The role of psychological and medical variables in the process of adaptation to life with chronic illness in a group of COPD outpatients

Wytrychiewicz, Kinga; Pankowski, Daniel; Bargiel‐Matusiewicz, Kamilla; Dąbrowski, Jacek; Wandalsen, Gustavo Falbo

doi:10.1080/13548506.2019.1619789

Cited by 5 publications

(4 citation statements)

References 18 publications

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“…Therefore, many factors can affect a patient's adaptation to chronic illness: personal and cultural characteristics, ability to cope with stress, social support structure, economic status, experiences and endurance related to their illness, levels of self-sufficiency in managing their illness, illness duration, medication duration, and their professional life. 2,39 Spirituality is one of the most important components of overall health. Today, the effect of social determinants, such as spirituality and religion, on health-promoting behaviors and the treatment and recovery processes, become more and more important.…”

Section: Resultsmentioning

confidence: 99%

“…Adaptation to chronic illness is a complex process affected by internal and external environmental factors. Therefore, many factors can affect a patient's adaptation to chronic illness: personal and cultural characteristics, ability to cope with stress, social support structure, economic status, experiences and endurance related to their illness, levels of self‐sufficiency in managing their illness, illness duration, medication duration, and their professional life 2,39 …”

Section: Discussionmentioning

confidence: 99%

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The effect of spiritual well‐being on adaptation to chronic illness among people with chronic illnesses

Yılmaz

Kara

2020

Perspect Psychiatr Care

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Purpose: This study aimed to identify the effect of spiritual well-being on the adaptation to chronic illness, among people with chronic illnesses. Design and Methods: The study comprised of 466 patients hospitalized in the internal medicine clinics of internal diseases, cardiology, neurology, and chest diseases, at the training and research hospital of a university. Findings: There was a significant positive relationship between spiritual well-being and adaptation and how spiritual well-being affected patients' adaptation to chronic illness. Practice Implication: Study results indicated that adaptation to chronic illness increased in direct relation to an increased level of spiritual well-being, among people with chronic illnesses. K E Y W O R D S adaptation, chronic illness, spiritual well-being 1 | INTRODUCTION Chronic illnesses progress slowly and are affected by physiopathological conditions; they cause irreversible changes, require lifelong follow-up and treatment, and are difficult to manage for both the patient and caregiver. 1,2 Untreated chronic illnesses are the primary causes of mortality and morbidity; their socioeconomic burden increases gradually, and they cause life-threatening complications, functional losses, repeated hospitalizations, and limitations in daily life activities. 3 Moreover, they affect numerous aspects of people's lives, including body image and lifestyle, dietary habits, and social relationships, and cause a variety of physical and mental symptoms, such as pain, anxiety, and stress. 1,4 In this sense, the effective management of chronic illnesses is crucial and, for it to be successful, it is important for people to know, accept, and adapt to all the changes that occur as a result of their chronic illnesses. Adaptation is a person's power to accept internal and external changes and exhibit suitable attitudes and behaviors. 5 It is a person's power to adhere to the treatment required, apply the recommended diet, accept the necessary lifestyle changes, and turn them into behaviors. 5,6 While the literature reviewed did not include any studies that evaluated adaptation to chronic illness using the Adaptation to Chronic Illness Scale (ACIS), studies evaluating adherence to drug therapy, 7 diet, and healthy lifestyle behaviors all reported problems in adherence. 8,9 These problems caused increased rates in mortality and repeated hospitalizations. 10,11 Consequently, ensuring adaptation to illness becomes vital for the effective management of illnesses. 12 According to the literature, understanding the illness and adapting to it in daily life is essential for the selfmanagement of chronic illnesses. 12,13 It was also reported that socioeconomic factors, cultural aspects, factors related to health teams and health services, and patient characteristics are also all contributing factors in a patient's ability to adapt to illness. 13,14 In this respect, it is crucial to evaluate the adaptation process with a holistic approach to care and in terms of physiological, psychological, social, an...

