The shifting dynamics of social roles and project ownership over the lifecycle of a community-based participatory research project

Abstract

. This was the first study to use Social network analysis to document a shift in ownership from academic to community partners, indicating community self-determination over the research process. Further analysis of qualitative data will determine which participatory actions or strategies were responsible for this observed change.

How patient and community involvement in diabetes research influences health outcomes: A realist review

“…In some places, the Advisory Board was established first in order to set priorities for the research , while in other settings, the project was initiated by academics ‐ . In the five projects that were conducted in First Nation settings (British Columbia; FEDS; HCSF; Kahnawake; Sandy Lake) the Tribal Councils had legal authority over decisions to conduct research on the reservations, which placed academics in a position of making a formal application to work with communities.…”

“…In some places, the Advisory Board was established first in order to set priorities for the research[101][102][103][104][105] , while in other settings, the project was initiated by academics[133][134] . In the five projects that were conducted in First Nation settings (British Columbia 65 ; FEDS[87][88][89][90] ; HCSF 91-100 ; Kahnawake[106][107][108][109][110][111][112][113] ; Sandy Lake[125][126][127][128][129][130] ) the Tribal Councils had legal authority over decisions to conduct research on the reservations, which placed academics in a position of making a formal application to work with communities.Partnerships were tasked with developing collaborative relationships via regular face-to-face open meetings and site visits in order to enable members to express concerns and generate culturally appropriate solutions[114][115][123][124] . Communication issues were addressed via different group techniques that were used to develop solidarity, a shared purpose and a shared knowledge base[101][102][103][104][105] .…”

Caring for Family Caregivers of Geriatric Patients: Results of a Participatory Health Research Project on Actual State and Needs of Hospital-Based Care Professionals

“…The co-research team together with the AR and CF set the research agenda, formulate the research question, decide on which qualitative research methods to be used to collect the data, formulate selection criteria and recruit key informants in their peer group, collect the data, perform the data analyses, report the outcomes, and carry out all other necessary research activities to answer their research question [40,41]. The proceeding of this process is reported in the Results section Part 1: PHR process, and in Table 1.…”

Quisquis Amat Valeat! (Whoever Loves, May He be Well) Why Love and Passion Are Important for the Well-Being of the Immune System

“…I think that most of the health research on well-being we are currently doing should be participatory and more specifically driven by the public. Participatory research (Aungst et al, 2017;Salsberg et al, 2017;English et al, 2018;Kwon et al, 2018) is more informative, more accurate and of high translational value compared to lab-based research. Asking the lay public what they think would improve their health or what is missing in their life might provide us with an immense source of useful data that otherwise would never reach the bench in the lab.…”