The role of social media in clubfoot: Information sharing and social support

Hanna, Gabriel; Batko, B; Potter, James S.; Ippolito, Joseph A.; Edobor-Osula, Folorunsho

doi:10.1302/1863-2548.15.200176

Cited by 10 publications

(6 citation statements)

References 26 publications

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“…Account activity was grouped by likes, tweets, and posts for analysis. Each account was assigned information sources by the abstractor based on identifying information: medical institution, healthcare provider, company, nonprofit organization, support group, or personal account, as consistent with prior studies [ 1 , 2 ]. Furthermore, the founding individual(s) of each account was categorized as a parent, patient, or healthcare provider, if such information was available.…”

Section: Methodsmentioning

confidence: 99%

Social media communities for patients and families affected by congenital pediatric surgical conditions

et al. 2022

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Background Social media has become a means to allow individuals affected by rare diseases to connect with others. This study aimed to characterize the use of three popular social media platforms by individuals affected by common pediatric surgery index conditions. Methods A systematic search of Instagram, Facebook, and Twitter was performed using standardized terms for the following pediatric surgical conditions: anorectal malformation, biliary atresia, bronchopulmonary sequestration, congenital diaphragmatic hernia (CDH), congenital pulmonary airway malformation, duodenal atresia, esophageal atresia/tracheoesophageal fistula (EA/TEF), gastroschisis, Hirschsprung disease (HD), and omphalocele. Accounts active within the last year were analyzed and assessed. Results A total of 666 accounts were identified. Instagram was the most common platform, but accounts dedicated to support and story sharing were most common on Facebook. Biliary atresia and CDH had the largest communities identified. Support groups were most common among those dedicated to EA/TEF (43.3%, p < 0.001). Most accounts were created by parents, but accounts dedicated to HD had the greatest proportion founded by patients (22.4%, p = 0.04). Conclusions Social media use is common among patients and families affected by congenital surgical conditions. Certain diseases have larger communities and support networks. Knowledge about their existence may allow surgeons to direct patients towards supportive communities and resources. Level of evidence IV.

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Section: Methodsmentioning

confidence: 99%

Social media communities for patients and families affected by congenital pediatric surgical conditions

et al. 2022

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“…Data points that were collected included the number of members, followers, likes, comments or tweets, country of origin, access status, and year of platform creation. Social media platform membership minimum criteria were used as previously described [10]. Based on the collected information, each search result was sorted into one of five classifications: medical institution, news, nonprofit organization, promotional information, or story sharing.…”

Section: Platform Searchmentioning

confidence: 99%

Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?

et al. 2021

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Developmental dysplasia of the hip (DDH) is a common orthopaedic condition affecting newborns. The rapid and vast adoption of social media has changed how we access medical information. The aim of this study was to deepen the understanding of the impact of social media as a tool used by caregivers. A search was performed on the Facebook (FB), Twitter (TW), and YouTube (YT) platforms. Information was quantitatively assessed by category, and number of posts and users. Comments and posts from the social medial platforms were then qualitatively assessed by using a thematic analysis. 16 Facebook pages and groups, 135 YouTube videos, and 5 Twitter accounts related to DDH were identified across 15 countries. A total of 25,471 comments/tweets were recorded. Across the social media platforms, the most common comments theme was “information sharing” (36.1%). Facebook groups had a significantly greater number of comments that were characterized as “social media as a second opinion” in comparison to YouTube videos (p < 0.001), whereas YouTube videos had significantly fewer comments characterized as “sharing information” in comparison to Facebook groups and Facebook pages (p < 0.0001). Orthopaedic surgeons may utilize caregiver presence on social media as an opportunity to help share accurate information and facilitate informed decision-making.

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“…15 Newer studies have begun to characterize social media as a tool in assessing information regarding certain orthopedic conditions such as clubfoot and developmental dysplasia of the hip. 16,17 These studies track established orthopedic patients and caregivers utilizing social media as a tool and elucidating prominent themes of conversation. There is no up-to-date encapsulation of how ACL injury and surgery is discussed across the growing variety of social media platforms.…”

Section: Introductionmentioning

confidence: 99%

Cross-platform social media analysis regarding ACL injury and surgery

Hasley

Bukowiec

Zaifman

et al. 2023

Current Orthopaedic Practice

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Background: Anterior cruciate ligament (ACL) injury affects a broad patient population, but there is limited knowledge on how ACL injury is discussed across social media platforms. This study aims to develop an extensive snapshot of the social media milieu for understanding who uses social media platforms, what topics users discuss, and how these platforms vary regarding ACL injury and surgery. Methods: We utilized a qualitative, descriptive design with quantitative statistical analysis including Kruskal-Wallis tests and Fisher’s Exact tests with post hoc analyses to examine new posts across Facebook, Instagram, Twitter, and TikTok using ACL-specific search terms from August 2021 to January 2022. Posts were analyzed by authorship, content characterization, and engagement. Results: Across social media sites, 760 posts were examined involving ACL surgery and injury. There was statistically significant difference among the platforms when comparing categories of authorship (P<0.001). There were statistically significant differences where physicians (P<0.001) and patients (P<0.001) posted, with physicians representing 20.6% and 19.5% of posts on Facebook and Twitter, respectively. TikTok displayed the highest patient authorship (83.5%) and greatest content engagement. There were also significant differences among platforms regarding content characterization (P<0.001). Conclusions: This study breaks down a snapshot of social media revolving around ACL injury and surgery demonstrating differences in authorship, content, and engagement of posts across platforms. These findings demonstrate the frequent use of social media by patients to address unmet clinical needs and can help surgeons and patients connect on the same platforms. Level of Evidence: Level IV.

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The role of social media in clubfoot: Information sharing and social support

Cited by 10 publications

References 26 publications

Social media communities for patients and families affected by congenital pediatric surgical conditions

Social media communities for patients and families affected by congenital pediatric surgical conditions

Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?

Cross-platform social media analysis regarding ACL injury and surgery

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