The Technology-Dependent Child

Haffner, J; Schurman, Scott J.

doi:10.1016/s0031-3955(05)70337-0

Cited by 23 publications

(16 citation statements)

References 52 publications

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“…15,16 The number of infants and children with chronic respiratory failure requiring long-term ventilatory support is gradually in- creasing as a consequence of improved overall medical treatment and technologic advances, which have contributed to longer survival of chronically ill patients and the development of improved home medical equipment. 17,18 Cross-sectional studies have attempted to describe the population of children requiring long-term mechanical ventilation, with the prevalence estimated at 6.3/100,000 children Յ 16 years of age. 19 -21 Recent economic trends in the care of the chronically critically ill pediatric patient are concerning.…”

Section: Trends and Outcomesmentioning

confidence: 99%

The Chronically Critically Ill Patient: Pediatric Considerations

Peterson‐Carmichael¹,

Cheifetz²

2012

Respir Care

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Whether defined as chronically critically ill, long-term mechanical ventilator dependent (or otherwise chronically medically supported), or medically fragile, a population of infants and children with chronic illness clearly exists. Infants and children with chronic healthcare needs are at an increased risk for physical, developmental, behavioral, and/or emotional conditions and generally require healthcare services of a type or amount beyond that of a general pediatric or adult population. This review will focus on the specific management and psychosocial needs associated with the healthcare of this subgroup of infants and children with chronic illness. Attention will be paid to defining the population, describing trends over time, reviewing their special needs, and discussing outcomes. Increased focus and an increasing quantity of resources for this subgroup of infants and children are needed, as the number of such pediatric patients continues to grow.

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Section: Trends and Outcomesmentioning

confidence: 99%

The Chronically Critically Ill Patient: Pediatric Considerations

Peterson‐Carmichael¹,

Cheifetz²

2012

Respir Care

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“…9,10 Little information is available regarding the specific effects of caring for GT tube-dependent children on the economic and psychologic well-being of their caregivers and families. [11][12][13] Caregivers of children with chronic illness require a large amount of time and effort to be trained and subsequently to provide the necessary care for their children.…”

mentioning

confidence: 99%

Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children

Heyman

Harmatz

Acree

et al. 2004

The Journal of Pediatrics

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“…It has been recommended that clothing that blocks the tracheostomy or access to any tubing be avoided. A myriad of home modifications and adaptive equipment options are available and should be individualized based on the child's needs and environment [78].…”

Section: Activities Of Daily Livingmentioning

confidence: 99%

Rehabilitation Considerations for Children Dependent on Long-Term Mechanical Ventilation

Dumas

2012

ISRN Rehabilitation

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The purposes of this paper are as follows (1) to describe the prevalence, etiology, and care settings for children dependent on longterm mechanical ventilation (MV); (2) to provide a brief introduction to MV and weaning; (3) to explore health care utilization and cost of care; and, primarily, (4) to discuss the rehabilitation needs of children dependent on long-term MV including activities of daily living, mobility, communication, psychosocial needs, and recreation and leisure. Children with ventilator dependence are a growing segment of the population of children with special health care needs and often require rehabilitation services. MV is a form of life-saving technology that substitutes for or assists a child's respiratory efforts. Goals for use of MV vary and there are many combinations of MV elements that can obtain desirable results. No standards of care exist for the rehabilitation examination or interventions utilized for children with long-term MV dependence and it remains unclear what effect MV has on the achievement of developmental milestones, daily activities, and participation in daily life.

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The Technology-Dependent Child

Cited by 23 publications

References 52 publications

The Chronically Critically Ill Patient: Pediatric Considerations

The Chronically Critically Ill Patient: Pediatric Considerations

Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children

Rehabilitation Considerations for Children Dependent on Long-Term Mechanical Ventilation

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