The Relationship Between Social Affect and Restricted and Repetitive Behaviors Measured on the ADOS-2 and Maternal Stress

Schutte, Claire; Richardson, Wendy; Devlin, Morgan; Hill, Jeanna; Ghossainy, Maliki E.; Hewitson, Laura

doi:10.1007/s10803-017-3453-1

Cited by 11 publications

(9 citation statements)

References 35 publications

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“…Even so, parents seem to need some time to implement the strategies they have learned. As a long-term effect, a lower stress level of parents might contribute to an enhancement of the child's development (Keen et al, 2010;Schutte et al, 2018;Crowell et al, 2019). Surprisingly, parents describe a trend to decreased social support in the FETASS group just after training, which is contrary to our hypothesis.…”

Section: Parental Stresscontrasting

confidence: 99%

“…As mentioned above, it is well-documented that parents of children with ASD show a higher level of stress (Davis and Carter, 2008;Estes et al, 2009;Hayes and Watson, 2013) and there is some evidence of a relationship between parent stress level and social affect and repetitive or restrictive behavior of the children (Harrop et al, 2016;Schutte et al, 2018). There is growing literature that dysfunctional parent-child interaction and parental stress can have a negative impact on the development of the autistic child (Crowell et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

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Preliminary Evaluation of the FETASS Training for Parents of Children With Autism Spectrum Disorder: A Pilot Study

et al. 2021

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While several recent evaluation studies have shown the efficacy of parent training programs for children with neurodevelopmental disorders, manual-based training in German is still scarce. To address this gap, we developed a specific modularized training program for parents of children from preschool to pre-adolescent age with Autism Spectrum Disorder (FETASS). The overarching purpose of the FETASS intervention is to enhance social communication behavior and quality of life of the child by coaching parents. As a proximal target, the FETASS training aims to provide families with behavior management and communication strategies. The development of the training was influenced by published behavioral parent trainings and autism-specific interventions. The training comprises eight weekly sessions and targets families whose children have a diagnosis of Autism Spectrum Disorder (ASD) without intellectual and language impairments. As a preliminary pilot study, the purpose was to evaluate the acceptability of the training. Furthermore, the study aimed at initially evaluating social communication behavior, quality of life of the child, parental stress level, and parenting after training in comparison to a treatment as usual (TAU) group. Exploratively, long-term effects were investigated after 6 months of training as well. In total, 57 families participated (n[TAU] = 29, n[FETASS] = 28). Questionnaires about social communication behavior and quality of life of the child, parental stress, and parenting were administered at three time points (t1: baseline TAU/FETASS, t2: post TAU/FETASS; and t3: 6-month follow-up after FETASS). Primary outcome measures were the social communication behavior of the child and the parent’s proxy report on quality of life of the child. Secondary outcome measures were changes in parental stress and parenting behavior. Acceptability of the training was very high and we had almost no dropouts during training. Results for the primary outcome measure of social communication behavior, overall quality of life of the child, and long-term effects on social communication behavior were not significant. While long-term findings for parent stress reduction and for the quality of life of the child are promising, further research has to be done in a future randomized controlled trial.

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Section: Parental Stresscontrasting

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Preliminary Evaluation of the FETASS Training for Parents of Children With Autism Spectrum Disorder: A Pilot Study

et al. 2021

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“…In recent decades, research on PS in families of children with ASD has increased (Abbeduto et al, 2004; Estes et al, 2009) and autism symptoms, cognitive impairment, and emotional and behavioral problems, as well as socio‐demographic features (Schutte et al, 2018) have been identified as variables possibly contributing to the stress of families (Miranda et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

“…A considerable number of studies exploring the relation between severity of autism symptoms and PS (Bader & Barry, 2014; Brei et al, 2015; Hastings et al, 2005; Hastings & Johnson, 2001; Huang et al, 2014; McStay et al, 2014) have produced mixed findings. Studies conducted with gold standard diagnostic instruments for ASD severity, the Autism Diagnostic Observation Schedule ‐ Generic (ADOS‐G; Lord et al, 2000) and the latest edition Autism Diagnostic Observation Schedule‐Second Edition (ADOS‐2; Lord et al, 2012), all failed to report any association between autism symptom severity and PS (Brei et al, 2015; Davis & Carter, 2008; Schutte et al, 2018). Conversely, studies conducted using parent report assessment of lifetime autism symptom severity, such as the Social Communicational Questionnaire—Lifetime (SCQ‐L) (Rutter, Bailey, & Lord, 2003), showed some associations.…”

