The variety of hope: findings in palliative care patients’ medical records

Wienand, Isabelle; Rakic, Milenko; Eckstein, Sandra; Escher, Monica; Pacurari, Nadia; Zwahlen, Susanne; Elger, Bernice Simone

doi:10.1515/spircare-2017-0039

Cited by 3 publications

(2 citation statements)

References 21 publications

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“…Although some peers wore face masks during the pandemic, the peer support received by them gave hope to some participants with breast cancer. This adds to the body of literature on hope being used as a coping mechanism in this context [23].…”

Section: Discussionmentioning

confidence: 81%

The Perceived Support Received by Women with Breast Cancer during the COVID-19 Pandemic: A Qualitative Study

Mardani-Hamooleh

Heidari

Pezaro

2023

CWHR

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Background:: Women with breast cancer in Iran face challenges requiring support. Yet the provision of support may have changed during the coronavirus disease 2019 (COVID-19) pandemic Objective:: The aim of the present study was to explore the perceptions of women with breast cancer about the support they received during the COVID-19 pandemic Methods:: This study was qualitative in nature. Semi-structured interviews were conducted with Iranian women with breast cancer. The interviews were transcribed verbatim and analysed via conventional content analysis. Results:: Participants (n=33) were Iranian women aged 29-58 years. All women included were married and were working in the role of a housewife. Women's perceptions of breast cancer during the COVID-19 pandemic of support were identified under two main categories; Constructive support and Lack of support. Sub-categories related to constructive support included receiving support from family, peers, and nurses. Sub-categories related to lack of support included a perceived lack of spousal and sociocultural support. Conclusion:: Anti-stigma interventions (AS interventions) are suggested to increase both spousal and sociocultural support in this context. Further studies may usefully be conducted with the participation of Iranian women's family members in order to gain a deeper understanding of the support received and required by Iranian women with breast cancer during the COVID-19 pandemic and beyond.

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Section: Discussionmentioning

confidence: 81%

The Perceived Support Received by Women with Breast Cancer during the COVID-19 Pandemic: A Qualitative Study

Mardani-Hamooleh

Heidari

Pezaro

2023

CWHR

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“… 3 Hope in terminally ill patients cannot be considered merely as a coping strategy, nor dismissed simply as wishful thinking. 4 Studies investigating the antecedents of hope have shown that inspiring relationships play a significant role in generating hope and maintaining it, despite adverse circumstances. 3 A critical aspect emerging in all the studies on hope is its connection with truth: on the one hand, healthcare professionals understand the need to sustain hope for their patients; on the other hand, they know they have an obligation to tell them the truth about their condition.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of Hope Among Bereaved Caregivers of Cancer Patients Who Received Early Palliative Care: A Content and Lexicographic Analysis

et al. 2022

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Background Oncologists’ fear of taking away hope from patients when proposing early palliative care (EPC) is a barrier to the implementation of this model. This study explores hope perceptions among bereaved caregivers of onco-hematologic patients who received EPC. Materials and Methods Open-ended questionnaires were administered to 36 primary caregivers of patients who received EPC (26 solid and 10 hematologic cancer patients; mean age: 51.4 years, range age: 20-74), at 2 cancer centers, 2 months to 3 years after a patient death. Definitions of hope in the caregivers’ narratives were analyzed through a directed approach to content analysis. Results were complemented with automated lexicographic analysis. Results Caregivers perceived hope mainly as resilience and as expectations based on what they were told about the patients’ clinical conditions. Their hope was bolstered by trusting relationships with the healthcare teams. EPC interventions were recalled as the major support for hope, both during the illness and after the death of the patient. The automated quantitative lexical analysis provided deeper insights into the links between hope, truth, and trust. Conclusions Our findings suggest that telling the truth about an incurable onco-hematologic disease and beginning EPC might be the combination of factors triggering hope in the setting of incurable cancer.

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The perceived support received by women with breast cancer during the COVID-19 pandemic: A qualitative study

Heidari

Mardani-Hamooleh

Pezaro

2022

Preprint

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Background Women with breast cancer in Iran face challenges for which they require support. Yet the provision of support may have changed during the COVID-19 pandemic. Thus, the aim of the present study was to explore the perceptions of Iranian women with breast cancer in relation to the support they received during the COVID-19 pandemic.Methods This study was qualitative in nature. Semi-structured interviews were conducted with Iranian women with breast cancer. The interviews were transcribed verbatim and analysed via conventional content analysis. Results Participants (n=33) were Iranian women aged 29-58 years. All women included were married and were working in the role of being a housewife. Women's perceptions of breast cancer during the COVID-19 pandemic of support were identified under two main categories; Constructive support and Lack of support. Sub-categories related to constructive support included receiving support from family, peers, and nurses. Sub-categories related to lack of support included a perceived lack of spousal and sociocultural support.Conclusion Anti-stigma interventions are suggested to increase both spousal and sociocultural support in this context. Further studies may usefully be conducted with the participation of Iranian women's family members in order to gain a deeper understanding of the support received and required by Iranian women with breast cancer during the COVID-19 pandemic and beyond.

show abstract

The variety of hope: findings in palliative care patients’ medical records

Cited by 3 publications

References 21 publications

The Perceived Support Received by Women with Breast Cancer during the COVID-19 Pandemic: A Qualitative Study

The Perceived Support Received by Women with Breast Cancer during the COVID-19 Pandemic: A Qualitative Study

Perceptions of Hope Among Bereaved Caregivers of Cancer Patients Who Received Early Palliative Care: A Content and Lexicographic Analysis

The perceived support received by women with breast cancer during the COVID-19 pandemic: A qualitative study

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