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The effect of spiritual well‐being on adaptation to chronic illness among people with chronic illnesses

Yılmaz

Kara

2020

Perspect Psychiatr Care

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“…Despite the fact that methodological differences should be recognised first, the above review of interventions introducing palliative care for patients with severe COPD points to the role of education and improvement through self-management. Enhancing patients’ self-efficacy might be a key to boosting the applicability and patients’ adaptation [64]. Among patients with COPD stage III to IV, a higher level of coping techniques referring to as planning strategies, self-distraction and active coping, predicted benefits from PR [52].…”

Section: Discussionmentioning

confidence: 99%

Psychosocial Interventions for Patients with Severe COPD—An Up-to-Date Literature Review

Rzadkiewicz

Nasiłowski

2019

Medicina

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Background and Objectives: Chronic obstructive pulmonary disease (COPD) is a life limiting condition with a long list of serious psychosocial consequences, aggravating with illness progression. In advanced stages, chronic respiratory failure often develops, which might undermine mental health and reduce activity. The study objective was to review the recent studies concerning psychosocial interventions dedicated to patients with severe COPD. Materials and Methods: The PubMed database was searched for terms, such as ‘COPD and long-term oxygen therapy, non-invasive ventilation, severe or respiratory failure’ and ‘psychological or psychosocial or mental health and intervention.’ Studies were included that described patients with stable, severe COPD and the outcomes of psychosocial interventions. Results and Conclusions: Thirty-four studies were identified and divided into four thematic groups: home medical support, exercise, self-management and mental health. The number of studies that focused on mental health preservation in severe COPD was very limited; i.e., none refer directly to those treated with respiratory failure. Improving patients’ self-efficacy gave promising effects to the acceptance of palliative care, pulmonary rehabilitation completion and mental health. Physical activity might be recommended to be included in interventions for mental health enhancement, although little is known about the role of the particular forms of exercise. An increasing beneficial use of new technologies for psychosocial interventions was noted. Psychosocial interventions applied in advanced COPD underline the roles of self-efficacy, telehealth and physical activity in physical and mental health preservation. However, all of the above elements need to be independently tested on more homogenous groups of patients and have the possible modes of their treatment analysed.

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“…Adjustment to chronic illness depending on various aspects, such as environmental variables [21], parental and social support or intelligence [22]; psychological factors, such as resilience or coping strategies [23] play a significant role too in mediating the effects of diseases-related distress [24]. Between the variety of stressors that pediatric patients may experience, there are controllable situations (e.g., boring hospital stays) or un-controllable situations (e.g., treatment side-effects); these aspects require specific coping strategies in chronically ill children [25,26].…”

Section: Introductionmentioning

confidence: 99%

Associations between Pretend Play, Psychological Functioning and Coping Strategies in Pediatric Chronic Diseases: A Cross-Illness Study

Riso

Cambrisi

Bertini

et al. 2020

IJERPH

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Children with chronic illnesses are called to undertake complicated processes of adjustment and re-organization in their daily lives; as a result, they could experience several internalizing problems. Symbolic play could be a useful way to cope with these difficulties. The main aim of this paper is to assess pretend play, coping, and psychological symptoms in three groups of school-aged children with pediatric chronic diseases. The study involved 44 Italian school-aged, chronically ill children: 16 with type 1 diabetes mellitus (T1DM), 12 with cystic fibrosis (CF), and 15 with Leukemia. All patients were assessed by the Affect in Play Scale–Brief version (APS-Br), and the Children’s Coping Strategies Checklist–Revision1 (CCSC-R1). Children with T1DM and CF also completed the Separation Anxiety Symptom Inventory for Children (SASI-C) and the Strengths and Difficulties Questionnaire (SDQ)–children’s version. Cohen’s d (effect size) was applied between clinical and normative samples, and it showed a more organized play (APS-BR), but a more negative affect tone, comfort, and frequency of affect expression. Comparing APS-BR and CCSC-R1 rates between the three groups, significant differences were found for all the APS-BR dimensions, except for tone, and for CCSC-R1 seeking understanding. Comparing SASI-C score between T1DM and CF, higher scores were found for children with CF. In the end, correlations between all dimensions highlighted several relationships between play, coping, and adjustment problems for children with T1DM, and relationship between affect play and all variables for children with CF. Symbolic play helps chronically ill children to express emotions; helping them, as well as clinicians, to understand the difficulties caused by chronic conditions, and to cope with them.

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The role of psychological and medical variables in the process of adaptation to life with chronic illness in a group of COPD outpatients

Cited by 5 publications

References 18 publications

The effect of spiritual well‐being on adaptation to chronic illness among people with chronic illnesses

The effect of spiritual well‐being on adaptation to chronic illness among people with chronic illnesses

Psychosocial Interventions for Patients with Severe COPD—An Up-to-Date Literature Review

Associations between Pretend Play, Psychological Functioning and Coping Strategies in Pediatric Chronic Diseases: A Cross-Illness Study

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