The use of digital storytelling of patients’ stories as an approach to translating knowledge: a scoping review

Abstract

Background A growing interest has centered on digital storytelling in health research, described as a multi-media presentation of a story using technology. The use of digital storytelling in knowledge translation (KT) is emerging as technology advances in healthcare to address the challenging tasks of disseminating and transferring knowledge to key stakeholders. We conducted a scoping review of the literature available on the use of patient digital storytelling as a tool in KT interventions. Methods We followed by Arksey and O’Malley (Int J Soc Res Methodol 8(1):19–32, 2005), and Levac et al. (Implement Sci 5(1):69, 2010) recommended steps for scoping reviews. Search strategies were conducted for electronic databases (Medline, CINAHL, Web of Science, ProQuest dissertations and theses global, Clinicaltrials.gov and Psychinfo). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR) was used to report the review process. Results Of 4656 citations retrieved, 114 full texts were reviewed, and twenty-one articles included in the review. Included studies were from nine countries and focused on an array of physical and mental health conditions. A broad range of interpretations of digital storytelling and a variety of KT interventions were identified. Digital storytelling was predominately defined as a story in multi-media form, presented as a video, for selective or public viewing and used as educational material for healthcare professionals, patients and families. Conclusion Using digital storytelling as a tool in KT interventions can contribute to shared decision-making in healthcare and increase awareness in patients’ health related experiences. Concerns centered on the accuracy and reliability of some of the information available online and the impact of digital storytelling on knowledge action and implementation.

Personalization and localization as key user expectations of digital health intervention for women before, during and after pregnancy: A qualitative study

“…By leveraging digital storytelling as a strategy for knowledge transition and support, DHIs have the potential to enhance accessibility, education and community building for the targeted population. 52 Through understanding sources of behavior and what needs to change, we are able to identify key intervention functions, based on the Behavior Change Wheel, 27,53 that should be considered when developing DHIs for women pre-conception, pregnancy and post-birth (see Table 4). Education, training, needs satisfaction and modelling are relevant intervention functions that can be useful to target COM-B components identi ed as relevant for an effective DHI in this population, and guide further development and ne-tuning of behavior change techniques (e.g., should training be geared towards behavior substitution, habit reversal or habit formation?).…”

Changing Landscape and Future of Medical Affairs Post COVID-19 Pandemic Era

“…An increased observance of digital transformations in medical and health education storytelling such as the presentation of medical data in the form of fascinating infographics and animated figures make data even more exciting and also augment shared decision making. 20 Digital storytelling allows better health decisions by knowledge sharing and critical thinking for available evidence-based data with patients, HPCs, caregivers, and policy makers. 20,21 Recently plain language summaries (PLS) have gained interest and are becoming an established part of company-sponsored research publications.…”

“…20 Digital storytelling allows better health decisions by knowledge sharing and critical thinking for available evidence-based data with patients, HPCs, caregivers, and policy makers. 20,21 Recently plain language summaries (PLS) have gained interest and are becoming an established part of company-sponsored research publications. PLS are short abstracts of peer-reviewed medical publications but written in lay-man language so as to be easily understood by patients and caregivers.…”

Digital Transformation in Medical Affairs Sparked by the Pandemic: Insights and Learnings from COVID-19 Era and Beyond

“…Since the pandemic, traditional medical publications have increasingly experienced new life by embracing digital innovation, with publication enhancements such as animated figures, e-posters, and author videos. Digital transformations in medical and health education storytelling have enabled the visualisation of presentation in captivating infographic formats and animated illustrations make data even more interesting and also enhance shared decision making [ 64 , 65 ]. Digital storytelling enables knowledge sharing and critical thinking for available evidence with patients, caregivers, HPCs and policy makers, enabling them to be more engaged while making a health decision [ 65 , 66 ].…”