The usability of Jordan stillbirths and neonatal deaths surveillance (JSANDS) system: results of focus group discussions

Khader, Yousef; Shattnawi, Khulood Kayed; Al-Sheyab, Nihaya; Alyahya, Mohammad S.; Batieha, Anwar

doi:10.1186/s13690-021-00551-1

Cited by 7 publications

(15 citation statements)

References 17 publications

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“…Currently, in Jordan's HIS, the evaluation of various types of data shows that birth registrations are almost complete (99%), while death registrations represent 75%. According to Khader, Alyahya et al [8], some neonatal deaths and stillbirths are not fully registered due to a malfunctioning reporting system that places the responsibility of registration on families [9].…”

Section: Resultsmentioning

confidence: 99%

Does the health information system in Jordan support equity to improve health outcomes? Assessment and recommendations

Alnawafleh,

Rashad

2024

Arch Public Health

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Background This study is based on extensive evidence-based assessments. The aim of this paper is to evaluate how well Jordan’s health information system (HIS) incorporates social determinants of health inequity (SDHI) and to propose suggestions for future actions. Methods An extensive evidence-based assessment was performed. A meta-synthesis of the inclusion of the SDHI in the HIS in Jordan was conducted. After searching and shortlisting, 23 papers were analyzed using Atlas.ti 9.0 employing thematic analysis technique. Results The HIS in Jordan is quite comprehensive, comprising numerous data sources, various types of information, and data from multiple producers and managers. Nevertheless, the HIS confronts several obstacles and fails to ensure the timely and secure publication of available data. The assessment of the inclusion of the SDHI in the HIS showed that the HIS allows for the measurement of progress in relation to social policies and actions but has a very limited database for supporting the inclusion of health inequity measures. One reason for the difficulty in identifying fairness is that certain crucial information necessary for this task cannot be obtained through the available institutional HIS or population survey tools. Additionally, relevant modules for fairness may be missing from population surveys, possibly due to a failure to fully utilize the capabilities of the institutional HIS. Conclusion There are opportunities to make use of Jordan’s dedication to fairness and its already established strong HIS. Some social determinants of health exist in the HIS, but much more data, information, and effort are needed to integrate the SDHI into the Jordanian HIS. A proposal from a regional initiative has put forward a comprehensive set of indicators for integrating SDHI into HIS, which could aid in achieving health equity in Jordan.

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Section: Resultsmentioning

confidence: 99%

Does the health information system in Jordan support equity to improve health outcomes? Assessment and recommendations

Alnawafleh,

Rashad

2024

Arch Public Health

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“…This study showed that the users of the JSANDS found the system to be useful, functional, and high-performing. In a previous study on the usability of JSANDS, health professionals rated it positively as indicated by the high usability ratings, satisfaction with the system, and ratings of the helpfulness of the system in making important decisions with quality of care [12]. JSANDS was rated by the system users as useful because it provides estimates of the PNN mortality rate and the causes of deaths overall according to other social and clinical determinants.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The Jordan Stillbirth and Neonatal Mortality Surveillance (JSANDS) System: Evaluation Study

