The right to information for the terminally ill patient.

Osuna, Eduardo; Pérez-Cárceles, María D.; Esteban, Mauricio; Luna, A.

doi:10.1136/jme.24.2.106

Cited by 13 publications

(15 citation statements)

References 15 publications

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“…Percentages of healthy people who would like to die at home were generally higher than those who actually die at home [200] , [201] , [202] , [203] , [204] , [205] nevertheless a recent survey showed that half of the population has preferences for specific care settings or hospitals for terminal patients [202] . There was greater consensus among healthcare professionals than among the general public that the home is the ideal place of death [206] , [207] , [208] , [209] .…”

Section: Resultsmentioning

confidence: 99%

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

et al. 2012

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Aim Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries. Methods We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes. Results A total of 868 papers were reviewed. The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities. Conclusion This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.

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Section: Resultsmentioning

confidence: 99%

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

et al. 2012

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“…Osuna et al also reported that Spanish nurses believed they were more capable of working with terminally ill patients and showed less distress than did physicians. 24 Many nurses thought that treatment continues too long, a finding that is probably owing to the fact that nurses spend much time with patients and hopeless care is therefore more visible to them. Sjökvist et al also reported that a substantial minority of nurses disagreed with physicians' decisions on life-supporting treatments.…”

Section: Nurses' Rolesmentioning

confidence: 99%

Finnish Nurses’ Views on End-of-Life Discussions and a Comparison with Physicians’ Views

et al. 2004

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This study investigated Finnish nurses' experiences and views on end-of-life decision making and compared them with physicians' views. For this purpose, a questionnaire was sent to 800 nurses, of which 51% responded. Most of the nurses had a positive attitude towards and respect for living wills, more often than physicians. Most also believed that a will had an effect on decision making. Almost all of the nurses considered it their responsibility to talk to physicians about respecting living wills. Do-not-resuscitate (DNR) orders were often interpreted to imply partial or complete palliative (symptom-orientated) care, which may cause confusion. Half of the nurses reported that a DNR decision was discussed always or often with a patient who was able to communicate; physicians were more positive in this respect. Surprisingly, many nurses (44%) stated that active treatment continued too long. Two-thirds thought that their opinions were taken into account sufficiently, even though only half believed that, in general, they had some impact.

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“…Percentages of healthy people who would like to die at home were generally higher than those who actually die at home [200,201,202,203,204,205] nevertheless a recent survey showed that half of the population has preferences for specific care settings or hospitals for terminal patients [202]. There was greater consensus among healthcare professionals than among the general public that the home is the ideal place of death [206,207,208,209].…”

Section: Spainmentioning

confidence: 99%

“…International comparisons described southern European countries as partial and non-disclosure countries [221,222,223] and Spanish awareness studies suggested that this trend persisted over time [194,204,218,224,225,226,227]. On the other hand, studies with healthy populations show that preferences are evolving towards open disclosure [201,202,203,204,207,228]. Intermediate positions were also found; the majority of doctors stated that they would inform the patient only in certain circumstances or if requested by the patient [206,207,208,209,228,229,230,231,232].…”

Section: Spainmentioning

confidence: 99%

“…On the other hand, studies with healthy populations show that preferences are evolving towards open disclosure [201,202,203,204,207,228]. Intermediate positions were also found; the majority of doctors stated that they would inform the patient only in certain circumstances or if requested by the patient [206,207,208,209,228,229,230,231,232]. The two main obstacles to giving bad news were found to be acceptance of the wishes of the family, hence tolerating the 'conspiracy of silence' imposed by the relatives, and feeling uncomfortable to give bad news [217].…”

Section: Spainmentioning

confidence: 99%

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Culture and End of Life Care: A Scoping Exercise in Seven European Countries

Gysels¹,

Evans²,

Meñaca³

et al. 2020

The Ethical Challenges of Emerging Medical Technologies

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Aim: Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries. Methods: We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes. Results: A total of 868 papers were reviewed. The following themes facilitated crosscountry comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities. Conclusion: This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.

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The right to information for the terminally ill patient.

Cited by 13 publications

References 15 publications

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

Finnish Nurses’ Views on End-of-Life Discussions and a Comparison with Physicians’ Views

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

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