The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

Bailey, Rachel; Grenyer, Brin F. S.

doi:10.1002/pmh.1273

Cited by 24 publications

(53 citation statements)

References 55 publications

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“…Regarding our second aim, associations were found between consequences of caregiving and LEE scores: urging (IEQ) was positively associated with intrusiveness (EE) and hostility towards the patient (EE), and tension (IEQ) was negatively associated with coping with illness (EE) and positively with hostility towards the patient (EE); however, all the correlations were moderate to low. These results are similar to other studies where higher emotional overinvolvement was correlated with greater burden in caregivers of patients with BPD diagnoses (Bailey & Grenyer, 2015).…”

Section: Discussionsupporting

confidence: 92%

Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

Marco

Jorquera

Fernández

et al. 2019

Clin Psychology and Psychoth

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The involvement evaluation questionnaire (IEQ) was created to evaluate the caregiver's experience of burden and the consequences of providing care to people with psychotic disorders. To date, the IEQ has not been validated with caregivers of people diagnosed with borderline personality disorder (BPD). The main objective of the study was to confirm the psychometric properties and factorial structure of the Spanish version of the IEQ in 151 caregivers of people with BPD, with an average age of 54.52 (SD = 9.91). Two models were tested by means of confirmatory factor analysis, following the original factor structure. The Models 1 and 2 displayed adequate fit, with comparative fit index and Tucker‐Lewis index > 0.90 and root‐mean‐square root of approximation < 0.08; however, Model 2 was more parsimonious. The Cronbach's alphas are adequate, ranging from 0.70 to 0.85. The consequences of providing care to people with BPD had a low or moderate association with the Level of Expressed Emotion scores. IEQ scores of caregivers of people diagnosed with BPD with psychiatric comorbidity did not differ from those of caregivers of people diagnosed with BPD without psychiatric comorbidity. The IEQ has adequate psychometric properties and can be utilized to assess burden in caregivers of people with BPD.

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Section: Discussionsupporting

confidence: 92%

Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

Marco

Jorquera

Fernández

et al. 2019

Clin Psychology and Psychoth

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“…However, consumers with personality disorder often are not offered or are unable to access evidence-based therapies and thus have negative experiences when receiving mental health services [6]. In addition, carers supporting consumers with personality disorder often experience high levels of stress, grief, and mental health problems [7,8], and they can experience difficulties accessing appropriate services for themselves and the consumers they support [9]. Considering the perspectives of consumers and carers is recommended to improve mental health services [10], and is supported by government [11,12] and mental health professionals [13,14].…”

Section: Introductionmentioning

confidence: 99%

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

Barr

Jewell²,

Townsend

et al. 2020

bord personal disord emot dysregul

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Background: Despite effective treatments for personality disorders being developed, consumers and carers often report negative experiences of mental health services, including challenges accessing these treatments. Methods: This qualitative study used separate focus groups to compare the unique perspectives of consumer and carers, and to investigate how to improve services for individuals with personality disorders. Reflexive thematic analysis was used to analyze the data. Results: Both consumers and carers (N = 15) discussed the value of providing appropriate information to consumers when they are diagnosed with personality disorder. Consumers and carers described the importance of creating a safe environment for consumers when they present to the emergency department. Both groups discussed experiencing positive and negative treatment from mental health professionals, and suggested that professionals should be trained to understand personality disorder. Limited accessibility and quality of services, and offering peer support to consumers were also described by consumers and carers. Consumers and carers also had perspectives which were unique to their group. Consumers identified the importance of psychological treatment, having a strong therapeutic relationship with a mental health professional, and the benefit of long term psychotherapy with the same professional. Broadening the scope of psychotherapies including creative, animal-assisted, and physical therapies was recommended by consumers. Carers described the importance of assessing for personality disorder and intervening early. Involvement in the assessment, diagnosis, and intervention process was important to carers. The desire to be recognized and supported by mental health professionals was discussed by carers. Conclusions: This research contributes to the concern that consumers with personality disorder and their carers experience stigma and low quality care within mental health services. In line with these findings, we recommend guidelines for health professionals who work with consumers with personality disorder.

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“…A more recent study on caregiving relatives of people with BPD is largely consistent, although the sample was more evenly split between parents and significant others (Bailey & Grenyer, 2015). More than half of relatives surveyed reported that they were their loved ones' primary caregiver and just over half resided with their loved one (Bailey & Grenyer, 2015). The study of caregivers of people with personality disorders has largely focused on those caring for people with BPD (Bailey & Grenyer, 2013).…”

Section: Characteristics Of Caregivers Until Recently Caregivers Ofmentioning

confidence: 96%

“…A systematic review of six studies found that such caregivers had a mean age of 51, almost 90% were the care-receivers' parents, and more than half of those were mothers (Bailey & Grenyer, 2013). A more recent study on caregiving relatives of people with BPD is largely consistent, although the sample was more evenly split between parents and significant others (Bailey & Grenyer, 2015). More than half of relatives surveyed reported that they were their loved ones' primary caregiver and just over half resided with their loved one (Bailey & Grenyer, 2015).…”

Section: Characteristics Of Caregivers Until Recently Caregivers Ofmentioning

confidence: 99%

Factors Associated with Distress in Caregivers of People with Personality Disorders

Lamborn

Cramer

2020

Community Ment Health J

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I hereby certify that I am the sole author of this thesis and that no part of this thesis has been published or submitted for publication. I certify that, to the best of my knowledge, my thesis does not infringe upon anyone's copyright nor violate any proprietary rights and that any ideas, techniques, quotations, or any other material from the work of other people included in my thesis, published or otherwise, are fully acknowledged in accordance with the standard referencing practices. Furthermore, to the extent that I have included copyrighted material that surpasses the bounds of fair dealing within the meaning of the Canada Copyright Act, I certify that I have obtained a written permission from the copyright owner(s) to include such material(s) in my thesis and have included copies of such copyright clearances to my appendix. I declare that this is a true copy of my thesis, including any final revisions, as approved by my thesis committee and the Graduate Studies office, and that this thesis has not been submitted for a higher degree to any other University or Institution.

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The relationship between expressed emotion and wellbeing for families and carers of a relative with Borderline Personality Disorder

Cited by 24 publications

References 55 publications

Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

Psychometric properties of the Spanish version of the involvement evaluation questionnaire in caregivers of patients with borderline personality disorders

Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences

Factors Associated with Distress in Caregivers of People with Personality Disorders

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