The reliability and validity of the pediatrics quality of life inventoryTM (PedsQL) diabetes module 3.0 for Turkish adolescents with type 1 diabetes

Özçelik, Çağrı Çövener; Aktaş, Eda

doi:10.1007/s13410-014-0234-7

Cited by 5 publications

(3 citation statements)

References 12 publications

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“…The PedsQL 3.0 diabetes module aims to assess Health-Related QoL (HRQOL) speci c to diabetes. PedsQL comes in two versions based on age groups, comprising ve subscales that cover various dimensions of diabetes care, including diabetes symptoms, treatment barriers, and treatment adherence (19)(20)(21).…”

Section: Study Protocolmentioning

confidence: 99%

“…Pediatric psychiatrists assessed all T1D patients using the Schedule for Affective Disorders and Schizophrenia for School-Age Children/Present and Lifetime Turkish Version (K-SADS-PL-T) (16) based on the Diagnostic and Statistical Manual of Mental Disorders-5 (DSM-5) criteria (17,18) to rule out psychiatric conditions. All subjects, along with their parents or caregivers, were asked to ll out several validated questionnaires including the Pediatric Quality of Life Inventory (PedsQL) 3.0diabetes module (19)(20)(21), Strengths and Di culties Questionnaire (SDQ) (22,23), Hypoglycemia Fear Survey for Children (24,25), The Revised Child Anxiety and Depression Scale (R-CADS) (26, 27), and the AHCL system-speci c DTSEQ satisfaction and expectation survey. These assessments were completed before the use of the AID system at the baseline and then again after six months of AHCL system use.…”

Section: Study Protocolmentioning

confidence: 99%

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The Psychosocial Outcomes of Advanced Hybrid Closed-Loop System in Children and Adolescents with Type 1 Diabetes

Jalilova,

Pilan,

Demir

et al. 2024

Preprint

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Objective: The study was carried out to determine the psychosocial outcomes of Advanced Hybrid Closed-Loop (AHCL) systems in children and adolescents with Type 1 Diabetes (T1D). Research design&Method: The study population consisted of 60 children and adolescents with T1D.Standard clinical procedures, including both glycemic indicators, e.g., sensor-measured time within the 70–180 mg/dL range and glycated hemoglobin (HbA1c) levels, and psychosocial metrics were used for data collection. The psychosocial metrics included the Pediatric Quality of Life Inventory (PedsQL) 3.0 Diabetes Module for both children (8-12 years) and parents; the Quality of Life for Youth scale for adolescents (13-18 years); the Strengths and Difficulties Questionnaire (SDQ); the Hypoglycemia Fear Survey for Children(HFS-C); the Revised Child Anxiety and Depression Scale (R-CADS); and AHCLS-specific DTSEQ satisfaction and expectation survey. These metrics were evaluated at the baseline and after six months of AHCL use. Results: Of the 60 children and adolescents with T1D for whom the AHCL system was utilized, 41 patients, 23 female and 18 male, completed the surveys. The mean age of the 41 children and adolescents that constituted the study sample was 12.5 ± 3.2 (min. 6.7, max. 18) years. The time spent within the target glycemic range, i.e., time-in-range (TIR), improved from 76.9 ± 9% at the baseline to 80.4 ± 5% after six months of AHCL system use(p=0.034). Additionally, HbA1c levels reduced from 7.1% ± 0.7% at the baseline to 6.8% ± 0.8% after six months of AHCL system use(P=0.031). The most notable decline in HbA1c was observed in participants with higher baseline HbA1c levels. All patients’ HFS-C and AHCL system-specific DTSEQ satisfaction and expectation survey scores were within the normal range at the baseline and remained unchanged during the follow-up period. No significant difference was found in the R-CADS scores of children and adolescents between baseline and after six months of AHCL system use. However, there was a significant decrease in the R-CADS scores of children and adolescents administered by their parents. Patients’ PedsQL scores were high both at the baseline and after six months of AHCL system use. The evaluation of children and adolescents with SDQ revealed high overall difficulty scores at the baseline. On the other hand, no significant improvement was achieved in SDQ scores after six months of AHCL system use compared to baseline. Conclusions: This is the first study to investigate in detail the psychosocial outcomes of AHCL system use in T1D patients and their parents. Although state-of-the-art technologies such as AHCL provide patients with more flexibility in their daily lives and information about glucose fluctuations, the AHCL resulted in a TIR above the recommended target range without a change in QOL, HFS-C, SDQ, and R-CADS scores. The scores obtained from the R-CADS conducted by the parents of their children indicated that the use of pumps caused a psychological improvement in the long term, with a significant decrease in the R-CADS scores of the children and adolescents with T1D. Further studies are needed to elucidate the reasons for AHCL discontinuation and determine intervention strategies.

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Section: Study Protocolmentioning

confidence: 99%

Section: Study Protocolmentioning

confidence: 99%

The Psychosocial Outcomes of Advanced Hybrid Closed-Loop System in Children and Adolescents with Type 1 Diabetes

Jalilova,

Pilan,

Demir

et al. 2024

Preprint

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show abstract

“…[1,2] Diyabetli bireylerin %5-10'u tip 1 diyabetli olmakla birlikte tip 1 diyabetli birey sayısı gittikçe artış göstermektedir. [3] Tip 1 diyabetli çocuk/errgenler insülin tedavisi, sağlıklı beslenme, düzenli egzersiz, akut/ kronik komplikasyonların yakın izlemi ile sağlıklı bir yaşam sürebilmektedirler. [4,5] Tip 1 diyabetin en sık karşılaşılan akut komplikasyonu hipoglisemidir [6,7] ve kan glukoz seviyesinin 70 mg/dl altına düşmesi olarak tanımlanır.…”

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The University of Virginia Child/Teen Low Blood Sugar Survey: Turkish Validity and Reliability Study

Şahin¹,

Özçelik²

2017

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The effects of parental monitoring on the quality of life and diet quality of adolescents with type 1 diabetes

Bozbulut

Küpçü

Döğer

et al. 2022

Int J Diabetes Dev Ctries

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The reliability and validity of the pediatrics quality of life inventoryTM (PedsQL) diabetes module 3.0 for Turkish adolescents with type 1 diabetes

Cited by 5 publications

References 12 publications

The Psychosocial Outcomes of Advanced Hybrid Closed-Loop System in Children and Adolescents with Type 1 Diabetes

The Psychosocial Outcomes of Advanced Hybrid Closed-Loop System in Children and Adolescents with Type 1 Diabetes

The University of Virginia Child/Teen Low Blood Sugar Survey: Turkish Validity and Reliability Study

The effects of parental monitoring on the quality of life and diet quality of adolescents with type 1 diabetes

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