The Relationship Between Parent Distress and Child Quality of Life in Pediatric Cancer: A Meta-Analysis

Bakula, Dana M.; Sharkey, Christina; Perez, Megan N.; Espeleta, Hannah C.; Gamwell, Kaitlyn L.; Baudino, Marissa N.; Delozier, Alexandria M.; Chaney, John M.; Alderson, R. Matt; Mullins, Larry L.

doi:10.1016/j.pedn.2019.09.024

Cited by 81 publications

(75 citation statements)

References 41 publications

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“…It is estimated that each year approximately 300,000 children around the world are diagnosed with cancer and it is the leading cause of death in children and adolescents [ 1 ]. The situation of a child’s serious illness, especially one that requires hospitalization, has grave consequences for the whole family and may result in the appearance of symptoms of anxiety, depression or posttraumatic stress [ 2 , 3 , 4 ]. Researchers note that there are certain specific cancer-related stressors that parents experience in domains such as daily/role functioning, cancer communication, and cancer caregiving [ 5 ] or a sense of horror and helplessness during diagnosis and treatment [ 6 ].…”

Section: Introductionmentioning

confidence: 99%

Posttraumatic Growth and Spirituality in Mothers of Children with Pediatric Cancer

Czyżowska

Raszka²,

Kalus

2021

IJERPH

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A child’s cancer, as a life-threatening illness, is classified as a traumatic event both for the child him-/herself and for his/her relatives. Struggling with a traumatic experience can bring positive consequences for an individual, which is referred to as posttraumatic growth. The aim of this study was to explore the relationship between posttraumatic growth and spirituality understood as a personal resource in mothers of children with pediatric cancer. In total, 55 mothers whose children were in the phase of treatment and who had been staying with them in the hospital filled in a Posttraumatic Growth Inventory, Self-description Questionnaire of Spirituality, and the author’s short questionnaire on demographic variables and information on the child and his/her disease. A high level of posttraumatic development, especially in the area of life appreciation, was observed in the examined mothers. Spirituality was positively related to the emergence of positive change, in two particular components, ethical sensitivity and harmony. It seems that taking into account the area of spirituality when planning interventions and providing support in this group could foster coping with the situation and emergence of posttraumatic growth.

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Section: Introductionmentioning

confidence: 99%

Posttraumatic Growth and Spirituality in Mothers of Children with Pediatric Cancer

Czyżowska

Raszka²,

Kalus

2021

IJERPH

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“…exchanging information, making decisions) (Sisk et al 2020, p. 1). Lastly, parental distress appears to be associated with lower quality of life of children (Bakula et al 2020;Pierce et al 2017), which underscores the importance of a trusting parent-provider relationship from the perspective of the child.…”

Section: P3 Descr : Disclosing Prognostic Information To the Child Against Parental Wish Will Further Destabilize The Family Unitmentioning

confidence: 99%

In the name of the family? Against parents’ refusal to disclose prognostic information to children

Rost

Mihailov

2021

Med Health Care and Philos

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Parents frequently attempt to shield their children from distressing prognostic information. Pediatric oncology providers sometimes follow parental request for non-disclosure of prognostic information to children, invoking what we call the stability of the family argument. They believe that if they inform the child about terminal prognosis despite parental wishes, cohesion and family structure will be severely hampered. In this paper, we argue against parental request for non-disclosure. Firstly, we present the stability of the family argument in more detail. We, then, set out the (conceptual, legal, systemic) entitativity of the family and the kind of value the stability of the family argument assumes, before we set on to critically evaluate the argument. Our analysis shows that disclosure of prognostic information to children does not necessarily destabilize the family to a greater extent than non-disclosure. In fact, a systemic perspective suggests that mediated disclosure is more likely to result in a (long-term) stability of the family than non-disclosure. It is in the interest of the family to resist the initial aversive reaction to delivering bad news. In the final part, we draw a set of recommendations on how to facilitate decision-making in face of parental request for non-disclosure.

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“…и др. было доказано, что между психологической адаптацией родителей и качеством жизни ребенка существует значительная взаимосвязь [54].…”

Section: семейная ситуация детей с онкологическими заболеваниямиunclassified

Social adaptation of children with cancer after prolonged treatment

Kurtanova

Burdukova

Shcherbakova

et al. 2020

Современная Зарубежная Психология

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The article is an overview of foreign studies on the socialization of children with cancer in medical history. Studies show that the presence of cancer diagnosis is the strongest stress factor for the child, as well as his long-term hospitalization, painful medical procedures, asthenization, emotional deprivation, separation from the usual lifestyle and close relatives. All this negatively affects the psychological state of the child and his reintegration into society after a long-term treatment. Particular attention is paid to publications about the difficulties a child faces when returning to society. They show that children with cancer (cured or in the state of remission) have difficulties in social interaction, learning problems, cognitive difficulties, which can lead to emotional disorders. The studies aimed at assessing the family situation of children with cancer have been analyzed. The article also describes potential strategies aimed at preventing and correcting social maladjustment of children as well as at psychological support of children with cancer and their families.

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The Relationship Between Parent Distress and Child Quality of Life in Pediatric Cancer: A Meta-Analysis

Cited by 81 publications

References 41 publications

Posttraumatic Growth and Spirituality in Mothers of Children with Pediatric Cancer

Posttraumatic Growth and Spirituality in Mothers of Children with Pediatric Cancer

In the name of the family? Against parents’ refusal to disclose prognostic information to children

Social adaptation of children with cancer after prolonged treatment

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