The utilization of allied and community health services by cancer patients living in regional and remote geographical areas in Australia

Parikh, Darshit Rajeshkumar; Diaz, Abbey; Bernardes, Christina M; Ieso, Paolo B De; Thachil, Thanuja; Kar, Giam; Stevens, Matthew; Garvey, Gail

doi:10.1007/s00520-020-05839-6

Cited by 11 publications

(10 citation statements)

References 19 publications

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“…Individual levels of situational involvement influenced the intensity of engagement expressed. As demonstrated elsewhere (Nicol et al , 2020; Parikh et al , 2020), user characteristics may shape the engagement process, which is an important consideration for practitioners. It suggests that a one-size-fits-all approach does not apply and emphasises the need for a person-centered approach to app development (Yardley et al , 2015).…”

Section: Discussionmentioning

confidence: 94%

“…Perceived ease of use is continually cited as a key preference in consumer evaluations of health apps (Ball et al , 2014; López et al , 2017; Solbrig et al , 2017), although this may vary depending on individual user perceptions (Brodie et al , 2013). Consequently, the propensity for disengagement may be influenced by individual characteristics and personal resources, such as health literacy levels (Parikh et al , 2020). This may be especially important for those from a lower socioeconomic background who may be less likely to possess sufficient nutrition-related resources (Adams et al , 2015; Turrell and Kavanagh, 2006).…”

Section: Discussionmentioning

confidence: 99%

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Exploring engagement with health apps: the emerging importance of situational involvement and individual characteristics

Flaherty

McCarthy

Collins

et al. 2021

EJM

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Purpose Health apps offer a potential approach to support healthier food behaviours but a lack of sufficient engagement may limit effectiveness. This study aims to use a user engagement theoretical lens to examine the factors that influence app engagement over time and may prompt disengagement. Design/methodology/approach A phenomenological exploration of the lived experience was used. Women from a lower socioeconomic background (based on the occupation and employment status of the household’s primary income earner) were randomly assigned to use one of two apps for a minimum of eight weeks. Multiple data collection methods, including accompanied shops, researcher observations, interviews, participant reflective accounts and questionnaires, were used at different time-points to examine engagement. Theoretical thematic analysis was conducted to explore the engagement experience and relevant social, personal and environmental influences. Findings Healthy food involvement appears to drive app engagement. Changes in situational involvement may contribute to fluctuation in engagement intensity over time as the saliency of personal goals change. Negatively valenced engagement dimensions may contribute to the overall expression of engagement. A lack of congruency with personal goals or an imbalance between perceived personal investment and value was expressed as the primary reasons for disengagement. Research limitations/implications Situational involvement may act as a trigger of different engagement phases. There is a need to better distinguish between enduring and situational involvement in engagement research. Practical implications Individual characteristics may shape engagement and propensity for disengagement, which highlights the practical importance of incorporating tailored features into app design. Originality/value Findings broaden the current conceptualisation of engagement within the digital space and prompt a reconsideration of the role of situational involvement and negatively valenced dimensions throughout the engagement process.

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Section: Discussionmentioning

confidence: 94%

Section: Discussionmentioning

confidence: 99%

Exploring engagement with health apps: the emerging importance of situational involvement and individual characteristics

Flaherty

McCarthy

Collins

et al. 2021

EJM

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“…These findings may appear counter-intuitive, given cancer patients in these areas face additional barriers to healthcare access, including accessing cancer treatments, associated travel and accommodation difficulties, and financial burdens [ 26 , 27 ]. Indeed previous work using a population of Aboriginal and non-Aboriginal NT cancer patients published by our team, that overlaps with the current study sample, suggests variable access to community and health services based on demographic variables [ 28 ], with barriers to accessing cancer treatment services including complicated and delayed treatment commencement, and challenges related to transport and accommodation [ 29 ]. The higher QoL scores reported here, regardless of these challenges, may reflect the presence of other drivers of QoL, such as connections to land, language, and culture.…”

