The role of Memory Clinics in the assessment and management of dementia, now and into the future

Mehrani, Inga; Sachdev, Perminder S.

doi:10.1097/yco.0000000000000777

Cited by 8 publications

(5 citation statements)

References 35 publications

(55 reference statements)

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“…This is an extended memory clinic model. Challenges to model implementation are that few memory clinics currently are resourced to offer post-diagnostic support services [37 ▪ ,38 ▪ ], costs are high [39] and there is need to establish more clinics and develop the workforce [37 ▪ ].…”

Section: Overview Of Models Of Post-diagnostic Supportmentioning

confidence: 99%

Further development needed: models of post-diagnostic support for people with dementia

Low

Gresham

Phillipson

2022

Current Opinion in Psychiatry

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Purpose of reviewThere is increasing recognition of a service gap immediately after diagnosis for people with dementia and carers. This narrative review of models of post-diagnostic support focuses on recent developments and offers suggestions for future development. We present the current evidence for these models and consider the service components they provide against the recommendations of clinical guidelines and principles underpinning ideal post-diagnostic support. Recent findingsModels of post-diagnostic support include a short-term support worker, ongoing support worker, centre-based support, primary care management, and specialist dementia clinics. Of these, specialist dementia clinics that include ongoing support workers provide most components of an ideal and timely post-diagnostic support framework, but may be more costly to implement universally. The greatest research evidence is for the benefits of long-term support models, specifically case management, though this does not necessarily include medical care or nonpharmacological interventions. There is sparce evidence for the benefits of short-term support worker models such as dementia advisers for people with dementia and carers. SummaryFurther development is needed to create whole-system models of dementia support which meet the needs of people with dementia and their carers, are timely, accessible and equitable, and can be implemented universally.

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Section: Overview Of Models Of Post-diagnostic Supportmentioning

confidence: 99%

Further development needed: models of post-diagnostic support for people with dementia

Low

Gresham

Phillipson

2022

Current Opinion in Psychiatry

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“…Also, our CAB‐based recruitment strategies enrolled mostly cognitively normal participants. Incorporating approaches designed to identify cognitively impaired individuals, such as strategically placed satellite memory clinics in the diverse communities, 17 , 18 into our current model will be important to test whether this strategy can increase representation of cognitively impaired URG research participants.…”

Section: Discussionmentioning

confidence: 99%

Accelerating diversity in Alzheimer's disease research by partnering with a community advisory board

Pena‐Garcia,

Richards,

Richards

et al. 2023

A&D Transl Res & Clin Interv

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Introduction: Community advisory boards (CABs) and researcher partnerships present a promising opportunity to accelerate enrollment of underrepresented groups (URGs). We outline the framework for how the CAB and researchers at the Indiana Alzheimer's Disease Research Center (IADRC) partnered to accelerate URG participation in AD neuroimaging research.Methods: CAB and the IADRC researchers partnered to increase the CAB's impact on URG study enrollment through community and research interactions. Community interactions included the CAB collaboratively building a network of URG focused community organizations and collaborating with those URG-focused organizations to host IADRC outreach and recruitment events. Research interactions included direct impact (CAB members referring themselves or close contacts as participants) and strategic impact, mainly by the CAB working with researchers to develop and refine URG focused outreach and recruitment strategies for IADRC and affiliated studies to Alex Pena-Garcia and Ralph Richards contributed equally to this study.

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“…Memory clinic is a widely accepted diagnosis-treatment-education-management model designed to provide home care education and caregiver training for early diagnosis, identification and treatment of patients with dementia and related cognitive impairments. 26 It provides the fastest access to those who have been professionally diagnosed with MCI and is an ideal place to recruit. The pre-experiment found that the acceptance rate for recruitment exceeded 50%.…”

Section: Methods and Analysismentioning

confidence: 99%

“…Participants will be recruited at memory clinics in four cities: Xining, Qinghai Province, Beijing; Nanjing, Jiangsu Province and Zhuhai, Guangdong Province. Memory clinic is a widely accepted diagnosis-treatment-education-management model designed to provide home care education and caregiver training for early diagnosis, identification and treatment of patients with dementia and related cognitive impairments 26. It provides the fastest access to those who have been professionally diagnosed with MCI and is an ideal place to recruit.…”

Section: Methods and Analysismentioning

confidence: 99%

Preferences of people with mild cognitive impairment for physical activity interventions in China: protocol for a discrete choice experiment study

Liu

Jiao

et al. 2022

BMJ Open

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IntroductionExercise interventions are important non-pharmacological interventions for patients with mild cognitive impairment (MCI), but patients with MCI have poor compliance and there is no consistent strategy for exercise interventions. Understanding the needs and preferences of MCI patients allows for the development of effective and acceptable exercise intervention programmes that achieve the goals of patient-centred care. This study uses a discrete choice experiment (DCE) to measure and quantify MCI patients’ preferences for exercise interventions, and aims at (1) identifying and exploring which elements of exercise intervention programmes are essential for MCI patients; (2) measuring MCI patients’ preferences for exercise interventions and summarising relevant characteristics that may influence preference choices and (3) determining whether these preferences vary by participant characteristics and classifying the population types based on the sociodemographic characteristics of the participants.Methods and analysisA DCE will be conducted to explore MCI patients’ preferences for exercise interventions. We conducted a systematic literature review and extensive qualitative work to select the best attributes to develop the design of DCE. A partial factorial survey design was generated through an orthogonal experimental design. We will conduct a questionnaire survey in one city each in the eastern (Nanjing), western (Xining), southern (Zhuhai) and northern (Beijing) parts of China and reach the planned sample size (n=278). Final data will be analysed using a mixed logit model and a latent class model.Ethics and disseminationThis study was approved by the Ethics Committee of Nanjing Medical University (2021-666). All participants will be required to provide informed consent. Our findings will be disseminated and shared with interested patient groups and the general public through online blogs, policy briefs, national and international conferences and peer-reviewed journals.

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The role of Memory Clinics in the assessment and management of dementia, now and into the future

Cited by 8 publications

References 35 publications

Further development needed: models of post-diagnostic support for people with dementia

Further development needed: models of post-diagnostic support for people with dementia

Accelerating diversity in Alzheimer's disease research by partnering with a community advisory board

Preferences of people with mild cognitive impairment for physical activity interventions in China: protocol for a discrete choice experiment study

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