Khader¹,

Alyahya²,

El‐Khatib³

et al. 2021

J Med Internet Res

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Background The Jordan Stillbirth and Neonatal Mortality Surveillance (JSANDS) is an electronic surveillance system that automatically transfers the data on births, stillbirths, and neonatal deaths to the concerned authorities in the Ministry of Health. JSANDS was implemented and tested in 5 maternity hospitals during the period spanning May 2019 through December 2020. Objective This study aimed to evaluate the usefulness and performance of JSANDS to register births, stillbirths, and neonatal deaths, and determine their causes. Specifically, this study examined the JSANDS attributes of acceptability, simplicity, flexibility, stability, representativeness, sustainability, penetration, data quality, sensitivity, and adoption. Methods An evaluation study was conducted after 18 months of the JSANDS implementation using the Updated Guidelines for Evaluating Public Health Surveillance Systems. The evaluation focused on how well the system operated to meet its purpose and objectives. The indicators assessing the system attributes were scored on a Likert scale. Each indicator and overall attribute percentage score was represented as score rank and interpreted as excellent (score ≥80%), good (score ≥60 and <80%), average (score ≥40 and <60%), and poor (score <40%). Results A total of 270 health care professionals participated in this study and evaluated the system performance. The system users rated the usefulness of JSANDS as excellent (percentage score=85.6%). The overall acceptability (percentage score=82.3%), flexibility (percentage score=80.2%), stability (percentage score=80.0%), and representativeness (percentage score=86.6%) were also rated excellent. The overall simplicity was scored good (percentage score=75.4%). All participants were trained on JSANDS and used it in the past 12 months. Of the 270 respondents, 219 (86.2%) reported that they intend to continue using the JSANDS system to register neonatal deaths and stillbirths in the future. All variables in JSANDS had complete data with no missing values. Conclusions The performance of JSANDS in registering all stillbirths and neonatal deaths as well as their causes was excellent. Almost all attributes and indicators of JSANDS functionality were rated excellent. JSANDS can be scaled up to cover all maternity hospitals in Jordan. The potential for scaling up the system is very high for many reasons, including its usefulness, simplified stillbirth and neonatal death review tools, and ease of the reporting process.

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“…The five hospitals, including one university teaching hospital, three public hospitals, and one private hospital, were selected for pilot testing of the JSANDS. The criteria for the selection of hospitals and JSANDS usability and functionality were described in previous studies [17,19,20]. The sociodemographic and obstetric characteristics of Jordanian and Syrian women and their birth outcomes were retrieved from JSANDS and compared.…”

Section: Methodsmentioning

confidence: 99%

“…The Jordan Stillbirths and Neonatal Deaths Surveillance System (JSANDS) is an electronically secure surveillance system to register and disseminate reliable, comprehensive, individual-level data on stillbirths and neonatal deaths, the causes and the risk factors most commonly associated with perinatal mortality in Jordan [16][17][18]. The system record events for women prospectively after giving their births.…”

Section: Introductionmentioning

confidence: 99%

Disparities in Obstetric, Neonatal, and Birth Outcomes Among Syrian Women Refugees and Jordanian Women

Al-Shatanawi,

Khader,

Abdel Razeq

et al. 2023

Int J Public Health

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Objectives: To compare obstetric and neonatal characteristics and birth outcomes between Syrian refugees and native women in Jordan.Methods: We used the Jordan Stillbirths and Neonatal Deaths Surveillance System to extract sociodemographic and obstetric characteristics of the mothers and birth characteristics of newborns. Multivariate analysis was used to compare the characteristics of 26,139 Jordanian women (27,468 births) and 3,453 Syrian women refugees (3,638 births) who gave birth in five referral hospitals (May 2019 and December 2020).Results: The proportions of low birthweight (14.1% vs. 11.8%, p < 0.001) and small for gestational age (12.0% vs. 10.0%, p < 0.001) newborns were significantly higher for those born to Syrian women compared to those born to Jordanian women. The stillbirth rate (15.1 vs. 9.9 per 1,000 births, p = 0.003), the neonatal death rate (21.2 vs. 13.2 per 1,000 live births, p < 0.001), and perinatal death rate (21.2 vs. 13.2 per 1,000 births, p < 0.001) were significantly higher for the Syrian births. After adjusting for sociodemographic and obstetric characteristics of women, only perinatal death was statistically significantly higher among Syrian babies compared to Jordanian babies (OR = 1.3, 95% CI: 1.1–1.7, p = 0.035).Conclusion: Syrian refugee mothers had a significantly higher risk of adverse obstetric and neonatal outcomes including higher rate of perinatal death compared to Jordanian women.

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The usability of Jordan stillbirths and neonatal deaths surveillance (JSANDS) system: results of focus group discussions

Cited by 7 publications

References 17 publications

Does the health information system in Jordan support equity to improve health outcomes? Assessment and recommendations

Does the health information system in Jordan support equity to improve health outcomes? Assessment and recommendations

The Jordan Stillbirth and Neonatal Mortality Surveillance (JSANDS) System: Evaluation Study

Disparities in Obstetric, Neonatal, and Birth Outcomes Among Syrian Women Refugees and Jordanian Women

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