The World Society for Pediatric and Congenital Heart Surgery: Its Mission and History

Tchervenkov, Christo I.; Stellin, Giovanni; Kurosawa, Hiromi; Jacobs, Jeffrey P.; Mavroudis, Constantine; Bernier, Pierre Luc; Maruszewski, Bohdan; Kreutzer, Christián; Çïçek, Sertaç; Kinsley, Robin H.; Nunn, Graham R.; Jonas, Richard A.

doi:10.1053/j.pcsu.2009.01.002

Cited by 15 publications

(25 citation statements)

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“…The BDA tool was designed by a multidisciplinary group, including paediatric neurologists, developmental experts, paediatricians, psychologists, nurses and a statistical expert. The BDA development group consulted the published literature on long-term outcomes of children with cardiac disease and critical illness in order to identify the optimal domains to incorporate within the measure, these being gross motor skills, 14,36,38,125,126 fine motor skills, 14,36,127,128 daily living skills, 8,127,129 receptive and expressive communication, 14,36,38,128,129 socialisation, 130,131 and behaviour and coping skills. 8,119,132,133 Within each age band of the BDA, individual items were selected by the expert panel based on review of the following measures: Mullen, 53 Battelle Developmental Inventory, 134 Battelle Developmental Inventory Screen, 135 Denver Developmental Screening Test II, 136 Bayley-III Screener Test, 137 Bayley-III Scales of Infant and Toddler Development, Bayley Infant Neurodevelopmental Screen, 51 Ages and Stages, 124 Developmental Neuropsychological Assessment, 138 Wechsler Individual Achievement Test, 139 Wechsler Abbreviated Scale of Intelligence (WASI-II), 140 Wechsler Intelligence Scale for Children, 141 Children's Memory Scale, 142 Behaviour Rating Inventory of Executive Function, 143 Behavioural Assessment of the Dysexecutive Syndrome 144 and Par...…”

Section: Face Validitymentioning

confidence: 99%

Early morbidities following paediatric cardiac surgery: a mixed-methods study

Brown

Pagel

Ridout

et al. 2020

Health Serv Deliv Res

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Background Over 5000 paediatric cardiac surgeries are performed in the UK each year and early survival has improved to > 98%. Objectives We aimed to identify the surgical morbidities that present the greatest burden for patients and health services and to develop and pilot routine monitoring and feedback. Design and setting Our multidisciplinary mixed-methods study took place over 52 months across five UK paediatric cardiac surgery centres. Participants The participants were children aged < 17 years. Methods We reviewed existing literature, ran three focus groups and undertook a family online discussion forum moderated by the Children’s Heart Federation. A multidisciplinary group, with patient and carer involvement, then ranked and selected nine key morbidities informed by clinical views on definitions and feasibility of routine monitoring. We validated a new, nurse-administered early warning tool for assessing preoperative and postoperative child development, called the brief developmental assessment, by testing this among 1200 children. We measured morbidity incidence in 3090 consecutive surgical admissions over 21 months and explored risk factors for morbidity. We measured the impact of morbidities on quality of life, clinical burden and costs to the NHS and families over 6 months in 666 children, 340 (51%) of whom had at least one morbidity. We developed and piloted methods suitable for routine monitoring of morbidity by centres and co-developed new patient information about morbidities with parents and user groups. Results Families and clinicians prioritised overlapping but also different morbidities, leading to a final list of acute neurological event, unplanned reoperation, feeding problems, renal replacement therapy, major adverse events, extracorporeal life support, necrotising enterocolitis, surgical infection and prolonged pleural effusion. The brief developmental assessment was valid in children aged between 4 months and 5 years, but not in the youngest babies or 5- to 17-year-olds. A total of 2415 (78.2%) procedures had no measured morbidity. There was a higher risk of morbidity in neonates, complex congenital heart disease, increased preoperative severity of illness and with prolonged bypass. Patients with any morbidity had a 6-month survival of 81.5% compared with 99.1% with no morbidity. Patients with any morbidity scored 5.2 points lower on their total quality of life score at 6 weeks, but this difference had narrowed by 6 months. Morbidity led to fewer days at home by 6 months and higher costs. Extracorporeal life support patients had the lowest days at home (median: 43 days out of 183 days) and highest costs (£71,051 higher than no morbidity). Limitations Monitoring of morbidity is more complex than mortality, and hence this requires resources and clinician buy-in. Conclusions Evaluation of postoperative morbidity provides important information over and above 30-day survival and should become the focus of audit and quality improvement. Future work National audit of morbidities has been initiated. Further research is needed to understand the implications of feeding problems and renal failure and to evaluate the brief developmental assessment. Funding This project was funded by the NIHR Health Services and Delivery Research programme and will be published in full in Health Services and Delivery Research; Vol. 8, No. 30. See the NIHR Journals Library website for further project information.

