The views of patients with spinal cord injuries on their rehabilitation experience

Mothabeng, Joyce; Malinga, C. P.; Merwe, CJ van der; Qhomane, P. T.; Motjotji, S. N.

doi:10.4102/sajp.v63i3.139

Cited by 4 publications

(3 citation statements)

References 15 publications

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“…As, Metabing et al referred in a study to dependence-induced suffering as one of the themes extracted from the experiences of SCI patients. (15) In a qualitative study of SCI patients, they felt physical fatigue over time and were forced to become dependent (Bodil Bjornshave Noe et al (2014). (8) Also, Hosseini Golafshani et al (2013) stated that the first years of SCI is very difficult and challenging, such as the arrival of a person into a new world they had not previously imagined, and are completely dependent on others in this new world.…”

Section: Discussionmentioning

confidence: 99%

“…(16) Concerning emotional suffering, the results of Metabing et al's qualitative study suggest emotional experiences including guilt, loneliness, frustration, and futility in SCI patients. (15) In a qualitative study on men with physical and motor injuries, Ardani et al showed that participants had a sense of inferiority, feeling like a burden, and being futile due to being financially dependent on their family. (17) In confirming the physical suffering of SCI patients, Sedghi Gouy Aghaj et al write that pain is the worst and most debilitating problem among SCI patients as they may experience one or more types of pain at the same time.…”

Section: Discussionmentioning

confidence: 99%

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Living in Stillness, the Experience of Men with Spinal Cord Injury in the First Five Years after the Injury- A Content Analysis Study

Mir¹,

Rahnama²,

Naderifar³

et al. 2019

jemds

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BACKGROUND Spinal cord injury (SCI) is an experience that changes not only the path of life of the SCI person, but also the life of the spouse, parents, and children of the injured person. Considering that SCI imposes a significant burden on the healthcare system, the aim of the present study was to explain the experiences of SCI men within the first 5 years after the injury. METHODS The present qualitative study was carried out based on conventional content analysis. Data were collected through in-depth and semi-structured interviews with male SCI patients. The participants were selected using purposive sampling and data saturation was achieved after 8 interviews so that no new finding was added. The recorded interviews were transcribed verbatim. Data analysis was performed simultaneously, and content analysis was used to reduce the data, name the data, obtain analytical codes, and finally identify themes. Peer review and finding verification methods were used to ensure rigor of the data. RESULTS Analysis of the findings led to emergence of 4 themes, including going through wide range of suffering, negligence of needs and achieving regrets, relief of the suffering, adaptive paradoxical reactions and 12 sub-themes. CONCLUSIONS Investigation of the first-5-year experiences of SCI patients showed that, following injury, the life of these patients is in a kind of stillness due to a wide range of suffering, exposure to unmet needs, staying in regrets of regaining health, and reactions that rather than being constructive are sometimes destructive. Therefore, living in stillness can be considered as an extract of the experience of SCI patients in the first five years after the injury.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Living in Stillness, the Experience of Men with Spinal Cord Injury in the First Five Years after the Injury- A Content Analysis Study

Mir¹,

Rahnama²,

Naderifar³

et al. 2019

jemds

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show abstract

“…Personal psycho-emotional factors may also affect RHD and functioning after discharge. Mothabeng et al ( 2007 ) emphasised that PWSCI need to address emotions related to the injury and the effects of these emotions on social and family relationships.…”

Section: Introductionmentioning

confidence: 99%

Perceived readiness for hospital discharge: Patients with spinal cord injury versus physiotherapists

Plessis

McGaffin

Molepo

et al. 2018

S. Afr. j. physiother.

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BackgroundSuccessful discharge from rehabilitation for patients with spinal cord injury (PWSCI) relies on a smooth transition home. Assessing readiness for hospital discharge (RHD) is important in reducing secondary health conditions and improving satisfaction and function. Perception of PWSCI on RHD may be different from their physiotherapists, leading to difficulties.ObjectiveTo compare the perceptions of PWSCI and physiotherapists with regard to RHD.MethodA comparative cross-sectional study included 50 PWSCI and their physiotherapists in Tshwane. They completed the Readiness for Hospital Discharge Scale (RHDS) and their responses to the subscales were compared. Data were analysed using descriptive and inferential statistics. Relationships between variables of interest and the general perception of RHD were determined using Pearson’s chi-square test. An independent samples t-test was used to analyse the difference in RHDS scores (including subscale scores) between PWSCI and physiotherapists. Results were significant if p < 0.05.ResultsThe total score of the RHDS was not significantly different (t = 1.31, df = 98, p = 0.19). Patients had higher perceptions in coping ability and expected support subscales (t = 3.15, df = 85.97, p = 0.002 and t = 4.23, df = 98, p = 0.0001, respectively). Physiotherapists had higher perceptions in the knowledge subscale regarding what to do and not do at home (t = -2.05, df = 82.08, p = 0.044) and follow-up sessions (t = 2.625, df = 85.28, p = 0.010).ConclusionThere was no difference in perception of readiness to go home, although physiotherapists gave lower scores for emotional readiness and ability to handle demands at home and higher scores for knowledge.Clinical implicationsThe use of the RHDS in the spinal cord rehabilitation units will better align the goals of rehabilitation and discharge planning to improve overall satisfaction with care and discharge outcomes. All members of a multidisciplinary team can achieve consensus and comparisons can be made on their patient’s perceived RHD.

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Measuring Patients' Experience of Rehabilitation Services Across the Care Continuum. Part II: Key Dimensions

McMurray

McNeil

Lafortune

et al. 2016

Archives of Physical Medicine and Rehabilitation

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The views of patients with spinal cord injuries on their rehabilitation experience

Abstract: Q u a l i t a t i v e R e s e a r c h

Cited by 4 publications

References 15 publications

Living in Stillness, the Experience of Men with Spinal Cord Injury in the First Five Years after the Injury- A Content Analysis Study

Living in Stillness, the Experience of Men with Spinal Cord Injury in the First Five Years after the Injury- A Content Analysis Study

Perceived readiness for hospital discharge: Patients with spinal cord injury versus physiotherapists

Measuring Patients' Experience of Rehabilitation Services Across the Care Continuum. Part II: Key Dimensions

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