The relationships of unmet needs with quality of life and characteristics of Indonesian gynecologic cancer survivors

Afiyanti, Yati; Besral, Besral; Haryani, Haryani; Milanti, Ariesta; Nasution, Lina Anisa; Wahidi, Kemala Rita; Gayatri, Dewi

doi:10.5737/23688076313298305

Cited by 10 publications

(14 citation statements)

References 37 publications

(48 reference statements)

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“…The themes identified were consistent with a quantitative study conducted among breast cancer patients in Malaysia, which reported that they had the highest unmet supportive care needs in the psychological domain, followed by physical, patient care needs, and health information [ 18 ]. Studies have found that unmet needs in the early postdiagnosis stage of cancer negatively impact a patient's QoL [ 7 , 19 ]. Hence, it is crucial to recognise these needs and provide sufficient supportive care right from the beginning of diagnosis.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward

Yong

Cheong

Hamzah³

et al. 2023

Qual Life Res

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Purpose Due to the high burden of cancer-related suffering, it is paramount to understand the gaps in cancer care that lead to suffering. Advanced cancer patients have unmet needs and challenges that differ from those with early-stage cancer due to the rapid disease progression. By exploring advanced cancer patients' lived experiences and needs from the physical, psychological, social, and spiritual aspects, this study aims to identify gaps in the Malaysian health system and propose contextualised measures to improve cancer care. Methods Semi-structured, in-depth interviews were conducted to explore advanced cancer patients' lived experiences and needs from the physical, psychological, social, and spiritual aspects. The interviews were then transcribed and coded. Themes were developed from the codes using iterative thematic approach. Results The lived experiences and needs of nineteen patients converged into four major themes: disruption to daily lives, psychosocial and spiritual support system, information needs, and financial needs. This study described predominantly how cancer impacted patients’ lives and livelihood, how patients coped with their psychological conditions after diagnosis, the need for effective communication and trust in a multicultural society, and how finance affected access to and experience of cancer care. Conclusion Advanced cancer patients had different needs beyond receiving medical treatments. A concerted effort is required from clinicians, allied health professionals, social workers, support groups, and family members to understand and fulfil these needs.

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Section: Discussionmentioning

confidence: 99%

A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward

Yong

Cheong

Hamzah³

et al. 2023

Qual Life Res

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“…Si estas necesidades no se satisfacen, se conoce como "necesidades insatisfechas", lo que afectará la calidad de vida del sobreviviente (14,15) . Cuantas más necesidades no satisfechas, peor será la calidad de vida de las sobrevivientes de cáncer ginecológico (6,(16)(17)(18) . Por lo tanto, para mejorar la calidad de vida de los sobrevivientes, una forma a seguir es minimizar las necesidades insatisfechas (9,13,16,17) .…”

Section: Introductionunclassified

The most unmet needs on Gynecological and Breast Cancer Survivors, A Systematic Review

2023

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Introduction: The complexity of treating gynecological and breast cancer causes unmet needs for survivors. This systematic review aimed to identify the most unmet needs of gynecological and breast cancer survivors from the available evidence. Method: Researchers searched the electronic databases PubMed, Cochrane, CINAHL, Ebsco Host, and Science Direct with predetermined criteria. The keywords used were combinations of "gynaecologic* cancer" OR "gynaecologic* cancer survivors" OR "breast cancer" OR "breast cancer survivors" AND "unmet needs." A systematic review was made using PRISMA, the critical appraisal was carried out with the JBI instrument, and bias analysis was carried out using the Robvis Tool. Results: There are 12 selected articles. The two highest unmet needs domains for gynecological and breast cancer survivors are the health system information and psychological domains. Conclusions: Nurses and other health workers must pay attention to implementing holistic care to meet the various needs of gynecological cancer survivors, including health system information and psychological domains. Introduccion: La complejidad del tratamiento del cancer ginecológico y de mama genera necesidades insatisfechas para los sobrevivientes. Esta revisión sistemática tuvo como objetivo identificar las necesidades más insatisfechas de las sobrevivientes de cancer ginecológico y de mama a partir de la evidencia disponible.Método: Los investigadores realizaron búsquedas en las bases de datos PubMed, Cochrane, CINAHL, Ebsco Host, Science Direct con criterios electrónicos predeterminados. Las palabras claves usadas fueron combinacion de " cáncer " ginecológico *"O" sobrevivientes de cáncer ginecológico *" O " cáncer de mama" O " sobrevivientes de cáncer de mama" Y " necesidades insatisfechas ". Se realizó una revisión sistemática mediante PRISMA, la evaluación crítica se realizó con el instrumento JBI y el análisis de sesiones mediante la herramienta Robvis.Resultados: Hay 12 artículos seleccionados. Los dos dominios de necesidades insatisfechas más importantes para los sobrevivientes de cáncer ginecológico y cáncer de mama son el dominio de informacion del sistema de salud y el dominio psicológico.Conclusión: Las enfermeras y otros trabajadores de la salud deben prestar atencion a la implementacion de una atención holística para satisfacer las diversas necesidades de los sobrevivientes de cancer ginecológico, incluidas las necesidades de información del sistema de salud y los dominios psicológicos.

