The Role of Health Literacy in Health Behavior, Health Service Use, Health Outcomes, and Empowerment in Pediatric Patients with Chronic Disease: A Systematic Review

Riemann, Lisa; Lubasch, Johanna Sophie; Heep, Axel

doi:10.3390/ijerph182312464

Cited by 17 publications

(22 citation statements)

References 77 publications

(129 reference statements)

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“…Health literacy, currently defined as a person's knowledge, motivation, and competency to assess, understand, appraise, and apply basic health information to make and act upon decisions in various settings [1], can play a significant role in how people manage their health, the way they use health services, and their health outcomes [2 ▪▪ ]. In the United States, over 30% of adults have limited health literacy [3].…”

Section: Introductionmentioning

confidence: 99%

Health literacy in pediatric dermatology: challenges and opportunities

Williams

Housten

Coughlin

2023

Current Opinion in Pediatrics

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Purpose of review Health literacy influences how children and families participate in their medical care, use health services, and overall health outcomes. Health literacy is underexplored in pediatric dermatology. In this scoping review, we provide examples of how limited health literacy can be a barrier to patient care in pediatric dermatology and how to mitigate its effects. Recent findings Limited health literacy is associated with worse health outcomes, decreased medication adherence, and decreased use of the healthcare system versus those with adequate health literacy. Materials created to help patients understand their medical conditions and treatment options often are written at a reading level far above that of the average patient and caregiver. Given the reading level of patient-facing materials, those with limited health literacy are more susceptible to medication administration errors, with omissions or incorrect dosing being most frequent to occur. There is limited research about how skills related to health literacy, including numeracy and electronic health literacy, can be addressed in pediatric dermatology. Summary Health literacy impacts patient care, treatment, and adherence in pediatric dermatology. This article gives examples of how to address common challenges in the pediatric dermatology clinic and presents areas for further research and improvement.

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Section: Introductionmentioning

confidence: 99%

Health literacy in pediatric dermatology: challenges and opportunities

Williams

Housten

Coughlin

2023

Current Opinion in Pediatrics

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“…35,36 Our findings lend further credence to the need for further study to delineate the interplay between how caregiver health literacy affects household wellbeing, health-seeking behavior, and optimal PFCC. 37 In our analysis of factors associated with QoL differences, we found Black race was associated with higher QoL in the Social Life domain, overall QoL rating, and the aggregate QoL score. Household income and education were not associated with QoL differences.…”

Section: Discussionmentioning

confidence: 74%

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Overmann

Porter

Yin

et al. 2023

Journal of Patient Experience

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The objective of this study was to quantify the quality of life (QoL) of caregivers with children with influenza-like illnesses (ILI) and to identify factors associated with worse QoL. This was a cross-sectional cohort study of caregivers in a pediatric emergency department with previously healthy young children with ILI. The primary outcome was caregiver QoL. Additional measures included health literacy, social support, and caregiver health status. Two hundred and eighty-one caregivers completed the study. And 41% reported overall QoL was worse during their child's illness. The median QoL score was 3.8 [3.1, 4.6] in a 7-point scale. Illness duration was associated with worse overall QoL score (0.128 worse for each additional day of illness). The median emotions domain score was 2.5 [1.5, 4.0], the worst of any domain. Caregivers who perceived worse illness severity had lower emotions domain scores (2.61 vs 6.00, P = .0269). Caregivers with adequate literacy had lower mean QoL scores (3.08 vs 4.44, P < .0001). Childhood illnesses worsen caregiver QoL. Factors associated with worse QoL were perception of illness severity and duration. Addressing caregiver QoL could mitigate the impact of childhood acute illnesses on caregiver wellbeing.

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“…There is a growing body of literature exploring the role of health literacy in improving children and young people's health behaviours and outcomes (Bánfai-Csonka et al, 2022;Bröder et al, 2017Bröder et al, , 2019Guo et al, 2018;Riemann et al, 2021;Velardo and Drummond, 2017). Recent research has highlighted how good health literacy can empower children to understand their world and daily life to make informed and positive health decisions (Bánfai-Csonka et al, 2022;Bröder et al, 2017).…”

Section: Children's Health Literacymentioning

confidence: 99%

Health literacy among children living with a long-term condition: ‘What I know and who I tell’

Peck

Bray

Dickinson

et al. 2023

Health Education Journal

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Background: Little is known about the health literacy of children living with long-term conditions. This study aimed to gain insight into the life of children with a long-term condition in the context of health literacy, specifically their understanding of their health and the barriers and facilitators to sharing information about their condition with others. Design: Child-centred qualitative arts-based approach with children aged 6–12 years. Setting: Children participating in the study came from three countries – the UK, Australia and New Zealand. Method: A participatory arts-based qualitative child-centred approach prompted children to draw, label and use stickers, body-outlines and collage to describe elements central to health literacy. This encompassed their long-term condition, their understanding of their condition, its management and decision-making associated with sharing information about their condition with others. The sessions were audio-recorded, and reflexive thematic analysis was undertaken. Results: Four central themes related to key elements of child health literacy: (1) pragmatic understanding – what it feels like and what happens in my body; (2) management regime – what do I have to do to keep on going; (3) information sharing – I don’t tell random people; and (4) benefits of sharing – they’ve got my back. Conclusion: Children indicated a pragmatic or process type understanding of their condition and its management. Children were discerning about who they shared information about their condition with, but tended to establish a network of well-informed peers capable of providing support if needed. Despite gaps in children’s health literacy, parents and families have an important role to play in checking children’s understandings and developing critical health literacy.

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The Role of Health Literacy in Health Behavior, Health Service Use, Health Outcomes, and Empowerment in Pediatric Patients with Chronic Disease: A Systematic Review

Cited by 17 publications

References 77 publications

Health literacy in pediatric dermatology: challenges and opportunities

Health literacy in pediatric dermatology: challenges and opportunities

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Health literacy among children living with a long-term condition: ‘What I know and who I tell’

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