The reliability of YouTube videos in patients education for Glioblastoma Treatment

ReFaey, Karim; Tripathi, Shashwat; Yoon, Jang W.; Justice, Jessica; Kerezoudis, Panagiotis; Parney, Ian F.; Bendok, Bernard R.; Chaichana, Kaisorn L.

doi:10.1016/j.jocn.2018.07.001

Cited by 74 publications

(59 citation statements)

References 21 publications

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“…Prior studies across multiple specialties have evaluated both POEMs and A/V education materials and have found that patient education materials online are often incorrect and/or incomprehensible . The PEMAT specifically has been used most frequently to evaluate and study educational materials in internal medicine literature.…”

Section: Discussionmentioning

confidence: 99%

“…This has included evaluation of online and printed material for diabetes education, chronic kidney disease, and cardiovascular risk, all of which showed poor actionability and understandability for their respective diseases . There have been some initial studies within otolaryngology that used the PEMAT to look at printed online material for vocal fold nodules and vocal fold paralysis, and those studies showed similarly poor results . However, very few, if any, studies have been published about evaluation of A/V components on education for diseases of the head and neck.…”

Section: Discussionmentioning

confidence: 99%

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Understandability and actionability of audiovisual patient education materials on sinusitis

Rubel

Alwani

Nwosu

et al. 2020

Int Forum Allergy Rhinol

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Background: Acute and chronic rhinosinusitis are debilitating diseases that affect from 5% to 16% of the population. YouTube is the second most commonly used search engine and is o en utilized by patients to garner health information regarding various disease processes and their respective management options. An evaluation of these information resources for quality and reliability is warranted, especially in an era in which patients are increasingly turning to audiovisual (A/V) media to educate themselves regarding their ailments. Methods:The YouTube video database was searched using the term "sinusitis" from its inception through to November 2018. The first 50 videos populated under the relevancebased ranking option were collected and parsed by time and language. Of the 50 videos, 10 were eliminated either for length (ࣘ1 minute or ࣙ20 minutes), language (any language other than English), and/or for later being removed by YouTube for copyright violations. The videos were then assessed using the Patient Education Materials Assessment Tool-Audio/Visual (PEMAT-A/V) by 2 independent reviewers for understandability and actionability. Results:A total of 40 videos were examined using the PEMAT-A/V tool. The average understandability score was 57.7%, whereas the average actionability score was 46.3%. Eleven videos (28%) had actionability scores of 0%. Videos most commonly addressed disease management options (38%). The second largest category was case presentations regarding surgical techniques (30%). There were only 6 videos focused primarily on education about the definition and common traits of sinusitis (15%). Conclusion:Our results show a paucity of high-quality online A/V educational material pertaining to sinusitis, with a majority of videos being neither understandable nor actionable. As patients increasingly turn to internet video databases like YouTube for medical information, it is critical that physicians and institutions create A/V material that is accurate, understandable, and actionable. C 2020 ARS-AAOA, LLC.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Understandability and actionability of audiovisual patient education materials on sinusitis

Rubel

Alwani

Nwosu

et al. 2020

Int Forum Allergy Rhinol

View full text Add to dashboard Cite

show abstract

“…However, since there is no content control or global fact-checking, people might encounter misinformation or biased videos. There have been previous studies evaluating the reliability and accuracy of videos on illnesses with different epidemiologies [10,18,19]. However, there is no previous study that directly evaluates the reliability and accuracy of YouTube videos on "Low back pain", a very common and serious public health concern.…”

Section: Discussionmentioning

confidence: 99%

“…Many patients access YouTube in order to get more information regarding their pain and relevant treatment planning. YouTube is one of the biggest internet platforms with more than a billion users [9] and is the second most visited website after the search engine, Google [10]. When using YouTube as a source of information, one must evaluate the quality of the videos and take certain precautions in order to ensure the information they receive is accurate.…”

Section: Introductionmentioning

confidence: 99%

A Quality Analysis Of Low Back Pain Videos On Youtube

Özbek

Baran

Evran

et al. 2020

Preprint

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Background: Most people face low back pain problems at least once in their lifetimes. With the advancing technology, people have been consulting the internet regarding their diagnoses more and more over the last 20 years. This study aims to evaluate the accuracy and reliability of YouTube videos on low back pain. Methods: The keyword “Low Back Pain” was used in our search on YouTube. The first 50 videos to come up in the search results were evaluated using JAMA, DISCERN, and GQS scoring systems. The individual correlation of each video and the correlation between the aforementioned scoring systems were statistically analyzed. Results: The average length of the 50 videos that were analyzed is 7,57 minutes (0,34 – 48,23 minutes), and the average daily view count of the videos is 331,14. Generally, video quality was found to be “poor”. On average, JAMA score was 1,64, DISCERN score was 1,63 and GQS score was 1,93. The most common videos found on the subject were those that were done by TV programs. And, videos by health information websites and by Hospitals / Doctors / Educational Institutions were, while still being below the threshold value, found to give higher quality information on the subject than the videos by other sources. Conclusion: Videos on YouTube regarding low back pain are of low quality, and most are created by unreliable sources. Therefore, such YouTube videos should not be recommended as patient education tools on low back pain. An important step in disseminating correct medical information to the public would be to have a platform where the accuracy and quality of given medical information are evaluated by medical experts.

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“…We searched the terms “erectile dysfunction,” “erection problems” and “impotence” on YouTube (http://www.youtube.com), and viewed the first 60 videos that appeared by default on the assumption that no user would go beyond the first 60 videos (or first three pages) for each searched item, as in other studies 4,5 . We included in our analysis all English‐language videos regardless of their content or duration.…”

Section: Figmentioning

confidence: 99%

Is English information about erectile dysfunction on YouTube based on scientific evidence?

et al. 2020

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The reliability of YouTube videos in patients education for Glioblastoma Treatment

Cited by 74 publications

References 21 publications

Understandability and actionability of audiovisual patient education materials on sinusitis

Understandability and actionability of audiovisual patient education materials on sinusitis

A Quality Analysis Of Low Back Pain Videos On Youtube

Is English information about erectile dysfunction on YouTube based on scientific evidence?

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