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“…In 2016, the first translations of the CaSUN were completed in Dutch and Chinese [ 20 , 21 ]. To date, the CaSUN was translated into Spanish [ 22 ], Japanese [ 19 ], and Korean [ 23 ] and has been used for cancer survivors living between 6 months and up to 15 years after the end of the treatment [ 24 – 26 ] with a diagnosis of breast [ 21 , 27 – 29 ], colorectal [ 26 , 30 , 31 ], testicular [ 25 ], prostate [ 32 ], head and neck [ 33 ], non-small cell lung [ 23 ], gynaecologic [ 34 , 35 ], endometrial [ 36 ], and a cohort of mixed cancer types [ 12 , 19 , 20 , 24 , 37 – 39 ].…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties of the Slovenian version of the Cancer Survivors’ Unmet Needs (CaSUN-SL) measure in post-treatment cancer survivors

et al. 2022

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Background As the number of cancer survivors is growing, valid instruments for assessing cancer survivors' needs are required. Thus, the aim of this study was to translate and validate the Cancer Survivors Unmet Needs (CaSUN) scale. Methods Cancer survivors were recruited from 30 family medicine practices and separated into two samples (sample 1, n = 147; sample 2, n = 148). Factor structure was explored with an exploratory analysis in sample 1 and determined with a confirmatory analysis in sample 2. Psychometric properties were assessed with internal consistency, test–retest reliability and construct validity. Results A translation and cultural adaptation of the CaSUN scale resulted in 34 items being included in the final version. The factor structure confirmed the five-factors solution of the CaSUN-SL. Cronbach’s alpha was 0.94 for the CaSUN-SL and ranged from 0.71–0.88 for specific domains. Test–retest reliability showed moderate-high stability over time. The CaSUN-SL significantly and positively correlated with anxiety (r = 0.49), depression (r = 0.44), health-related quality of life (r = 0.36), and negatively with self-perceived health (r = − 0.36) and resilience (r = − 0.47), which confirms the construct validity. In addition, we found a significant correlation between unmet needs and age (r = − 0.29), gender (r = 0.14), cancer stage (r = 0.20), cancer type (r = 0.19), and time since treatment (r = − 0.20). Conclusions Results indicate that CaSUN-SL is a valid and reliable measure to assess the Slovenian cancer survivors’ unmet, met and total needs and can be used for further prospective studies. Trial Registration: No. 0120-25/2019/6.

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The relationships of unmet needs with quality of life and characteristics of Indonesian gynecologic cancer survivors

Cited by 10 publications

References 37 publications

A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward

A qualitative study of lived experiences and needs of advanced cancer patients in Malaysia: Gaps and steps forward

The most unmet needs on Gynecological and Breast Cancer Survivors, A Systematic Review

Psychometric properties of the Slovenian version of the Cancer Survivors’ Unmet Needs (CaSUN-SL) measure in post-treatment cancer survivors

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