The stigmatisation of people with chronic back pain

Holloway, Immy; Sofaer-Bennett, Beatrice; Walker, Jan

doi:10.1080/09638280601107260

Cited by 160 publications

(142 citation statements)

References 59 publications

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“…Patients suggest that healthcare practitioners' initial enthusiasm tends to give way to a loss of interest when treatments fail to deliver the anticipated results (Walker, Holloway, & Sofaer 1999). As a consequence, patients can feel written off, stigmatised, disbelieved and even blamed by practitioners, giving rise to feelings of anger, frustration and despair (Corbett, Foster, & Ong 2007;Holloway, Sofaer-Bennett, & Walker 2006;Osborn & Smith 1998;Walker, Holloway, & Sofaer 1999). A clinician's inability to provide a clear explanation for the pain is likely to add to this distress (May, Rose, & Johnstone 2000;Vroman, Warner, & Chamberlain 2009).…”

Section: Relationships With Healthcare Providersmentioning

confidence: 99%

“…In an attempt to get their symptoms validated, patients can feel under pressure to appear unwell in front of healthcare practitioners (Osborn & Smith 1998;Toye & Barker 2010), but this is difficult because persistent pain can fluctuate from day to day (Holloway, Sofaer-Bennett, & Walker 2006;McParland, Eccleston, Osborn, & Hezseltine 2010;Toye & Barker 2010;Vroman, Warner, & Chamberlain 2009;Walker, Holloway, & Sofaer 1999;Werner, Widding Isaksen, & Malterud 2004). Patients may therefore feel forced to exaggerate their symptoms or disability, in order to avoid being labelled as psychogenic or fraudulent (Glenton 2003;May, Rose, & Johnstone 2000).…”

Section: Relationships With Healthcare Providersmentioning

confidence: 99%

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Patients' experiences of living with persistent back pain

Griensven

2016

International Journal of Osteopathic Medicine

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This Masterclass discusses findings from a growing body of qualitative research studies that have investigated the subjective experience of having persistent non-malignant low back pain. These studies have found that people with experience changes in self image, personal relationships and life roles. They have also reported on how subjectivity affects the therapeutic relationship, what patients have found helpful in dealing with healthcare professionals, and what it is like to go through a healthcare system for a pain that may not be curable or even diagnosable. The findings are of great importance for clinicians who wish to provide person centred care for patients with persistent low back pain, so this Masterclass ends with key lessons for practitioners

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Section: Relationships With Healthcare Providersmentioning

confidence: 99%

Section: Relationships With Healthcare Providersmentioning

confidence: 99%

Patients' experiences of living with persistent back pain

Griensven

2016

International Journal of Osteopathic Medicine

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“…Although research is scarce concerning the actual relationship between observer behavior and patient outcomes, there is no question that patients with pain for which there is no clear medical evidence feel frustrated and disbelieved by others. 2,28,45,58,63 Some limitations, each of which point to directions for further research, need attention. First, our study provided only an analogue of the clinical setting in order to use the power of an experimental investigation.…”

mentioning

confidence: 99%

Health Care Professionals' Reactions to Patient Pain: Impact of Knowledge About Medical Evidence and Psychosocial Influences

Ruddere

Goubert

Stevens

et al. 2014

The Journal of Pain

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AND PERSPECTIVEThis study examined the impact of evidence concerning the presence of: a) a biomedical basis for pain, and b) psychosocial influences, on practitioner appraisals of patient pain experiences.Further, the potential moderating role of patient pain behaviour was examined. In an online study, 52 general practitioners (GPs) and 46 physiotherapists (PTs) viewed video sequences of 4 patients manifesting pain, with accompanying vignettes describing presence or absence of medical evidence and psychosocial influences. Participants estimated pain intensity, daily interference, felt sympathy, effectiveness of pain medication, self-efficacy, their likability and suspicions of deception. Primary findings indicated lower perceived pain and daily interference, less sympathy, lower expectations of medication impact, and less self-efficacy when medical evidence was absent. The same results were found when psychosocial influences were present, but only when the patient displayed higher levels of pain behavior.Further, absence of medical evidence was related to less positive evaluations of the patients and to higher beliefs in deception in both professions. The presence of psychosocial influences was related to less positive evaluations and higher beliefs in deception in both professions. In sum, a range of contextual factors influence healthcare practitioner responses to patient pain. Implications for caregiving behavior are discussed.Perspective: The present study indicates that in the absence of clear medical evidence and in the presence of psychosocial influences patient pain might be taken less seriously by healthcare practitioners. These findings are important to further understand the difficulties that relate to the clinical encounter between pain patients and healthcare practitioners.

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“…However, the proliferation of studies exploring the experience of chronic non-malignant pain 97,140,206,214,250,261,296,327,342,343,348,363,379,385,427,433,[443][444][445][446][447][448][449][450][451][452][453][454][455][456][457][458][459][460] makes it difficult for clinicians and policy makes to use this knowledge to inform practice and policy, and increases the danger that these findings are 'doomed never to be visited'. 27 Research findings need to be accessible if they are to have an effect on care and policy.…”

mentioning

confidence: 99%

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

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The stigmatisation of people with chronic back pain

Cited by 160 publications

References 59 publications

Patients' experiences of living with persistent back pain

Patients' experiences of living with persistent back pain

Health Care Professionals' Reactions to Patient Pain: Impact of Knowledge About Medical Evidence and Psychosocial Influences

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

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