Section: Discussionmentioning

confidence: 93%

“…The current study aimed to explore potential drivers of QoL for Aboriginal and non-Aboriginal cancer patients living in the geographically dispersed Northern Territory of Australia, to inform the development of larger, statistically powered studies. Other studies have reported on the psychosocial aspects of cancer care for cancer patients in the Northern Territory [ 14 , 28 , 29 ]; however, this is the first study to report on the QoL of this specific patient population. A limitation of this study design that needs to be considered includes the fact that only patients who were attending a single cancer service were invited to participate in this study.…”

Section: Discussionmentioning

confidence: 96%

Quality of Life in the First Year of Cancer Diagnosis among Aboriginal and Non-Aboriginal People Living in Regional and Remote Areas of Australia

Elder‐Robinson

Diaz

Howard

et al. 2021

IJERPH

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Little is known of the quality of life (QoL) of cancer patients in the Northern Territory (NT) of Australia, where healthcare delivery is geographically challenged. This exploratory study describes QoL among Aboriginal and non-Aboriginal cancer patients in the NT, in the first year of diagnosis. Participants were recruited from the only cancer care centre in the NT and completed the Assessment of Quality-of-Life questionnaire (AQoL-4D). The results were descriptively analysed. The participants’ (n = 63; mean age 58.8 years) mean AQoL utility score was 0.72 (SD 0.26); patients scored lowest in the relationships and mental health dimensions of the questionnaire (mean 0.89, SD 0.19, and 0.89, SD 0.17, respectively). Participants living in remote and very remote areas (46%) reported higher QoL scores, compared with participants in the outer regional capital city of the NT in the overall (mean 0.76, SD 0.22 and 0.78, SD 0.20 vs. 0.67, SD 0.29, respectively), and mental health dimensions (mean 0.92, SD 0.09 and mean 0.94, SD 0.06 vs. 0.85, SD 0.22, respectively). The findings were suggestive of clinically meaningful differences across socioeconomic groups, cancer and treatment types, and comorbidity status. Mean QoL scores were consistent with previous reports in other Australian cancer cohorts. The findings suggest a need to support cancer patients’ mental health and relationships during the diagnosis and treatment phase of their cancer journey.

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“…In Australia, the undertraining, shortage, or absence of Indigenous health workers in services coalesces preferences for non-medical community support over Allied health services (Parikh et al 2021). A concomitant barrier is underinvestment in relationship-building with community Elders prior to service delivery.…”

Section: Cultural Securitymentioning

confidence: 99%

Challenges of Delivering Regional and Remote Human Services and Supports

Gilchrist

Perks

2021

The Palgrave Encyclopedia of Urban and Regional Futures

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The inherent difficulties in delivering human services and supports to remote areas falling outside of metropolitan districts generally stem from physical isolation related to the absence of major transport, communications, and other infrastructure and restrictions in relation to the allocation of scarce resources within a political framework where value for money is often considered a priority. That said, there is no universal criteria nor measurement for regionality or remoteness since what is considered regional or remote changes depending on the social, geographical and cultural context, as well as the nature of the service or support required. Human services and supports are often programs delivered consistent with social welfare objectives and can include the provision of health care and supports in the form of primary or allied services. These services can include such supports as those provided for people with disability and the elderly, in addition to employment and education programs.

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The utilization of allied and community health services by cancer patients living in regional and remote geographical areas in Australia

Cited by 11 publications

References 19 publications

Exploring engagement with health apps: the emerging importance of situational involvement and individual characteristics

Exploring engagement with health apps: the emerging importance of situational involvement and individual characteristics

Quality of Life in the First Year of Cancer Diagnosis among Aboriginal and Non-Aboriginal People Living in Regional and Remote Areas of Australia

Challenges of Delivering Regional and Remote Human Services and Supports

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