The sociocultural context of caregiving experiences for Vietnamese dementia family caregivers.

Abstract

The goal of this qualitative study was to describe the beliefs and experiences of Vietnamese caregivers caring for a family member with dementia and to elicit their ideas about promising interventions. We recruited 10 caregivers from support groups, the Alzheimer’s Association, and local community-based organizations in Northern California. We conducted semi-structured in-depth interviews with all caregivers, as well as a focus group to obtain ideas about supportive strategies. Several themes emerged from the data: (1) Filial piety was influential in caregiving; (2) A sense of loss/grief or trauma was pervasive; and (3) Caregivers had clear sources of stress and sources of support. An overarching theme underlying these three topics was that cultural beliefs, values, and expectations impacted the caregiving experience. Suggestions for promising interventions included education, language-congruent and/or telephone support groups, case management, inclusion of the care recipient in the intervention, and importance of credibility of the intervention. It also may be valuable to include an understanding of cultural values and promotion of spirituality and religion as key components. Findings highlight targets for dementia caregiver interventions to reduce burden and distress in an understudied population.

Examining the inclusion of patients and their family members in infection prevention and control policies and guidelines across Bangladesh, Indonesia, and South Korea

“…They identified that the patients' families are responsible for: feeding (including through a nasogastric tube), administering medications, cleaning the patient, making beds, repositioning, taking swabs, giving oxygen and urinary catheter care, etc. Similar involvement of patients' family caregivers in the direct care has also been reported from Vietnam, 11 Korea, 6,22,23 India, 12 Indonesia, 5,18,24 and China. 9,10,14,15 The concern here is that these patient care activities are no different from the care activities that are associated with the contamination of health care workers (HCW) hands during the patient care.…”

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…Topics: experiences and discussion focused on each identified unmet needs or challenges. 2014/ Germany [90]Muders et al85 CGsQuestionnaire with two open-ended questions. Topics: exploration and documentation of the CG’s needs and identification of the healthcare professionals to adequately support them. 2015/ USA [91]Meyer et alTen vietnamese informal CGs; seven female; two spouse; mean age = 55Semi-structured interviews ( n  = 10 CGs). Topics: family structure and immigration, beliefs about dementia, experiences with caregiving, coping strategies, help-seeking and service utilization.1 Focus group ( n  = 5 CGs).…”

Demencia y cognición social: su relación con las redes de apoyo social

“…El nivel educativo del cuidador varía en las diferentes investigaciones. Así mismo, en ninguna de las investigaciones revisadas se tiene en cuenta el número de integrantes en la familia (Aparicio et al, 2008;Ascher et al, 2010;Ávila, García & Gaitán, 2015;Ayuso et al, 2007;Butman et al, 2003;Calero, Fernández & Roa, 2009;Celdrán, Triadó & Villar, 2009;Cerquera & Galvis, 2013;Espín, 2012;Glynn, Hahn, Hayden, Randall & Randolph, 2012;Kim, 2012;Krikorian, Velez, González, Palacio & Vargas, 2010;Losada, Márquez, Puente, Gallagher, & Knight, 2007;Mausbach, Chattillion & Ziegler, 2012;Mausbach et al, 2014;Meyer, Nguyen, Dao, & Arean, 2015;Mioshi, Bristow, Cook & Hodges, 2009;Moreno, 2008;Pabón, Galvis & Cerquera, 2014;Palacio, 2012;Valero & Cruz, 2013;Razani, 2007;Riedjik, 2006;Rodríguez, 2013;Vargas & Pinto, 2010) En cuanto a elementos relacionales (ver Figura 3) se identificó que, para ser considerado cuidador principal, debe cumplir con un tiempo mínimo de 3 meses como cuidador y conviviendo con la persona. En términos de ubicación en la red, es común que el cuidador sea el cónyugue y/o hijo, en menor porcentaje se trata de personas con menor grado de consanguinidad y en su gran mayoría no se evidencia apoyo al cuidador por parte de redes informales o formales (Aparicio et al, 2008;Ávila et al, 2015;Ayuso et al, 2007;Butman et al, 2003;Calero et al, 2009;...…”