The Role of an Inflammatory Bowel Disease Nurse in the Follow-Up of Patients From a Latin American Inflammatory Bowel Disease Program

Abstract

Inflammatory bowel disease requires long-term treatment to maintain disease control. Favorable follow-up of patients indicates attention from a multidisciplinary team, in which the nurse's responsibilities have great importance. The aim of this observational, descriptive study was to describe the role of an inflammatory bowel disease nurse in the management of patients in a tertiary center in Chile, including all patients in follow-up between January 2016 and April 2017. Inflammatory bowel disease nurse contacts were recorded and classified. Demographic data, clinical variables, and patient satisfaction were also analyzed. A total of 597 patients (51%) were in follow-up over the 16-month period; 63% had ulcerative colitis, with a median age of 35 years. The inflammatory bowel disease nurse performed 760 contacts in 253 patients (42% of the follow-up patients). The most frequent nurse interventions were reinforcement of medical indications (42%), assessment of laboratory results (17%), and disease follow-up (12%); 49% related to education. Nurse interventions were focused in more severely ill patients; flares during the follow-up, biological therapy, immunomodulators, and steroids were all statistically significant. Of a sample of 107 patients surveyed, 96% perceived the inflammatory bowel disease program as excellent/good. The inflammatory bowel disease nurse plays an important role in the follow-up and management, specifically in education, of more severely ill patients.

Nursing‐sensitive outcomes in adult inflammatory bowel disease: A systematic review

“…Three studies were conducted in the Netherlands (de Jong et al., 2017; Linn et al., 2013, 2018). Three in the United Kingdom (Blagden et al, 2015; Holbrook, 2007) and two studies were conducted in Canada (Bernstein et al., 2017; Yongwen Ng et al, 2018), Italy (Michielan et al., 2015; Mocciaro et al., 2017), Australia (Leach et al., 2014; Sack et al., 2012), and Chile (Simian et al., 2017, 2020). Finally, one study was conducted in South Korea (Hwang & Yu, 2019), Greece (Tsoukka et al., 2017), and Norway (Jelsness‐Jørgensen et al., 2012).…”

“…Seventeen of the studies were observational studies (Bernstein et al., 2017; Holbrook, 2007; Hwang & Yu, 2019; Jelsness‐Jørgensen et al., 2012; Leach et al., 2014; Linn et al., 2013; Lopez et al., 2015; Marin‐Jimenez et al., 2019; McCutcheon et al., 2005; Michielan et al., 2015; Mocciaro et al., 2017; Orozco‐Beltran et al., 2019; Sack et al., 2012; Simian et al., 2017, 2020; Tsoukka et al., 2017; Yongwen Ng et al., 2018). Ten were surveys (Bernstein et al., 2017; Holbrook, 2007; Hwang & Yu, 2019; Marin‐Jimenez et al., 2019; McCutcheon et al., 2005; Mocciaro et al., 2017; Orozco‐Beltran et al., 2019; Simian et al., 2017; Tsoukka et al., 2017; Yongwen Ng et al., 2018), two were retrospective (Lopez et al., 2015; Michielan et al., 2015), and five were prospective (Jelsness‐Jørgensen et al., 2012; Leach et al., 2014; Linn et al., 2013; Sack et al., 2012; Simian et al., 2020) in design. Two were prospective interventional studies (Axelrad & Shah, 2016; Cook et al., 2010) and four were RCTs (Del Hoyo et al., 2018; de Jong et al., 2017; Linn et al., 2018; Moss et al., 2010).…”

“…The last identified domain is represented by Patient Satisfaction . Satisfaction as a nursing‐sensitive outcome was analysed in five studies – two RCTs (Del Hoyo et al., 2018; Linn et al., 2018) and three observational studies (Holbrook, 2007; Michielan et al., 2015; Simian et al., 2020) that also had the objective of evaluating patient satisfaction measured by PROMs. The results showed that the assistance of IBD specialist nurses improves the degree of appeasement.…”

“…To begin, a significant temporal datum can be observed regarding how the number and diversity of the research studies assessing NSOs has changed over time. Among the papers examined between 2000 and 2020, the oldest was published in 2005 (McCutcheon et al., 2005), while the most recent was published in January 2020 (Simian et al., 2020). As can be seen from 2000–2012, we identified seven studies, while from 2013–2020, we found 17.…”

Consensus for criteria of running a pediatric inflammatory bowel disease center using a modified Delphi approach

“…Registered IBD nurses should also be included in the IBD core team. They can communicate with doctors about disease information; on the other hand, they can provide children and their families with adequate training, psychological support, and consultation of IBD-related information [15][16][17]. This work can not only increase the patients' compliance to the treatment but also brings better clinical outcomes.…”