The Role of the Ileoanal Pouch Nurse Practitioner

Perry−Woodford, Zarah L; Evans, S. K.

doi:10.1007/978-3-319-94385-5_11

Cited by 1 publication

(1 citation statement)

References 38 publications

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“…The majority (80%) of the DECIDE patient stakeholders and other qualitative research indicates that patients strongly value the opportunity to speak to other patients about their lived experiences with a pouch or stoma and to answer the questions that health professionals cannot 21,53,56,64 . Nurse specialists in IBD and/or pouch and stoma care play an important role in counselling by providing patient-centred information, emotional and practical support, managing expectations and providing reassurance to patients 177,17864 (Supplementary Appendices 2). An opportunity to meet with a specialist nurse should be offered after the initial medical-surgical consultation.…”

Section: Supporting Decision-making Post-consultationmentioning

confidence: 99%

DECIDE: Delphi Expert Consensus Statement on Inflammatory Bowel Disease Dysplasia Shared Management Decision-Making

Kabir

Thomas‐Gibson

Tozer

et al. 2023

Journal of Crohn's and Colitis

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Background and Aims Inflammatory Bowel Disease colitis-associated dysplasia is managed with either enhanced surveillance and endoscopic resection or prophylactic surgery. The rate of progression to cancer after a dysplasia diagnosis remains uncertain in many cases and patients have high thresholds for accepting proctocolectomy. Individualised discussion of management options is encouraged to take place between patients and their multidisciplinary teams for best outcomes. We aimed to develop a toolkit to support a structured, multidisciplinary and shared decision-making approach to discussions about dysplasia management options between clinicians and their patients. Methods Evidence from systematic literature reviews, mixed-methods studies conducted with key stakeholders and decision-making expert recommendations were consolidated to draft consensus statements by the DECIDE steering group. These were then subjected to an international, multidisciplinary modified electronic Delphi process until an a priori threshold of 80% agreement was achieved to establish consensus for each statement. Results 31 members (15 gastroenterologists, 14 colorectal surgeons and two nurse specialists) from 9 countries formed the Delphi panel. We present the 18 consensus statements generated after two iterative rounds of anonymous voting. Conclusions By consolidating evidence for best practice using literature review, key stakeholder and decision-making expert consultation we have developed international consensus recommendations to support healthcare professionals counselling patients on the management of high cancer risk colitis-associated dysplasia. The final toolkit includes clinician and patient decision aids to facilitate shared decision-making.

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