace, through eliminating most structural barriers to ART uptake and proactively referring employees for HIV testing, had an estimated ART coverage exceeding 95% of those needing treatment. Workplace participants were thus less self-selected and perhaps more representative of HIVinfected individuals in need of treatment but not currently being seen in programs that rely mostly on patient-initiated testing.…”

Section: Discussionmentioning

confidence: 99%

Contrasting Reasons for Discontinuation of Antiretroviral Therapy in Workplace and Public-Sector HIV Programs in South Africa

Dahab

Kielmann

Charalambous

et al. 2011

AIDS Patient Care and STDs

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We investigated reasons for clinical follow-up and treatment discontinuation among HIV-infected individuals receiving antiretroviral therapy (ART) in a public-sector clinic and in a workplace clinic in South Africa. Participants in a larger cohort study who had discontinued clinical care by the seventh month of treatment were traced using previously provided locator information. Those located were administered a semistructured questionnaire regarding reasons for discontinuing clinical follow-up. Participants who had discontinued antiretroviral therapy were invited to participate in further in-depth qualitative interviews. Fifty-one of 144 (35.4%) in the workplace cohort had discontinued clinical follow-up by the seventh month of treatment. The median age of those who discontinued follow-up was 46 years and median educational level was five years. By contrast, only 16.5% (44/ 267) of the public-sector cohort had discontinued follow-up. Among them the median age was 37.5 years and median education was 11 years. Qualitative interviews were conducted with 17 workplace participants and 10 public-sector participants. The main reasons for attrition in the workplace were uncertainty about own HIV status and above the value of ART, poor patient-provider relationships and workplace discrimination. In the public sector, these were moving away and having no money for clinic transport. In the workplace, efforts to minimize the time between testing and treatment initiation should be balanced with the need to provide adequate baseline counseling taking into account existing concepts about HIV and ART. In the public sector, earlier diagnosis and ART initiation may help to reduce early mortality, while links to government grants may reduce attrition.

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“…Studies done in Uganda by Gilbert andWalker (2009:1127) and Cornett (2008:58) show social networks to be important. This is supported by the views of community caregivers, who consider a social support network as highly important to people on ART.…”

Section: Sub-theme B33: Need For Social Support Structuresmentioning

confidence: 99%

The Challenges and Perceptions of Community Caregivers With Regard to Antiretroviral Treatment Adherence of Patients: A Phenomenological Study

Mokwele

Strydom

2017

SWORK

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“They (ARVs) are my life, without them I’m nothing”—experiences of patients attending a HIV/AIDS clinic in Johannesburg, South Africa

Cited by 45 publications

References 32 publications

The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa

The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa

Contrasting Reasons for Discontinuation of Antiretroviral Therapy in Workplace and Public-Sector HIV Programs in South Africa

The Challenges and Perceptions of Community Caregivers With Regard to Antiretroviral Treatment Adherence of Patients: A Phenomenological Study

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