The role of family and culture in the disclosure of bad news: A multicentre cross-sectional study in Pakistan

Shah, Sameena; Usman, Asma; Zaki, Samar; Qureshi, Asra; Lal, Karishma; Uneeb, Saher Naseeb; Bari, Naseem; Hasnani, Fauzia Basaria; Shah, Nasir; Iqbal, Saima Parwaiz; Ullah, Obaid; Abid, Sumera

doi:10.1016/j.pecinn.2023.100200

Cited by 2 publications

(2 citation statements)

References 31 publications

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“…In Iran, the role of the family is paramount in handling bad news and providing care (Bazrafshan et al, 2022). In many cases, it is the family that determines how much patients are told, who delivers the information, and even when to transition from treatment to palliative care (Shah et al, 2023). Abazari et al (2017) created a localized protocol to break bad news in Iran.…”

Section: Discussionmentioning

confidence: 99%

“…Medical students in Iran learn how to break bad news, however in practice, it is often the families that handle the news and the information (Larizadeh and Malekpour-Afshar, 2007;Scheidt et al, 2017). In a recent representative study from Pakistan, the majority of patients expressed a preference for their family members to receive the bad news initially (Shah et al, 2023). When the family is involved in the diagnosis stage, such as receiving test results, meeting with various specialists to reach a diagnosis, the possibility that the patient is left out of the decision-making process is very high (Scheidt et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

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Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran

Naghavi,

Salimi,

Rief

et al. 2023

Front. Psychol.

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ObjectiveThis study investigated and compared the attitudes of healthy Iranian individuals (n = 302) in forms of two groups of caregivers and non-caregivers of cancer patients about the communication with cancer patients, and their personal wish to know the diagnosis if they ever had cancer. In addition, this study aimed to identify how many participants in the caregivers’ group had spoken with their family member affected by cancer about their illness.MethodsCaregivers (50.7%) and non-caregivers (49.3%) responded to two questionnaires regarding their general attitudes about communicating with cancer patients, and their willingness to know about their illness if they had cancer.ResultsThe majority of participants (92.8%), especially in the caregiver group, agreed with the right of patients to know the diagnosis and prognosis, and also wished to know if they ever had cancer. However, around 64% of caregivers never talked about cancer with the affected patients.ConclusionParticipants generally believed that patients have the right to know the diagnosis and prognosis, and they also wished to know if they ever had cancer. However, in reality many cancer patients are not included in communication sessions in Iran. Health professionals should focus on how to create a balance between medical bioethics with cultural influences on communication with patients.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran

Naghavi,

Salimi,

Rief

et al. 2023

Front. Psychol.

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An Insight Into the Experiences of Malaysian Patients With Advanced Cancer and Their Preferences in End-of-Life Care: A Qualitative Study

Chung,

Khoo,

Low

2024

Am J Hosp Palliat Care

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Background: Preferences of patients with advanced cancer are well studied in Western countries but less so in Asian communities where end-of-life discussions can be seen as taboo. This may lead to patients receiving care that is incongruent with their wishes as their disease progress. It is important for healthcare providers to have a better understanding of patients’ experiences and preferences especially in a multicultural country like Malaysia with its diverse beliefs and values to facilitate better planning for future medical care. Objectives: To explore the experiences and preferences of Malaysian patients with advanced cancer. Design: Qualitative study of semi-structured interviews with thematic analysis. Setting/subjects: Purposive sampling of 19 patients with Stage 4 cancer recruited from inpatient and outpatient settings in National Cancer Institute Malaysia. Results: Three major themes emerged in the exploration of patients’ experiences and care preferences in facing advanced cancer namely: 1) Dealing with poor prognosis 2) Spirituality as a source of strength and 3) Enablers of advance care planning. Conclusion: This study highlighted the preference for healthcare providers to be culturally sensitive during end-of-life care discussion and the need for improved spiritual care for Malaysian patients with advanced cancer. Further studies exploring the role of spiritual and cultural factors in advance care planning among Malaysians would be helpful in guiding these efforts.

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The role of family and culture in the disclosure of bad news: A multicentre cross-sectional study in Pakistan

Cited by 2 publications

References 31 publications

Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran

Communication with cancer patients: the perspective of caregivers versus non-caregivers in Iran

An Insight Into the Experiences of Malaysian Patients With Advanced Cancer and Their Preferences in End-of-Life Care: A Qualitative Study

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