The value of frameworks as knowledge translation mechanisms to guide community participation practice in Ontario CHCs

Montesanti, Stephanie; Abelson, Julia; Lavis, John N.; Dunn, James R.

doi:10.1016/j.socscimed.2015.08.024

Cited by 11 publications

(15 citation statements)

References 35 publications

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“…We know from Maslow's hierarchy of needs that when the lower level or foundational needs are not met, it is harder for individuals to think about higher level needs such as Influence or Self‐fulfillment . Although our findings may reflect the population of usual advisors, there will be a time and place when seeking out the voices of hard to reach and vulnerable individuals will require deliberate strategies to support their inclusion and should be encouraged …”

Section: Discussionmentioning

confidence: 82%

“…14,15 Although our findings may reflect the population of usual advisors, there will be a time and place when seeking out the voices of hard to reach and vulnerable individuals will require deliberate strategies to support their inclusion and should be encouraged. 97 Given the current interest in patient engagement coupled with the promising results of this study, more work needs to be done. Our results indicate that 33% of our respondents come from a health care background.…”

Section: Discussionmentioning

confidence: 99%

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Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement

McCarron

Noseworthy

Moffat

et al. 2019

Health Expectations

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Background Large‐scale transformation depends on effective engagement of diverse stakeholders. With the evolution of the role of the ‘patient partner’ in health‐care decision making, understanding the motivations of these individuals is essential to the success of engagement initiatives. This study reports on motivational factors associated with patient engagement in health care. Methods Patient co‐investigators and a researcher co‐designed and conducted this study. A survey was administered to patients and family members. Key informant interviews and previous research informed the development of the survey tool. The survey data were analysed using exploratory factor analysis to identify the underlying dimensions in the data. Cronbach's alpha was used to determine reliability. Results A total of 1449 individuals participated in the survey. Of these, 543 completed and 427 partially completed the survey (67% complete rate). The mean age of the respondents was 54 years. The majority of participants were female, well‐educated, retired, married and lived in an urban centre. Seven motivational factors explained 65% of the total variance. Analysis of internal consistency revealed acceptable reliability for all items. The seven motivations were as follows: Self‐fulfillment, Improving Healthcare, Compensation, Influence, Learning New Things, Conditional and Perks. Conclusion The results of this research describe a sample of patient and family members currently engaged with health systems. We identified seven motivational factors underlying their engagement. A deeper knowledge of volunteer motivations will not only create meaningful engagement opportunities for patients, but also enable health organizations to gain from the experience of these individuals, thereby enhancing quality and sustainability of patient engagement programmes.

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Section: Discussionmentioning

confidence: 82%

Section: Discussionmentioning

confidence: 99%

Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement

McCarron

Noseworthy

Moffat

et al. 2019

Health Expectations

View full text Add to dashboard Cite

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“…Knowledge translation is influenced by the credibility of the research, which is impacted by the people involved, previous work in the field by the researchers, trusted local partners and the use of the results by knowledge brokers 4. Knowledge translation efforts tend to start from the point where research findings are ready for uptake and use with policy makers as their primary audience 5–7. This tends to neglect opportunities to ‘plant seeds’ for future uptake by placing emphasis at the design stage of research.…”

Section: Introductionmentioning

confidence: 99%

Moving from formative research to co-creation of interventions: insights from a community health system project in Mozambique, Nepal and Peru

et al. 2018

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Different methodological approaches for implementation research in global health focusing on how interventions are developed, implemented and evaluated are needed. In this paper, we detail the approach developed and implemented in the COmmunity HEalth System InnovatiON (COHESION) Project, a global health project aimed at strengthening health systems in Mozambique, Nepal and Peru. This project developed innovative formative research at policy, health system and community levels to gain a comprehensive understanding of the barriers, enablers, needs and lessons for the management of chronic disease using non-communicable and neglected tropical diseases as tracer conditions. After formative research, COHESION adopted a co-creation approach in the planning of interventions. The approach included two interactions with each type of stakeholder at policy, health system and community level in each country which aimed to develop interventions to improve the delivery of care of the tracer conditions. Diverse tools and methods were used in order to prioritise interventions based on support, resources and impact. Additionally, a COHESION score that assessed feasibility, sustainability and scaling up was used to select three potential interventions. Next steps for the COHESION Project are to further detail and develop the interventions propositioned through this process. Besides providing some useful tools and methods, this work also highlights the challenges and lessons learned from such an approach.

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“…The PIF:HPG study will engage with the grandparent generation to identify, and initiate solutions to address, what matters to older Pacific people in relation to social participation and healthy ageing. For a community research initiative to be successful over the long term, the issues to be addressed must be identified by the community and be viewed as a priority that compels action (Hogan et al, 2014;Montesanti, Abelson, Lavis, & Dunn, 2015) One of the most important features of PAR is that it enables communities and researchers to work together to develop an understanding of issues and to take actions that will support culturally appropriate and effective strategies (Harrison & Graham, 2012). PAR work has been successfully used to partner with marginalised and indigenous groups and offers a way to make the research meaningful for a community (Kemmis & McTaggart, 2005), being based on an action cycle that assists in improving processes for addressing issues from the communities' perspective (McIntyre, 2008).…”

Section: Methodsmentioning

confidence: 99%

Healthy Pacific grandparents: a participatory action research project exploring ageing well among Pacific people in New Zealand

et al. 2017

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The New Zealand older adult population (aged 65+ years) is growing at a faster rate than the younger population, with many of those in the later years living much longer. The proportion of older Pacific people is forecast to reach 4.1% of the country's total population within the next two decades, highlighting the importance of research focussed on ageing Pacific populations. Objective: This paper sets out the research protocol and methods for The Pacific Islands Families: Healthy Pacific Grandparents' Study which aims to investigate older Pacific peoples' viewpoints on ageing to identify specific cultural values, perspectives and understandings as the Pacific population in New Zealand ages. Discussions will focus upon key themes including: (1) Engagement with family, the community, and health service provision; (2) Support within their day-today lives; (3) Intergenerational living patterns and relationships; and (4) physical and psychosocial barriers to meaningful participation. Design: The study will recruit and utilise participants from a grandparent cohort that is nested within the families of the longitudinal Pacific Islands Families Study. This study uses a Participatory Action Research approach to position the participants in a leadership role where they are co-researchers involved in both the research and the implementation of recommendations. Implications: Findings will help determine whether current social and health system environments meet the needs of older Pacific people, and devise and implement solutions to deal with identified deficits. Utilising a transformative research process will bring older Pacific people together to define for themselves their needs and their experiences, identify any areas of shortcoming, and support the implementation of solutions through strategic and informed actions.

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The value of frameworks as knowledge translation mechanisms to guide community participation practice in Ontario CHCs

Cited by 11 publications

References 35 publications

Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement

Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement

Moving from formative research to co-creation of interventions: insights from a community health system project in Mozambique, Nepal and Peru

Healthy Pacific grandparents: a participatory action research project exploring ageing well among Pacific people in New Zealand

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