The Self-Determination Theory: Health-Related Quality of Life in Adolescents with Congenital Heart Disease

Abstract

The purpose of this paper is to present a conceptual-theoretical-empirical model addressing variables associated with self-management of care and adherence to treatment and its relationship to health-related quality of life for adolescents with congenital heart disease. There is limited research on adolescents with congenital heart disease regarding the relationship between autonomy, relatedness, competence, self-management of care and adherence to treatment, and health-related quality of life. The proposed Health-Related Quality of Life and Transition of Adolescents With Congenital Heart Disease to Self-Manage in Adulthood model, adapted from the Self-Determination Theory, will help to better understand these relationships.

Factors associated with the quality of life of living kidney donors in Korea: A cross-sectional study

“…[ 12 ] And, the competence of self-determination is improved through the process of setting personal goals and achieving those goals. [ 37 , 38 ] Living kidney donors with high competence can maintain a high HRQoL while setting goals for health management and making efforts to accomplish these goals. Competence in self-determination can be satisfied and improved when individuals have the opportunity to use their abilities, skills, and talents in interactions within the social environment.…”

The effectiveness of health‐related quality of life (HRQOL) model in people with HIV: A cross sectional study

“…Autonomy encompasses a deep sense of volition and wholehearted endorsement in one's actions; competence involves feeling capable and effective in accomplishing desired outcomes; while relatedness entails experiencing reciprocal care and intimacy with others 12 . The connection between these intrinsic needs and overall well‐being is thoroughly substantiated by numerous studies revealing that their fulfillment positively correlates with various measurements of happiness such as life satisfaction, while the deprivation of these needs is negatively associated with malaise including depression and anxiety 13 .…”

Clinical Commentary on From Patient to Physician: a Journey of Resilience

“…These concepts are key aspects of transition readiness programs for adolescents and young adults with CHD as they make the move to providers who care for adults. 7,8 But adolescence is too late to begin this process. Meeting our patients where they are developmentally and engaging them in their own medical care should be well within our skillset and the impact of these efforts may be significant.…”