The role of self-disclosure by peer mentors: Using personal narratives in depression care

Truong, Christine; Gallo, Joseph J.; Roter, Debra; Joo, Jaehyun

doi:10.1016/j.pec.2019.02.006

Cited by 13 publications

(11 citation statements)

References 32 publications

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“…Research had revealed that QOL had become an important outcome measure in breast cancer clinical research and survival research, and could be used as a predictor of mortality rate in breast cancer survivors [7] . Research had shown that patients with breast cancer after surgery generally experienced stigma, which had an adverse impact on the QOL of patients [8][9][10] , and patients' self-disclosure and social support could improve the QOL, which had a positive impact [11][12][13] . In conclusion, the purpose of this study is to investigate the relationship among stigma, self-disclosure, social support, and QOL in breast cancer patients after surgery, and to construct the chain mediation model of self-disclosure and social support.…”

Section: Backgroundsmentioning

confidence: 99%

Construction of the structural equation model of stigma, self-disclosure, social support, and quality of life of breast cancer patients after surgery——A multicenter study

Chen

Zheng

et al. 2022

Preprint

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Purpose: Stigma is common in patients with breast cancer after surgery, which has a negative impact on the quality of life(QOL). This study aimed to investigate the QOL of breast cancer patients after surgery and to analyze the multiple chains mediating effects of self-disclosure and social support between stigma and QOL. Methods: A total 292 patients of breast cancer patients after operation were recruited in this study. A questionnaire survey was conducted using the general information questionnaire, the consumer experiences of stigma questionnaire (CESQ), the distress disclosure index(DDI), the perceived social support scale(PSSS), and the functional assessment of cancer therapy-breast(FACT-B). Path analysis was conducted to test the hypothesized serial multiple mediation model. Results: The total scores of stigma, self-disclosure, social support and QOL were 15 (10 ~ 22), 39 (31 ~ 46), 58 (50 ~ 67) and 88 (74 ~ 104) respectively. QOL of breast cancer patients after the operation was negatively correlated with stigma (p < 0.01), and positively correlated with self-disclosure and social support (p < 0.01). Self-disclosure and social support played a complete mediating effect between stigma and QOL, and the total mediating effect value was 85. 87%. Conclusions: Self-disclosure and social support play a complete intermediary role between stigma and QOL. In order to improve the quality of life of patients, medical staff should pay attention to the assessment of stigma, encourage patients to express their emotions, and encourage their families and friends to respond to their expression and needs of patients.

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Section: Backgroundsmentioning

confidence: 99%

Construction of the structural equation model of stigma, self-disclosure, social support, and quality of life of breast cancer patients after surgery——A multicenter study

Chen

Zheng

et al. 2022

Preprint

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“…Such stories are often referred to in research and practice as ‘recovery narratives’ ( Kerr et al, 2020 ; Llewellyn-Beardsley et al, 2019 ; Mancini, 2019 ; Piat et al, 2019 ), and interest in them has increased within services in tandem with the global adoption of a recovery paradigm by healthcare policy and practice ( Nettleton, 2020 ). Their use has become widespread in services for diverse purposes, including within staff training to improve service delivery and increase empathy ( Salter & Newkirk, 2019 ); public health campaigns and living libraries to challenge stigma ( González-Sanguino et al, 2019 ; Kwan, 2020 ); online interventions to increase access to self-care resources ( Slade et al, 2021 ; Williams et al, 2018 ); and as a distinctive feature of peer support ( Moran et al, 2012 ; Truong et al, 2019 ).…”

Section: Introductionmentioning

confidence: 99%

‘Maybe I Shouldn’t Talk’: The Role of Power in the Telling of Mental Health Recovery Stories

et al. 2022

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Mental health ‘recovery narratives’ are increasingly used within teaching, learning and practice environments. The mainstreaming of their use has been critiqued by scholars and activists as a co-option of lived experience for organisational purposes. But how people report their experiences of telling their stories has not been investigated at scale. We present accounts from 71 people with lived experience of multiple inequalities of telling their stories in formal and informal settings. A reflexive thematic analysis was conducted within a critical constructivist approach. Our overarching finding was that questions of power were central to all accounts. Four themes were identified: (1) Challenging the status quo; (2) Risky consequences; (3) Producing ‘acceptable’ stories; (4) Untellable stories. We discuss how the concept of narrative power foregrounds inequalities in settings within which recovery stories are invited and co-constructed, and conclude that power imbalances complicate the seemingly benign act of telling stories of lived experience.

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“…6 Self-disclosure has health benefits, it can enhance an individual’s positive self-perception, and increases the ability to regulate emotions. 8 Previous studies have shown that self-disclosure can also be used for self-care in older adults, 9 improving subjective well-being and quality of life. Furthermore, self-disclosure was found to be able to reduce psychological distress by changing self-perception to a more resilient condition.…”

Section: Introductionmentioning

confidence: 99%

Influencing factors of self-disclosure and its impact on quality of life in patients with systemic lupus erythematosus

Gao

Sang

et al. 2022

Lupus

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Background Self-disclosure may enhance positive illness perceptions, whereas patients with systemic lupus erythematosus (SLE) always facing negative illness perceptions due to multiple reasons, so elucidation of factors affecting self-disclosure may facilitate the development of quality of life. Methods A total of 161 hospitalized patients with SLE were recruited. Scales on demographic and clinical characteristics, self-disclosure, psychosocial status (e.g. Social Support Rating Scale – SSRS) and quality of life were used to collect related information from clients. Univariate analysis was performed by Kruskal–Wallis rank-sum test or chi-square test, and multivariate analysis by ordinal logistic regression. Results Social support, drinking, depression and cause of hospitalization were found to be influencing factors of self-disclosure. Multiple logistic regression analyses revealed that the significant and independent factors associated with self-disclosure in patients with SLE were social support, drinking and depression. Domains of LupusQoL, except physical health and fatigue, were positively correlated with self-disclosure. Conclusions With the increase of social support, the level of self-disclosure become worse, drinking, depression and cause of hospitalization are risk factors for it. Moreover, the level of self-disclosure is positively related to the LupusQoL. Medical staff should formulate effective measures according to the results to improve self-disclosure in patients with SLE and promote their quality of life.

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The role of self-disclosure by peer mentors: Using personal narratives in depression care

Cited by 13 publications

References 32 publications

Construction of the structural equation model of stigma, self-disclosure, social support, and quality of life of breast cancer patients after surgery——A multicenter study

Construction of the structural equation model of stigma, self-disclosure, social support, and quality of life of breast cancer patients after surgery——A multicenter study

‘Maybe I Shouldn’t Talk’: The Role of Power in the Telling of Mental Health Recovery Stories

Influencing factors of self-disclosure and its impact on quality of life in patients with systemic lupus erythematosus

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