The renegotiation of social roles in chronic aphasia: Finding a voice through AAC

Dietz, Aimee; Thiessen, Amber; Griffith, Julie; Peterson, Angie; Sawyer, Erin; McKelvey, Miechelle

doi:10.1080/02687038.2012.725241

Cited by 17 publications

(14 citation statements)

References 30 publications

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“…Almost all studies reported the data collection process. Thirty studies provided the rationale for their research design, 9, 11, 23, 25–27, 29, 31–33, 35, 39, 41, 42, 44–50, 52–54, 58, 62, 65, 66, 70, 71 nine discussed the relationship between researcher and participants, 29, 42, 44, 46, 50, 54, 66, 70, 71 37 reported rigorous data analyses procedures, 4, 7, 9, 11, 24, 26–28, 30–37, 39, 41–46, 48–50, 52–54, 58, 60, 63, 65, 67–70 45 reported the ethical considerations, 4, 7, 9, 23–25, 27–29, 31, 32, 34, 36–50, 52–60, 62–66, 68–71 and 49 reported the recruitment strategy. 7, 9, 11, 23–25, 27–32, 34–63, 65–71 Of the 10 quantitative studies appraised using CEBMa, all clearly addressed the research question, methods, selection of participants, and had a sample representing the population.…”

Section: Resultsmentioning

confidence: 99%

“…comprehension, 26, 33, 81 memory, 36, 49, 81 concentration, 81 orientation, 71, 77 mental stimulation, 26 insight 85 – “Had difficulty understanding what had been said to him/her in conversations.” 81 …”

Section: Figurementioning

confidence: 99%

“…ability to drive 4, 26, 33, 49, 75 – When they lose their license…that is the most demeaning thing.” 26 …”

Section: Figurementioning

confidence: 99%

“…conversations and social communication, 26, 36, 44, 46, 68, 76, 78 expression, 44, 68, 81 speaking 33, 39, 44, 68, 70 – “she can’t talk, and that … hurts the most.” 33 …”

Section: Figurementioning

confidence: 99%

“…assistive technology 39, 74, 78 – wheelchair, 41 walkers, 59 augmentative communication 33 – “.. negotiate with the staff about not discharging their partners before the assistive devices were prescribed and installed” 39 …”

Section: Figurementioning

confidence: 99%

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Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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Objective Caregivers usually are not involved while planning the stroke survivor’s medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. Design A literature search from 2003 until 2014 was conducted using Medline, CINAHL, PsychINFO and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers’ perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into meta-themes. Results Fifty-two qualitative, ten quantitative survey, and four mixed methods studies were included in the final synthesis. The studies came from eleven countries. The data synthesis produced three meta-themes: a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors. Conclusion This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver’s preference and values into clinical decisions may improve outcomes among stroke survivors.

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Section: Resultsmentioning

confidence: 99%

Section: Figurementioning

confidence: 99%

“…ability to drive 4, 26, 33, 49, 75 – When they lose their license…that is the most demeaning thing.” 26 …”

Section: Figurementioning

confidence: 99%

“…conversations and social communication, 26, 36, 44, 46, 68, 76, 78 expression, 44, 68, 81 speaking 33, 39, 44, 68, 70 – “she can’t talk, and that … hurts the most.” 33 …”

Section: Figurementioning

confidence: 99%

Section: Figurementioning

confidence: 99%

See 3 more Smart Citations

Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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Association Between Communicative Participation and Psychosocial Factors in Patients With Voice Disorders

Nguyen-Feng

Asplund

Frazier

et al. 2021

JAMA Otolaryngol Head Neck Surg

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IMPORTANCECommunicative participation can be conceptualized as taking part in life situations in which people are socially engaged. Communicative participation is an important aspect in the lives of patients with voice disorders, although it has not been formally assessed among a broad sample of patients with voice disorders. The associations between communicative participation and associated concepts (vocal impairment, psychosocial distress, and voice-specific perceived control) are unknown yet important for integrated treatment approaches.OBJECTIVE The primary objective was to examine the associations between communicative participation and vocal impairment, psychosocial distress, and voice-specific perceived control. The secondary objective was to examine whether perceived control moderates the association of distress with communicative participation and vocal impairment, the latter of which would replicate previous research. The hypotheses were that communicative participation would be associated with lower vocal impairment, lower distress, and higher perceived control and that higher perceived control would moderate the association between communicative participation and both vocal impairment and psychosocial distress. DESIGN, SETTING, AND PARTICIPANTS This cross-sectional study was conducted from June 2014 to May 2017 among a consecutive sample of adult patients with voice disorders at an academic voice clinic affiliated with the University of Minnesota. Of the 744 patients approached to participate in the survey study, 590 patients agreed. Data analysis was performed from January to June 2020. MAIN OUTCOMES AND MEASURES Communicative participation (measured by the 10-item general short form of the Communicative Participation Item Bank), vocal impairment (measured by the 10-item version of the Voice Handicap Index), psychosocial distress (measured by the 18-item version of the Brief Symptom Inventory), and voice-specific perceived control (measured by the 8-item present control subscale of the Perceived Control Over Stressful Events Scale). RESULTSThe sample comprised 590 patients (mean [SD] age, 51.9 [17.1] years; 390 women [66.1%]) with voice disorders. Communicative participation was associated with lower vocal impairment (r = −0.73; 95% CI, −0.77 to −0.69), lower overall psychosocial distress (r = −0.22; 95% CI, −0.30 to −0.14), and higher voice-specific perceived control (r = 0.30; 95% CI, 0.23-0.37). Moderation analyses indicated that communicative participation was negatively associated with distress at all levels of perceived control and, replicating previous findings, greater vocal impairment was associated with higher psychosocial distress only in patients with lower perceived control. CONCLUSIONS AND RELEVANCEIn this study, communicative participation was associated with, but distinct from, vocal impairment and was also associated with psychosocial distress and voice-specific perceived control. The study's results suggest that communicative participation is an important addition to voice research...

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A Comparison of the Visual Attention Patterns of People With Aphasia and Adults Without Neurological Conditions for Camera-Engaged and Task-Engaged Visual Scenes

Thiessen

Beukelman

Hux

et al. 2016

J Speech Lang Hear Res

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Results indicate people with aphasia visually attend to scenes differently than adults without neurological conditions. As a consequence, augmentative and alternative communication (AAC) facilitators may have different visual attention behaviors than the people with aphasia for whom they are constructing or selecting visual scenes. Further examination of the visual attention of people with aphasia may help optimize visual scene selection.

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The renegotiation of social roles in chronic aphasia: Finding a voice through AAC

Cited by 17 publications

References 30 publications

Needs of Stroke Survivors as Perceived by Their Caregivers

Needs of Stroke Survivors as Perceived by Their Caregivers

Association Between Communicative Participation and Psychosocial Factors in Patients With Voice Disorders

A Comparison of the Visual Attention Patterns of People With Aphasia and Adults Without Neurological Conditions for Camera-Engaged and Task-Engaged Visual Scenes

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