The Sexual and Reproductive Health and Rights of Young People with Intellectual Disability: A Scoping Review

Carter, Allison; Strnadová, Iva; Watfern, Chloe; Pebdani, Roxanna N.; Bateson, Deborah; Loblinzk, Julie; Guy, Rebecca; Newman, Christy E.

doi:10.1007/s13178-021-00549-y

Cited by 28 publications

(19 citation statements)

References 112 publications

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“…Indeed, the participants in the present study expressed a mainly positive view toward sexual behaviors. These results reflect the positive views toward various forms of sexual behavior found in earlier studies [ 12 ]. While previous research identified behaviors like masturbation and petting each other [ 6 , 7 ], the present study adds anal sex and sexual experimentation.…”

Section: Discussionsupporting

confidence: 89%

“…Promoting sexual health in people with mild to borderline ID is crucial to enable them to enjoy fulfilling relationships, reduce the risk of sexual abuse, and lead satisfying lives [ 10 , 11 ]. However, the specific strategies for achieving this goal remain unclear [ 12 ]. To advance these strategies, the present study focusses on the perspectives of people with mild to borderline ID on their sexual health.…”

Section: Introductionmentioning

confidence: 99%

“…People with mild to borderline ID face many barriers related to their sexual health [ 4 , 13 ], including, among other things, social stigma, both at a societal level and more directly from support staff and relatives [ 4 , 12 , 14 ]. For many years, the general attitude toward people with mild to borderline ID has been that they are asexual or have a childlike sexuality, with the implication being that they are incapable of engaging in reciprocal sexual relations [ 2 , 15 ].…”

Section: Introductionmentioning

confidence: 99%

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Using Concept Mapping to Explore the Perspectives of People with Mild to Borderline Intellectual Disabilities Toward Sexual Health

2023

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People with mild to borderline intellectual disabilities face many barriers toward their sexual health. To promote sexual health and overcome these barriers, they need individualized forms of sexuality support and education. To align sexuality support and education insight is needed on their understanding of sexual health. The current paper aims to provide greater insight in what sexual health consists of according to people with mild to borderline intellectual disabilities. Nine people with a mild to borderline intellectual disability participated in a concept mapping procedure, consisting of brainstorming, sorting, and ranking the statements. The resulting clusters and concept map were interpreted by an expert group. Analysis resulted in five clusters which participants considered important for their sexual health. According to people with mild to borderline intellectual disability cluster pertaining to romantic relationships and sexual socialization were the most important. These were followed by clusters on sexual health and lastly sexual selfhood. These results have implications for the development of sexuality support and education, as well as further research.

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Section: Discussionsupporting

confidence: 89%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Using Concept Mapping to Explore the Perspectives of People with Mild to Borderline Intellectual Disabilities Toward Sexual Health

2023

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“…One crucial aspect that has emerged from this review is that people with ID want to be emotionally attached to others. Affectionate relationships are a symbol of a good life and give a sense of normality [ 177 ]. There are, however, many barriers that make it difficult for this population not only to enter into a loving relationship with another person but also to maintain it.…”

Section: Discussionmentioning

confidence: 99%

The Right to Sexuality, Reproductive Health, and Found a Family for People with Intellectual Disability: A Systematic Review

Pérez-Curiel

Sánchez

Morán

et al. 2023

IJERPH

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Although sexuality, reproductive health, and starting a family are human rights that should be guaranteed for all citizens, they are still taboo issues for people with intellectual disability (ID), and even more so for women with ID. This paper systematically reviews the current qualitative and quantitative evidence on the rights of people with ID in regard to Articles 23 (right to home and family) and 25 (health, specifically sexual and reproductive health) of the Convention on the Rights of Persons with Disabilities (CRPD). A systematic review of the current literature, following PRISMA 2020, was carried out in ERIC, PsychInfo, Scopus, PubMed, ProQuest, and Web of Science. In all, 151 articles were included for review. The studies were categorized into six themes: attitudes, intimate relationships, sexual and reproductive health, sexuality and sex education, pregnancy, and parenthood. There are still many barriers that prevent people with ID from fully exercising their right to sexuality, reproductive health, and parenthood, most notably communicative and attitudinal barriers. These findings underline the need to continue advancing the rights of people with ID, relying on Schalock and Verdurgo’s eight-dimensional quality of life model as the ideal conceptual framework for translating such abstract concepts into practice and policy.

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“…In addition, there is debate as to whether menstrual suppression and denial of maternity, parenting and parental rights should be included within definitions of reproductive coercion and abuse, 6 or whether these practices are distinct though important phenomena that disproportionately affect women experiencing inter secting forms of oppression. 18,19 There is also debate as to whether the non-consensual removal of a condom during sex, or stealthing, should be considered a form of reproductive coercion and abuse. However, it is not always clear that the intent of stealthing is reproductive, or whether it is behaviour to privilege men's sexual pleasure and control and better understood as a form of sexual violence.…”

Section: What Is Reproductive Coercion and Abuse?mentioning

confidence: 99%

Reproductive coercion and abuse in Australia: what do we need to know?

2021

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Reproductive coercion and abuse refers to patterns of controlling and manipulative behaviours used to interfere with a person’s reproductive health and decision-making. Unintended pregnancy, forced abortion or continuation of a pregnancy, and sexually transmissible infections all may result from reproductive coercion, which is closely associated with intimate partner and sexual violence. Clinicians providing sexual and reproductive healthcare are in a key position to identify and support those affected. Yet, reproductive coercion and abuse is not currently screened for in most settings and addressing disclosures poses many challenges. This article discusses what reproductive coercion and abuse is, who it affects, how it impacts, and potential strategies to improve identification and response.

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The Sexual and Reproductive Health and Rights of Young People with Intellectual Disability: A Scoping Review

Cited by 28 publications

References 112 publications

Using Concept Mapping to Explore the Perspectives of People with Mild to Borderline Intellectual Disabilities Toward Sexual Health

Using Concept Mapping to Explore the Perspectives of People with Mild to Borderline Intellectual Disabilities Toward Sexual Health

The Right to Sexuality, Reproductive Health, and Found a Family for People with Intellectual Disability: A Systematic Review

Reproductive coercion and abuse in Australia: what do we need to know?

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