The UWIMONA Pediatric Epileptic Seizure Screening Questionnaire was equivalent to clinical assessment in identifying children with epilepsy

Melbourne-Chambers, R; Gordon‐Strachan, Georgiana; Tapper, Judy; Tulloch‐Reid, Marshall K.

doi:10.1016/j.jclinepi.2014.10.014

Cited by 6 publications

(2 citation statements)

References 10 publications

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“…None of the studies included in this study or the previously performed systematic review used a questionnaire for specific symptoms and signs of CMN patients 4 . Questionnaires to measure developmental delay or epilepsy are available for clinicians and for patients 35 , 36 , 37 , 38 . Questionnaires to measure general neurology disorders are available and are frequently developed for patients in low- and mid-income countries 39 , 40 , 41 .…”

Section: Discussionmentioning

confidence: 99%

Measurement instruments for the core outcome set of congenital melanocytic naevi and an assessment of the measurement properties according to COSMIN: a systematic review

et al. 2023

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Section: Discussionmentioning

confidence: 99%

Measurement instruments for the core outcome set of congenital melanocytic naevi and an assessment of the measurement properties according to COSMIN: a systematic review

et al. 2023

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“…Multiple educational activities and training programmes have been developed in the region with local leaders working together with national and international societies, including the ILAE (International League Against Epilepsy), ICNA (International Child Neurology Associa-tion), CNS (Child Neurology Society), Jamaican League against Epilepsy and Epilepsy Society of the Caribbean. Advocacy and engagement of local government has been an important factor in the success of such programmes, with the focus of these joint efforts aimed at improving diagnosis, and reducing treatment gaps and stigma in patients with epilepsy [22] [23].…”

Section: Collaborative Efforts and Engagement Of Local Leadersmentioning

confidence: 99%

Pediatric neurology and epilepsy care in low-middle income countries: Importance of collaborative efforts and active involvement of local leaders.

Vidaurre

Spiciarich

Beal

et al. 2019

JICNA

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The lack of access to proper neurological care is a significant problem in low- to middle-income countries.The development of local training programmes, development of national programmes in collaboration with medical colleges and creation of online educational material are examples of various initiatives currently being implemented across the world.Collaborative efforts between medical societies and these local groups will be vital to the success of these initiatives, and for the improvement of access to paediatric neurology care in these underserved areas.

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Preliminary development and validation of the Indonesian Pediatric Epilepsy Questionnaire (INA‐PEPSI) to determine epilepsy and distinguish focal and generalized epilepsy in infants and children with unprovoked seizure in low‐resource settings

Handryastuti,

Tiansyah,

Mangunatmadja

et al. 2024

Epilepsia Open

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ObjectiveTo outline the preliminary development and validation of a questionnaire for diagnosing epilepsy and distinguishing focal and generalized epilepsy among infants and children in Indonesia, where electroencephalography and pediatric neurologists are generally not available.MethodsA 10‐question questionnaire comprising of 43 items was developed through literature review and expert panel discussions. Then, the questionnaire was administered by pediatricians to 75 children aged 1 month to 18 years old presenting with >1 episode of unprovoked seizures at an interval of >24 h. Subsequently, the questionnaire was assessed for content validity with item‐level and scale‐level content validity indices and ratio, construct validity with item‐total correlation tests, criterion validity with diagnostic parameter assessments, and inter‐rater reliability using Cohen's kappa (κ) and internal consistency with Cronbach's alpha (α) coefficient.ResultsThe questionnaire exhibited favorable internal validity and reliability in diagnosing epilepsy and distinguishing focal and generalized epilepsy, with excellent content (both indices and ratio at 1) and construct validity (rcount > rtable at p < 0.001), inter‐rater reliability (κ = 0.86 and κ = 0.84), and internal consistency (α = 0.634 and α = 0.806). The questionnaire had a sensitivity and specificity of 96.4% (95%CI 89.1–99.5%) and 95.0% (79.5–99.6%) (area under the curve [AUC] 0.946 [0.900–0.992, p < 0.001]) in diagnosing epilepsy and 80.0% (57.4–95.7%) and 97.4% (89.7–99.2%) (AUC 0.889 [0.783–0.995, p < 0.001]) in distinguishing focal and generalized epilepsy, with a misdiagnosis rate of 4.0%.SignificanceThe questionnaire shows promising potential in diagnosing epilepsy and distinguishing focal and generalized epilepsy. Further external validation studies in larger and more diverse populations are required to confirm our findings.Plain Language SummaryThe diagnosis of epilepsy in children is challenging, particularly in resource‐limited settings such as Indonesia, where advanced diagnostic tests and pediatric neurologists are scarce. The Indonesian Pediatric Epilepsy Questionnaire (INA‐PEPSI) is designed to address these limitations by enabling healthcare professionals in Indonesia to diagnose epilepsy and classify its types without relying on advanced diagnostic tools. Although the questionnaire is still in the early stages of development and validation, this study demonstrates that the questionnaire exhibits good overall diagnostic performance in diagnosing epilepsy and distinguishing epilepsy types among Indonesian children.

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The UWIMONA Pediatric Epileptic Seizure Screening Questionnaire was equivalent to clinical assessment in identifying children with epilepsy

Cited by 6 publications

References 10 publications

Measurement instruments for the core outcome set of congenital melanocytic naevi and an assessment of the measurement properties according to COSMIN: a systematic review

Measurement instruments for the core outcome set of congenital melanocytic naevi and an assessment of the measurement properties according to COSMIN: a systematic review

Pediatric neurology and epilepsy care in low-middle income countries: Importance of collaborative efforts and active involvement of local leaders.

Preliminary development and validation of the Indonesian Pediatric Epilepsy Questionnaire (INA‐PEPSI) to determine epilepsy and distinguish focal and generalized epilepsy in infants and children with unprovoked seizure in low‐resource settings

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