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Section: Face Validitymentioning

confidence: 99%

Early morbidities following paediatric cardiac surgery: a mixed-methods study

Brown

Pagel

Ridout

et al. 2020

Health Serv Deliv Res

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“…One of the important objectives of WSPCHS is to promote collaboration across subspecialties dealing with congenital cardiac care and to establish a global coalition for congenital cardiac care. 5 In order to get broader support and representation into the process, WSPCHS organized this World Summit on Pediatric and Congenital Heart Surgery Services, Education, and Cardiac Care for Children and Adults with Congenital Heart Disease. The World Summit took place in Montreal, Canada, on June 19 to 21, 2008.…”

Section: To Define the Role Of Wspchs And The Proposed Worldmentioning

confidence: 99%

“…1,2 Multiple ongoing overlapping and collaborative initiatives strive to accomplish this objective. [3][4][5] Certainly, the mission and vision of WSPCHS is consistent with the goal of increased global access to pediatric and congenital cardiac services and expertise through patient care, research, and education, with the focus of WSPCHS being all children with cardiac disease (both congenital and acquired) as well as adults with congenital cardiac disease. The purpose of this article is to document the history of WSPCHS from its formation until now, to summarize the current status of WSPCHS, and to consider the future of WSPCHS.…”

Section: Introductionmentioning

confidence: 99%

History of the World Society for Pediatric and Congenital Heart Surgery: The First Decade

Jacobs

Tchervenkov

Stellin

et al. 2018

World J Pediatr Congenit Heart Surg

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The World Society for Pediatric and Congenital Heart Surgery (WSPCHS) is the largest professional organization in the world dedicated to pediatric and congenital heart surgery. The purpose of this article is to document the first decade of the history of WSPCHS from its formation in 2006, to summarize the current status of WSPCHS, and to consider the future of WSPCHS. The WSPCHS was incorporated in Canada on April 7, 2011, with a head office in Montreal, Canada. The vision of the WSPCHS is that every child born anywhere in the world with a congenital heart defect should have access to appropriate medical and surgical care. The mission of the WSPCHS is to promote the highest quality comprehensive cardiac care to all patients with congenital heart disease, from the fetus to the adult, regardless of the patient's economic means, with an emphasis on excellence in teaching, research, and community service.

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“…С момента исторического инаугурационного митинга в Вашингтоне в 2007 г. [7,8] все действия WSPCHS были направлены на обеспечение обмена знаниями и опытом в области хирургии ВПС. Фактически WSPCHS является в настоящее время единственной всемирной организацией, деятельность которой полностью посвящена распространению знаний и оказанию помощи пациентам с ВПС.…”

Section: миссия всемирного общества детской кардиохирургии и хирургииunclassified

World Database for Pediatric and Congenital Heart Surgery: 'Collaborative efforts in congenital cardiac surgical programs in Russia'

Louis¹,

Ilyin

Kurosawa

et al. 2018

Kardiol. serdechno-sosud. khir.

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До настоящего времени практически не существует общедоступный инструмент улучшения качества хирургии врожденных пороков сердца, позволяющий сопоставлять собственные результаты с общенациональными и международными данными. Всемирное Общество Детской Кардиохирургии и Хирургии Врожденных Пороков Сердца (ВПС), осуществляя свою миссию «обеспечивать наивысшее качество всеобъемлющей кардиохирургической помощи всем пациентам с ВПС во всем мире», разработал Базу Данных (WDPCHS), представляющую собой реальный инструмент для повышения качества работы и улучшения исходов хирургических вмешательств. Комитет Базы Данных предлагает российским кардиохирургическим центрам сотрудничество в этой области, чтобы объединить усилия в работе по достижению наилучших результатов в детской кардиохирургии.

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The World Society for Pediatric and Congenital Heart Surgery: Its Mission and History

Cited by 15 publications

References 0 publications

Early morbidities following paediatric cardiac surgery: a mixed-methods study

Early morbidities following paediatric cardiac surgery: a mixed-methods study

History of the World Society for Pediatric and Congenital Heart Surgery: The First Decade

World Database for Pediatric and Congenital Heart Surgery: 'Collaborative efforts in congenital cardiac surgical programs in Russia'

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