Themes of loss and dying in caring for a family member with AIDS

Brown, Marie Annette; Powell‐Cope, Gail

doi:10.1002/nur.4770160305

Cited by 54 publications

(20 citation statements)

References 35 publications

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“…Anticipating the loss of the spouse was the most painful aspect of loss for these women as has been found in other research (Ross & Graydon 1997, Bergs 2002. Similar to the findings in this study, Brown and Powell-Cope (1993) identified anger as a feature of loss in caregivers of persons with AIDS, with anger 'often related to untimely death and/or to the PWA's (person with AIDS) responsibility for contracting AIDS ' (p. 184). This illustrates the similarity in stigmatising effects of AIDS and COPD, as these two diseases are usually attributed to lifestyle choices.…”

Section: Discussionsupporting

confidence: 88%

Living with a spouse with chronic obstructive pulmonary disease: the meaning of wives’ experiences

Boyle

2009

J of Nursing and Healthcare

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Aim. To describe and understand the meaning of the experience of living with a spouse who has chronic obstructive pulmonary disease. Background. Living with a spouse with a chronic illness may have a profound effect on women’s lives since society expects families, and especially women, to care for the chronically ill. The family member providing care and support is usually the wife. Design. This study investigated the wife’s experience of living with a husband’s chronic illness. A hermeneutic phenomenological approach was used to describe and understand the experience of women living with a spouse who has chronic obstructive pulmonary disease to determine the meaning this experience has for their lives. Methods. In‐depth interviews were conducted with ten women whose husbands had mild to severe obstructive lung disease. Thematic analysis was based on interpretive methods. Data were collected in 1997. Results. The findings are presented as two clusters, living with everyday illness and surviving the illness. Everyday illness includes monitoring, regulating activity, integrating illness effects, and managing technologies. Surviving the illness includes riding the roller coaster, keep on going, garnering support and finding explanations. Conclusions. The spouse’s illness had a major influence on these women’s lives, and the effects are very complex and interwoven with one another. Relevance to clinical practice. Health professionals can have a major role in assisting women to both live with the everyday illness and to survive its effects. Women were eager to tell their stories. Health professionals can help women deal with the experience by forming support groups and by asking the ‘How can I help?’ question more often and then actively listening to expressed concerns. Supporting women in their monitoring and regulating role is especially critical.

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Section: Discussionsupporting

confidence: 88%

Living with a spouse with chronic obstructive pulmonary disease: the meaning of wives’ experiences

Boyle

2009

J of Nursing and Healthcare

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“…In fact, Parkes and Weiss (1983) reported that anticipatory grief can increase involvement in relationships by drawing people together. This notion was supported by Brown and Powell-Cope's (1993) report that open discussion of death can be quite fulfilling, sometimes resulting in increased cohesion among family members.…”

Section: Disclosurementioning

confidence: 81%

“…Given that the death of one's chdd is presumed to lead to the most acute type of stress (Sanders, 1979), the anguish resulting &om providing care to a loved one who is HIV positive would be particularly intense when the loved one is the mother's child (O'Donnell & Bernier, 1990). Those who care for others with AIDS are vulnerable and should benefit fiom support and or counseling (Brown & Powell-Cope, 1993). Unfortunately, it is quite likely that most women who are HIV positive and caring for another 111 person do not have the emotional or financial resources to obtain either support or counseling.…”

Section: Mother's Other Caregiving Burdensmentioning

confidence: 99%

For whom the bell tolls: Parenting decisions and challenges faced by mothers who are HIV seropositive.

Armistead¹,

Forehand²

1995

Clinical Psychology: Science and Practice

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We delineate critical parenting issues faced by mothers who are HIV seropositive. These issues, which must be considered within the environmental context in which most of these women live, include major life decisions (pregnancy, disclosure, future planning) and daily life challenges (day-to-day parenting, managing other burdens). Research is virtually nonexistent and, as most parenting issues faced by mothers who are seropositive are unique, it is not possible to draw upon work with other parents for direction and solution. Research on the parenting issues faced by these women is needed to guide intewentions and policy.

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“…Also, issues related to HIV/AIDS death as a form of relief were critical in shaping existential perceptions of women in this study. The emotional toll on family members of PLWHA is enormous as they observe the pain and suffering endured by the PLWHA before they ultimately succumb to death from AIDS (Brown & Powell-Cope, 1993). Family members' belief that death is a form of relief invariably becomes their unique response to the eventual loss of family from HIV.…”

Section: Discussionmentioning

confidence: 99%

Cultural Implications of Death and Loss from AIDS Among Women in South Africa

Iwelunmor

Airhihenbuwa

2012

Death Studies

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Over 1.8 million people have died of AIDS in South Africa and it continues to be a death sentence for many women. The purpose of this study was to examine the broader context of death and loss from HIV/AIDS and to identify the cultural factors that influenced existing beliefs and attitudes. The participants included 110 women recruited from three communities in South Africa. Focus group methodology was used to explore their perceptions surrounding death and loss from HIV/AIDS. Using the PEN-3 cultural model, our findings revealed that there were positive perceptions related to how women cope and respond to death and loss from HIV/AIDS. Findings also revealed existential responses and negative perceptions that strongly influence how women make sense of increasing death and loss from HIV/AIDS. In the advent of rising death and loss from HIV/AIDS, particularly among women, interventions aimed at reducing negative perceptions while increasing positive and existential perceptions are needed. These interventions should be tailored to reflect the cultural factors associated with HIV/AIDS.

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Themes of loss and dying in caring for a family member with AIDS

Cited by 54 publications

References 35 publications

Living with a spouse with chronic obstructive pulmonary disease: the meaning of wives’ experiences

Living with a spouse with chronic obstructive pulmonary disease: the meaning of wives’ experiences

For whom the bell tolls: Parenting decisions and challenges faced by mothers who are HIV seropositive.

Cultural Implications of Death and Loss from AIDS Among Women in South Africa

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