The urge to communicate in severe dementia

Ellis, Myddryn

doi:10.1016/j.bandl.2004.06.028

Cited by 10 publications

(11 citation statements)

References 0 publications

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“…1 Communication problems such as difficulties with finding words, naming, comprehension, and verbal fluency are common in dementia and are known to be associated with challenging behavior 2,3 and social withdrawal of the person with dementia. 4,5 Additionally, both communication problems and challenging behavior are major risk factors for caregiver burden and distress 3,[6][7][8] and may result in decreased quality of the relationship. [8][9][10] Teaching caregivers about the impact of dementia on communication and about adequate communication strategies enables them to support communication with the person with dementia.…”

Section: Introductionmentioning

confidence: 99%

Using Video Feedback at Home in Dementia Care: A Feasibility Study

Gerritsen

Koopmans

Walravens

et al. 2018

Am J Alzheimers Dis Other Demen

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Video feedback at home (VFH) aims to improve the well-being of informal caregivers and persons with dementia by training the caregiver to communicate successfully. This feasibility study had 2 aims: (1) to investigate possible effects regarding VFH, caregiver self-efficacy and the burden experienced, and the frequency of challenging behavior in persons with dementia, and (2) to perform a process evaluation of barriers and facilitators regarding the use of VFH. The respondents were caregivers of home-dwelling persons with dementia participating in VHF (N = 10), a group of caregivers who declined participating in VFH (N = 18), stakeholders (N = 6), and field experts (N = 55). The assessments performed were Positive and Negative Affect Scales, Cohen-Mansfield Agitation Inventory, Sense of Competence Scale, semistructured interviews, and questionnaires. Results demonstrated that caregivers were satisfied with VFH and that various (sub)scores on questionnaires improved. Caregivers mentioned a reluctance toward being filmed and both caregivers and referrers were unfamiliar with VFH. Recommendations have been made for health-care professionals and researchers to overcome these barriers.

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Section: Introductionmentioning

confidence: 99%

Using Video Feedback at Home in Dementia Care: A Feasibility Study

Gerritsen

Koopmans

Walravens

et al. 2018

Am J Alzheimers Dis Other Demen

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“…3 In the severe stages of the disease, verbal communication loses and nonverbal communication gains significance. 16 As memantine is indicated for treatment in the severe stages of dementia, it is questionable, whether pure language measures (without additional nonverbal measures) are adequate for memantine clinical trials.…”

Section: Language Versus Functional Communicationmentioning

confidence: 99%

“…[12][13][14][15] This is apparently a reason people with AD feel socially excluded, and tends to result in progressive social withdrawal and apathy. 12,16 As quality of life of people with dementia is strongly influenced by social relationships, treatments that effectively enhance communication are of particular importance. 12,17 Furthermore, communication allows us to express needs and emotions verbally and nonverbally.…”

Section: Relevance Of Functional Communication For Ad Patientsmentioning

confidence: 99%

Need for and Challenges Facing Functional Communication as Outcome Parameter in AD Clinical Trials

Haberstroh

Knebel²,

Oswald³

et al. 2013

Alzheimer Disease &Amp; Associated Disorders

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This paper (1) highlights the relevance of functional communication as an outcome parameter in Alzheimer disease (AD) clinical trials; (2) identifies studies that have reported functional communication outcome measures in AD clinical trials; (3) critically reviews the scales of functional communication used in recent AD clinical trials by summarizing the sources of information, characteristics, and available psychometric data for these scales; and (4) evaluates whether these measures actually or partially assess functional communication. To provide direction for future research and generate suggestions to assist in the development of a valid and reliable functional communication scale for the needs of AD clinical trials, we have included not only functional communication scales, but also related concepts that give thought-provoking impulses for the development of a functional communication scale. As outcome measures for AD clinical trials, the 6 identified papers use 6 different scales, for functional communication and for related concepts. All of the scales appear to have questionable psychometric properties, but still provide a promising basis for the creation of a functional communication scale. We conclude with concrete suggestions on how to combine the advantages of the existing scales for future research aimed at developing a valid and reliable functional communication scale for the needs of AD clinical trials.

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“…Epistemologically this involves listening differently. Ellis and Astell (2004, 2011 found that even in advanced dementia people maintained the urge to communicate, making it necessary to discover the full range of communicative repertoire so that it can be reflected back to develop a multisensory shared language, which is non-verbal or sub-vocal (Caldwell, 2005;Caldwell and Horwood, 2007). The Hearing Voices Network draws attention to the kinaesthetic unconscious modes of hearing embodied in sensations, rhythms and movements (see Blackman, 2010).…”

Section: Dementia Imentioning

confidence: 99%

Carrying as Method: Listening to Bodies as Archives

Puwar

2020

Body & Society

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Carrying as Method unpacks the notion of ‘carrying’ as an embodied set of influences that bear upon our research practices and journeys. It is widely recognised that we acquire and carry a body of books as intellectual companionship. It is not however readily acknowledged how we as researchers carry sounds, aesthetics, traumas and obsessions, which stay with us and take time to appear before us, as methodological projects within our grasp. Researchers are carriers embarked on exchanges in a double sense. Firstly, we are embodied and affected by our life trajectories. There is a temporality to our research which is entwined with the very knots of our lives. Secondly, we are carriers through the specific ways in which we activate our research materials and relationships. In this article, the two elements of carrying are underlined as being intimately related.

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The urge to communicate in severe dementia

Cited by 10 publications

References 0 publications

Using Video Feedback at Home in Dementia Care: A Feasibility Study

Using Video Feedback at Home in Dementia Care: A Feasibility Study

Need for and Challenges Facing Functional Communication as Outcome Parameter in AD Clinical Trials

Carrying as Method: Listening to Bodies as Archives

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