Section: Introductionmentioning

confidence: 99%

Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder

et al. 2021

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Parents of people with autism spectrum disorder experience both negative stressful and positive events. Several clinical and socio‐demographic features of children on the autism spectrum have been associated with parenting stress in their families. However, there have been few studies that focus on adolescents and the role of cognitive impairment has rarely been addressed. The main aim of the present research is to explore associations between autism symptoms, cognitive impairment, emotional and behavioral problems, socio‐demographic features, and maternal stress in a sample of young adolescents with Autism Spectrum Disorder with and without cognitive impairment. Cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Maternal education and occupation are only associated with maternal stress in the group with cognitive impairment, while maternal age is stress‐associated in the group of adolescents without cognitive impairment. Age‐related implications for intervention and future research directions are discussed. Lay Summary Parents of individuals on the autism spectrum are exposed to both negative stressful and enriching experiences during their parenthood. While the influence of several child characteristics and socio‐demographic features on parental stress during childhood has been widely explored in past studies, studies on teenagers are limited. The aim of the present research is to explore the influence of several characteristics on maternal stress levels in families with teenagers on the autism spectrum. We found that cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Socio‐demographic features are not associated with maternal stress. Broadly speaking, the subjective perception of parental distress in both groups is less related to teenagers' characteristics then the perception of having a difficult interaction with the teenagers. We divided our participants into two groups (one group with cognitive impairment and the other group without). We found that mothers of teenagers with cognitive impairment are generally more stressed compared to the other group. Furthermore, we confirm that emotional and behavioral problems seem to play a major role in maternal stress (especially in the group without cognitive impairment), while autism symptoms seem to play a minor role. Furthermore, we found that maternal education/occupation and maternal age are associated with maternal stress in the group with and the group without cognitive impairment respectively. This research highlights the association between several variables and stress in mothers of adolescents on the spectrum. Results are discussed in the framework of previous findings highlighting the lack of adequate care and support services for families, especially for those of adolescents on the spectrum with cognitive impairment.

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“…The one study examining the relationship between ASD severity and parenting sense of competency suggested that there is lower sense of satisfaction with the parenting role with increased symptom severity of ASD[15]. Some research has attributed the high level of psychological distress among parents of children with autism to the core traits of social communication deficits[10,24] and restrictive, repetitive behaviours[24-26] in their children. These hallmark deficits often make it difficult for parents to form secure, reciprocal relationships with their children[27,28].…”

Section: Introductionmentioning

confidence: 99%

Parenting preschoolers with autism: Socioeconomic influences on wellbeing and sense of competence

Mathew

Burton

Schierbeek

et al. 2019

WJP

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BACKGROUNDPrevious research suggests that parents raising a child with autism experience higher levels of psychological distress than parents of typically developing children and parents of children with other developmental disorders. Little is known, however, about the intersection between the effects of socioeconomic status (SES) on the wellbeing and sense of parental competency of parents of pre-schoolers with autism and how it relates to child symptom severity.AIMTo examine the relationship between their child’s symptom severity, SES, as measured by neighbourhood advantage and occupational status, on the psychological wellbeing and perceived parenting competence among parents of preschoolers with autism.METHODSParents of 117 preschool-aged children with a diagnosis of autism spectrum disorder (ASD), 107 mothers and 54 fathers, completed questionnaires about their child’s symptoms of ASD and functioning, their own perceptions of their wellbeing and parental competence on entry to an early intervention program in Sydney, Australia. Parents also provided demographic information pertaining to their occupation, level of education attained and address (postcode). All children were also assessed for their severity of symptoms using the Autism Diagnostic Observation Schedule. The Australian Socioeconomic Index of occupational status as a measure of familial SES and the Index of Relative Socio-economic Advantage and Disadvantage as a measure of neighbourhood advantage were used to examine the impact of SES on parental sense of competence and wellbeing.RESULTSCompared to normative populations, both mothers and fathers in our sample reported significantly higher levels of parenting sense of efficacy but lower levels of interest in the parenting role. Mothers also displayed higher levels of satisfaction. Both mothers and fathers displayed higher levels of depression than normative populations with mothers also reporting greater levels of stress and anxiety. Child symptom severity was associated with maternal parenting competency with these relationships amplified among mothers with higher familial SES and who lived in areas of greater neighbourhood advantage. Increased adaptive functioning was associated with better maternal wellbeing, particularly among mothers who lived in areas of greater neighbourhood advantage. Contrastingly, paternal parenting competence was generally not influenced by child adaptive functioning or symptom severity, although for those in higher familial SES brackets, children’s symptom severity and maladaptive symptoms were negatively related to paternal sense of parenting efficacy. There was a trend towards moderate relationships between lower familial SES and greater depression, stress and anxiety among fathers, but no relationship with their child’s ASD symptom severity or functioning.CONCLUSIONSES differentially impacts wellbeing and sense of parenting competence and its relationship to the impact of child symptoms for mothers and fathers of preschoolers with autism.

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The Relationship Between Social Affect and Restricted and Repetitive Behaviors Measured on the ADOS-2 and Maternal Stress

Cited by 11 publications

References 35 publications

Preliminary Evaluation of the FETASS Training for Parents of Children With Autism Spectrum Disorder: A Pilot Study

Preliminary Evaluation of the FETASS Training for Parents of Children With Autism Spectrum Disorder: A Pilot Study

Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder

Parenting preschoolers with autism: Socioeconomic influences on wellbeing and sense of competence

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